Out of the 336 accounts with a clear outcome; 6 more don’t say how it went.
How it went
Did it last?
- 66 of 342 said the benefit wore off (including the 23 who relapsed).
- 32 of 342 needed to keep up a treatment to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 102 | 30% |
| Near-full | 36 | 11% |
| Substantial | 85 | 25% |
| Partial | 69 | 21% |
| Relapsed | 23 | 7% |
| No benefit | 21 | 6% |
| Outcome unclear | 6 | — |
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Mild | 2 | 100% | |
| Moderate | 53 | 34% | |
| Severe | 141 | 45% | |
| Very severe | 56 | 52% |
90 accounts don’t say how ill the person was.
Who published these accounts
25% of these accounts are on pages that sell this treatment or a program around it. Those pages publish their successes; compare the independent row.
What people with pain & fibromyalgia tried
- TreatmentHow it wentRecoveredFaded
- Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust)44 accounts
79% 11%
- Meditation, yoga, breathwork37 accounts
73% 22%
- Lightning Process24 accounts
88% 12%
- Selenium, iodine, minerals21 accounts
19% 19%
- Elimination and ketogenic diets21 accounts
38% 14%
- Trauma work (EFT, EMDR, TRE)20 accounts
70% 10%
- B12 injections and methylation18 accounts
28% 28%
- Pacing and the energy envelope17 accounts
71% 29%
- Doxycycline and other antibiotics15 accounts
27% 27%
- Valtrex / valacyclovir14 accounts
36% 14%
- Thyroid (T3, T4, NDT)14 accounts
29% 21%
- Probiotics and fermented foods14 accounts
21% 14%
- Sarno / TMS / somatic tracking / JournalSpeak14 accounts
69% 0%
- Low-dose naltrexone12 accounts
17% 25%
- Herbal and Chinese medicine12 accounts
42% 25%
- CBT and psychotherapy12 accounts
83% 25%
- NAC and glutathione10 accounts
30% 20%
- Carnitine, BCAA, amino acids9 accounts
22% 33%
- Vitamin D and sun exposure9 accounts
22% 33%
- Valcyte / valganciclovir8 accounts
38% 0%
- Lyme / co-infection protocols8 accounts
12% 0%
- CoQ10 / ubiquinol8 accounts
12% 38%
- Mold avoidance / CIRS protocol8 accounts
38% 25%
- Famvir / famciclovir (Pridgen)7 accounts
14% 29%
- Beta-blockers7 accounts
29% 43%
- PDE5 inhibitors (sildenafil, tadalafil)7 accounts
43% 0%
- Omega-3 and fish oil7 accounts
0% 14%
- Nicotine patches7 accounts
57% 29%
- Paxlovid / nirmatrelvir6 accounts
33% 67%
- IVIG / subcutaneous Ig6 accounts
33% 33%
- SSRIs and antidepressants6 accounts
17% 17%
- NAD+ boosters (NMN, nicotinamide riboside, NADH, ATP)6 accounts
33% 33%
- AHCC and medicinal mushrooms (reishi, shiitake, maitake)5 accounts
0% 60%
- GcMAF, Goleic and Bravo yoghurt5 accounts
0% 40%
- Corticosteroid pulses5 accounts
0% 40%
- Hyperthermia and sauna5 accounts
60% 20%
- Vagus nerve stimulation5 accounts
80% 20%
- Intermittent fasting5 accounts
60% 20%
- Graded exercise / graded activity5 accounts
80% 0%
- Oxymatrine / Equilibrant4 accounts
0% 50%
- Antiparasitics4 accounts
50% 0%
- Sex hormones (progesterone, estrogen, HCG)4 accounts
25% 0%
- Ozone / EBOO / IV vitamin therapy4 accounts
50% 25%
- Nitric-oxide boosters (beetroot, arginine, citrulline)4 accounts
25% 25%
- Neurolinguistic programming (NLP)4 accounts
50% 25%
- Tenofovir / antiretrovirals3 accounts
0% 33%
- Rifaximin / Xifaxan3 accounts
0% 33%
- Rituximab3 accounts
0% 67%
- H1 antihistamines3 accounts
67% 0%
- Calcium channel blockers (nimodipine, amlodipine, verapamil)3 accounts
0% 0%
- Creatine3 accounts
0% 33%
- Nattokinase and fibrinolytics3 accounts
0% 0%
- Stellate ganglion block3 accounts
33% 33%
- Sinus, jaw and tonsil surgery3 accounts
100% 33%
- Extended water fasting (3+ days)3 accounts
67% 0%
- Chrysalis Effect3 accounts
67% 0%
- Radical rest3 accounts
0% 33%
Within the accounts on this page. Grey numbers rest on fewer than 10 accounts.
