Miruvor
ME/CFS Severe → partialIll for 14 years

Adrienne Dellwo Shares Her Fibromyalgia Remission Story

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
14 years
Published
Feb 2020

Summary

Adrienne Dellwo's regimen included low-dose naltrexone at 3mg (compounded, versus a standard 30mg dose per the article), plus rhodiola rosea, L-theanine, vitamin B and D, a custom herbal blend and acupuncture from her rheumatologist, meditation, yoga, a gluten-free diet, and later physical therapy with a chiropractor. She was diagnosed with fibromyalgia in 2006 after five to six months of worsening symptoms so severe she had crushing chest pain, light/noise-triggered muscle spasms, and cognitive episodes including one where her "vision literally just went black" while driving. She went into remission after about four years and stayed well enough to freelance-write for 12 years, then endured roughly six years of decline from a separate, misdiagnosed condition that required a wheelchair and speech-to-text software before a correct re-diagnosis about two years ago let her recover dramatically within three months. She is explicit that she is not cured but managing the fibromyalgia down to "subclinical" levels with about 22 pills each morning and another half-dozen at night, noting that even two days without her low-dose naltrexone caused her energy to drop, sleep to worsen, and pain to increase.

Read it in their words

cfsunravelled.com

What they credit

Credits CBT & mindset, Low-dose naltrexone, Alternative therapies, Diet, Hormones & thyroid, Supplements, Surgery & structural, Elimination and ketogenic diets, Herbal and Chinese medicine, Low-dose naltrexone, Meditation, yoga, breathwork, Thyroid (T3, T4, NDT).

Symptoms mentioned

Symptoms: Heart symptoms & palpitations, Pain & fibromyalgia.

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