Whats FINALLY worked for me.
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 8 years
- Published
- Jul 2016
Summary
After eight years severe enough that she could stand only minutes and needed help toileting, and with co-diagnoses of babesiosis, candidiasis, leaky gut and POTS, this poster spent about a year on IV/oral artemisinin and curcumin, 4.5mg LDN and 450mg/day Valcyte plus saline for POTS. Within 1-2 months she regained cooking, household function and toileting independence, calling it "finally getting better, not worse." She admits she can't isolate which component works and continues the whole regimen out of fear of regression rather than certainty.
What they credit
Credits Low-dose naltrexone, POTS medication, Antivirals, Supplements, Herbal and Chinese medicine, Low-dose naltrexone, Salt, fluids and compression, Valcyte / valganciclovir.
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