All 342 accounts
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Alan Gordon: Fatigue, Pain, Nausea, Anxiety: Here's How to Turn Them Off
Credits PRT and mind body. Alan had ME/CFS and is listed among the recovery accounts. Pain psychologist/PRT expert, not a personal story.
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Jonathan Groves' Story
Jonathan practiced Ekadashi Upavasa fasting (fasting on the 11th lunar day) combined with autophagy principles, an elimination diet cutting out all processed food, caffeine, sugar and alcohol, the Silva Method, meditation, breathwork, affirmations and…
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The liminal space between illness and recovery
Credits brain retraining and pain reprocessing. Amy was ill 5y with severe long COVID and is described as almost fully recovered. 95-98% recovered; occasional fatigue and brain fog.
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219: It's All a Predictive Mistake: ME/CFS, Long COVID, Chronic Pain - Vanessa Blackstone, MSW, ACSW
Credits predictive processing and nervous system. Vanessa had long COVID and is listed among the recovery accounts. Social worker; predictive-processing framing.
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221: A Doctor's Recovery Blueprint for ME/CFS, Long COVID and Chronic Pain - Dr. David Schechter, MD
Credits TMS and mind body. David had long COVID and is listed among the recovery accounts. MD/TMS expert; both conditions named, ambiguous.
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A muddy intervention: taVNS (Marci)
Marci, who had fibromyalgia and Long COVID with nerve pain, tried an electrical ear-clip taVNS device for two 10-minute sessions. Rather than improving, she experienced severe vertigo about an hour later, described as "doing backward somersaults in her…
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On the road to recovery from Long Covid
Lauren combined nicotine patches at one-eighth of a patch daily through December with a broad daily supplement regimen, including CoQ10 100mg, Ionic Fulvic Acid 1ml three times a day, Hawthorn Leaves 5ml, and products like Adrenal Complex, Adreno Active,…
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My update to nicotine patch usage for Long Covid recovery
Lauren used nicotine patches for Long COVID, starting with half of a 7mg patch (3.5mg) worn intermittently for 7-10 days at a time with a few days off, then shifting in October 2025 to near-daily half-patch use for about two months, before cutting back in…
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SGB for Long COVID with PTSD, Anxiety and Chronic Pain: case report
This 58-year-old chef received sequential bilateral stellate ganglion blocks, left side then right side a week later, in January 2023, with repeat right-sided blocks in December 2024 and September 2025; the injected medications and doses are not specified.…
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RECOVER's 2nd Round of Long COVID Clinical Trials (SGB case 3)
CPK has undergone stellate ganglion block (SGB) procedures six times over several years for long COVID with a "neuro LC" symptom profile, with further rounds planned roughly every 7 to 8 months. Starting from a baseline pain level of 7-8 out of 10, the first…
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Stuart Porter's Recovery Story
Used the ANS Rewire program alongside a paid one-on-one recovery program with two CFS coaches, then built his own RESTAND framework after studying 300+ other recovery stories over 600+ hours; he was also prescribed GTN (glyceryl trinitrate) by his doctor. He…
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145: Dr. Andrea Furlan, MD: Why Your Brain Signals Danger? (The Cure Starts Here!)
Credits mind body. Andrea had ME/CFS and is listed among the recovery accounts. Pain-medicine MD, expert not patient.
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149: 20 Years of Severe CFS and Fibromyalgia: These 3 Things Cured Me (Ariel Shutte's Story)
Credits brain retraining. Ariel was ill 20 years with severe ME/CFS and is described as fully recovered. Comorbid fibromyalgia.
