Miruvor

Sinus, jaw and tonsil surgery

7 people describe trying Sinus, jaw and tonsil surgery, all with ME/CFS.

57%
recovered fully or nearly
4 of 7
29%
improved (substantial or partial)
2 of 7
0%
relapsed
0 of 7
14%
no benefit
1 of 7

How it went

Did it last?

  • 1 of 7 said the benefit wore off.
  • No one said they needed to keep it up to stay well.

Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.

Outcome describedAccountsShare
Full recovery343%
Near-full114%
Substantial229%
Partial00%
Relapsed00%
No benefit114%

Only 7 accounts. Treat these percentages as anecdotes, not rates.

By how ill people were

Severity at worstHow it wentnRecovered
Severe560%

2 accounts don’t say how ill the person was.

Who published these accounts

Recovery advocacy site1 accounts
100%
Independent (blog, forum, news)6 accounts
50%

Right-hand number: share describing a full or near-full recovery. Pages that sell something, and advocacy sites, tend to publish only the successes.

All 7 accounts

  • Improvement story

    Substantial ME/CFS SevereIll 6 years forums.phoenixrising.me Aug 2026

    Across several posts spanning 2023-2026, Gzephyr describes climbing out of EBV-reactivation-driven CFS using valacyclovir as a base, adding NAC and intermittent fasting, and finally a tonsillectomy in early 2025. He says he went from severe (~8/10 fatigue,…

  • From ME to MMA

    Full recovery ME/CFS SevereEffect faded recoverynorway.org Jan 2019

    Recovered after a stay at the AiR Rauland rehabilitation centre, which taught mindfulness, energy-pacing (sorting activities into "green" and "yellow" rest zones) and structured daily routines, following a second severe relapse; before that she had seen a…

  • Going Under the Knife Does It.

    Substantial ME/CFS healthrising.org Sep 2017

    Commenting on another patient's sinus surgery story, mentions her own long-running use of Pycnogenol starting in 1995 and then Grape Seed Extract for over 23 years since, for lifelong sinus and allergy problems. Illness duration and severity are not detailed…

  • Going Under the Knife Does It.

    No benefit ME/CFS SevereIll 11 years healthrising.org Feb 2015

    Had endoscopic sinus surgery after a biopsy found enterovirus RNA in her sinus tissue, on top of ME/CFS meeting ICCC and SEID criteria, POTS, interstitial cystitis and chronic viral infections including EBV, HHV-6 and Coxsackie B5. Had been disabled since…

  • Going Under the Knife Does It

    Near-full ME/CFS Severe healthrising.org Feb 2015

    Diane had sinus surgery, along with herbs, nutritional supplements, hormone supplements, and "serious meditation"; IVIG was also tried but had no effect. None of these interventions are given specific names, doses, or durations. She fell ill in her mid-30s…

  • Sinus Surgery Does the Trick

    Full recovery ME/CFS SevereIll 1 year healthrising.org Jul 2014

    Diane underwent sinus surgery — the specific procedure isn't named — and also tried IVIG (intravenous immunoglobulin), which the page says had no effect; no other treatment names, doses, or durations are given. She had been a high-energy woman in her mid-30s…

  • Sinus Surgery Does the Trick

    Full recovery ME/CFS healthrising.org

    Credits surgery. An unnamed patient had ME/CFS and is described as fully recovered. Sinus surgery.