A Town for People with Chronic Fatigue Syndrome (New Yorker) discussion
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Published
- Sep 2019
Summary
LaurelW used Ampligen intravenously over a total of seven years across two separate treatment periods, though the thread gives no specific dose or infusion frequency; she was taken off it in January 2016 when the manufacturer discontinued the compassionate-care program. The thread does not detail how severe her illness was at the outset, beyond her mentioning she had experienced "a severe crash" at one point. She says the drug "helped me so much," and as of posting had been off it for 2.5 years without crashing, calling herself "one of the lucky ones that maintains the gains." She nonetheless remains worried about relapsing and wishes she still had access to the drug in case her condition worsens again.
Similar stories
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List of ME/CFS Recovery and Improvement Stories
Kelvin Lord is listed moving from severe to mild after a year of Ampligen infusions, per the compiled list.
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A Town for People with Chronic Fatigue Syndrome (The New Yorker)
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