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What Finally Helped After 25 Years of Chronic Pain, ME/CFS and POTS (Fiona Symington)
Credits brain retraining. Fiona was ill 25 years with ME/CFS and is described as fully recovered. Comorbid chronic pain, POTS.
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Karen Wright's Story
Karen started with a low-histamine diet that brought overnight improvement, then moved to a broader anti-inflammatory diet, alongside pacing, Acceptance and Commitment Therapy through the NHS Long COVID service, breathwork, meditation, yoga, counselling and…
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Berlin Cures' failed Long COVID clinical trial yields lessons on study design
Shayna Bhalla received BC 007 (rovunaptabin) infusions as part of the Berlin Cures Long COVID trial, though the article does not give the specific dose, frequency, or duration of infusions. She had lived with Long COVID for years, with fatigue, headaches and…
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Incredible recovery after 30 years of ME/CFS!
Tried a mind-body recovery approach similar to another poster's Be Your Own Medicine program, closely self-tracking pulse, temperature, sleep, digestion, symptoms, mood and menstrual cycle. Illness history and severity are not detailed in the post. Initially…
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Hope Rooted in Biology: What Helped Us Recover from ME/CFS and Long Covid
Credits Journal Speak, Curable App and CFS School. Kayla was ill 3 years with ME/CFS and is described as almost fully recovered. Post-viral CFS and fibromyalgia; "90% recovered".
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Hope Rooted in Biology: What Helped Us Recover from ME/CFS and Long Covid
Credits psychoneuroimmunology. Ebba had severe ME/CFS and reports a substantial improvement. "Recovered (implied)"; now teaches PNI.
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A New Paradigm for Healing
Credits trauma and somatic work, EMDR and somatic. Harry Boby was ill 4y with severe long COVID and reports a substantial improvement. Relapsed with brainstem pain after a meditation retreat.
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112: Long Covid Recovery Often Means Leaving the System That Made You Sick (Dr. Deepak Ravindran, MD)
Credits mind body. Deepak had long COVID and is listed among the recovery accounts. Pain consultant/author, expert not patient.
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Dan Neuffer's Story
Dan developed his own ANS Rewire nervous-system-retraining program and used gut healing, dietary changes, supplements, meditation and pacing as part of a personalized recovery plan, detailed in his book CFS Unravelled. He was ill with ME/CFS, fibromyalgia…
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Radical Healing with Sara Southgate
Credits trauma and somatic work, reflexology and reiki. Sara had severe ME/CFS and is described as fully recovered. Now coaches women professionally.
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108: How to Rewire a Brain Stuck in Fear and Pain (Dr. Tovah Goldfine)
Credits brain retraining. Tovah had ME/CFS and is listed among the recovery accounts. Expert framing, not a personal story.
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Chronic Pain Success Story - Andrea's Journey Back to Health
Credits brain retraining, meditation and diet. Andrea was ill 6y with severe ME/CFS and is described as fully recovered. Content confirms ME/CFS; 15% to 100%.
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Ela's Success Recovering from Long-Term Fibromyalgia and CFS
Credits brain retraining and meditation. Ela was ill 20y with severe ME/CFS and is described as fully recovered. Norway, age 47; relapsed at 9mo, recovered by 18mo.
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Dr Chia finds enterovirus ME/CFS patients given remdesivir remain in remission (Teodora)
A long COVID patient with associated enterovirus involvement. A Paxlovid course produced remarkable reductions in pain and improved energy, but stopping it triggered a horrendous symptomatic rebound. A later molnupiravir course gave only modest benefit by…
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New idea to alleviate many complaints
Norbert's daughter, diagnosed with ME/CFS, fibromyalgia, long COVID and hypermobile Ehlers-Danlos syndrome after "a medical marathon" of years, underwent an unspecified respiratory therapy whose full protocol is only in a downloadable attachment rather than…
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Recovery from Fibromyalgia with Help of ANS REWIRE
Credits brain retraining. An unnamed patient had ME/CFS and is described as fully recovered. Fibromyalgia-led case; page blocked by JS-redirect wall.
