Story
ME/CFS
Partial
Independent (blog, forum, news)
POTS & dysautonomiaPost-exertional malaise partial
ME/CFS · healthrising.org · Jan 2021
ME/CFS
Partial
Cured of PEM
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Published
- Jan 2021
Summary
Tried multiple unspecified interventions for PEM and separately for POTS. Illness duration and severity are not detailed. Says she found some things that do away with PEM symptoms but that they caused adverse effects on other symptoms, and separately found something that stabilizes pulse pressure and leaves only minimal POTS symptoms even though her heart rate and blood pressure postural changes remain extreme. No specific drug names are given, and the outcome remains a mixed, partial picture rather than a clear improvement.
Symptoms mentioned
Symptoms: POTS & dysautonomia, Post-exertional malaise.