Mostly Recovered From ME/CFS After 22 Years!!
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 22 years
- Published
- Aug 2016
Summary
After antivirals didn't work and sleep medication only helped temporarily then stopped helping for 3 years, took up amygdala retraining as her primary intervention for ME/CFS. Had been ill 22 years, with PEM previously triggered by minimal activities like grocery trips or carrying a bag of cat litter. Titled her own account mostly recovered, now walking 2 flat miles daily, grocery shopping in large stores, doing photography and taking road trips without symptoms. Still takes her progression slow due to anxiety built up from 20-plus years of activities making her sick, and describes a bad PEM crash on a New Zealand trip resolving faster than her old 7-10 day pattern, suggesting resilience without claiming full immunity from setbacks.
What they credit
Credits Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust).
Symptoms mentioned
Symptoms: Anxiety & low mood, Post-exertional malaise.
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