Miruvor
ME/CFS Severe → substantial

Plaquenil for ME/CFS: work for anybody?

Pisgahforums.phoenixrising.mePublished Aug 2018

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
Not stated
Published
Aug 2018

Summary

Hydroxychloroquine, started at 200mg daily and increased to 200mg twice daily, was taken for about 18 months after being prescribed for an autoimmune skin condition (granuloma annulare). The person had severe ME at baseline and described the drug as definitely helping, with flu-like symptoms and lymph node swelling reduced and pain, stiffness and inflammation decreased. Over the 18 months their overall ME severity improved from severe to moderate. Minor nausea occurred for the first one to two months but did not require stopping. No further follow-up beyond the 18-month period is given, so whether the improvement was maintained afterward is unstated.

Read it in their words

forums.phoenixrising.me

Read the original ↗ Archived copy

What they credit

Hydroxychloroquine / Plaquenil

Symptoms mentioned

Flu-like symptomsGut problemsPain & fibromyalgia

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