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Creatine - An Alternative Mitochondrial Energy Source for ME/CFS, Fibromyalgia, Long COVID?
Creatine monohydrate (Thorne brand) 5g/day, begun in November 2023; how long she had been ill beforehand is not stated, and she was 72 years old with moderate impairment. After about three months she noticed easier walks and could do more exercise…
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Creatine - An Alternative Mitochondrial Energy Source for ME/CFS, Fibromyalgia, Long COVID?
Creatine monohydrate 5g/day, with effects building gradually over about two months. She had fibromyalgia for over 10 years and ME/CFS for 5-6 years, and was mostly housebound despite working a full-time tech job from home. She called it the first medication…
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Creatine - An Alternative Mitochondrial Energy Source for ME/CFS, Fibromyalgia, Long COVID?
Creatine monohydrate, started at 10g/day for about a month then dropped to a 5g/day maintenance dose, alongside 1.25mg low-dose naltrexone. He had moderate ME/CFS for 8 years before starting. Within weeks he noticed sustained benefits, later calling it the…
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Testosterone resolves fatigue and inflammation
This poster credits testosterone, added on top of ongoing antiviral treatment, with improving energy, recovery and joint pain, calling it icing on the cake and naming it one of his three essential treatments alongside an antiviral and a sleep aid. Dose and…
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Battling ME/CFS: a decade-long recovery
Credits NLP, EFT and diet. Amir was ill 10y with severe ME/CFS and reports a substantial improvement. Now coaches others professionally.
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List of ME/CFS Recovery and Improvement Stories (thread)
Blazer95 moved from moderate-severe to moderate ME/CFS after 3 weeks on citalopram, with less pain and enough function for minor chores; citing published research on citalopram reducing endotoxin-induced fatigue and cytokine production as a possible…
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Improved on triple anticoagulant therapy, considering adding tenofovir
Five months into apixaban, clopidogrel and aspirin (aspirin eventually raised to 100mg/day) for Long Covid presenting as moderate ME/CFS of over two years' standing, improvements appeared around day 40: ability to tolerate screens "increased manyfold," eye…
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Melody's ME/CFS, Fibromyalgia and Long COVID Recovery Story
Melody was infected early in the pandemic, hospitalised with double pneumonia, then bedbound for six months and homebound on supplemental oxygen for two and a half years despite thirteen prescription drugs and multiple specialists. She credits a combination…
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HHV-6/EBV testing UK? / Remitting symptoms on Molnupiravir?
Took a standard course of molnupiravir to treat a COVID infection in 2023, against a backdrop of ME/CFS since 2006 (severity "varying from mild to severe") plus Long Covid from 2022 that had left her "mostly bedbound for a year." Reports "my ME/CFS symptoms…
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Jennifer's Story
Jennifer followed an anti-inflammatory diet based on Andrew Weil and Patrick Holford's principles, alongside regular massage therapy, acupuncture, deep relaxation and meditation practices, and a custom-designed graded walk-training program, after early…
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Flo Stops the Leaks in Her Boat at Last
Flo became ill with ME/CFS and fibromyalgia after mold exposure roughly thirty-seven years before the post, at her worst unable to watch TV, read or follow conversations, with regular vertigo. Years of craniosacral therapy, PRP injections, hydrogen peroxide…
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Bromelain+NAC are really helpful to me
Took 600mg NAC plus 1000mg bromelain (1200 GDU) twice daily on an empty stomach for pre-COVID-onset ME/CFS, for 12 days before stopping due to insomnia. By day 5 reported "more energy, less brainfog, less joint pain and just felt better overall," and notes…
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Life Restored: My Recovery from Myalgic Encephalomyelitis
Credits brain retraining and pain reprocessing. Fiona was ill 14y with very-severe ME/CFS and is described as fully recovered. Used Curable app; disclaims financial tie; recovered 5+ years.
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Supplementation with L-Arginine + Vitamin C has beneficial effects
L-citrulline powder, 3g per dose with 90mg of vitamin C powder, taken twice daily, was credited by searcher1 with resolving her long COVID symptoms. She had been ill with fatigue, breathing problems, muscle aches and brain fog since September 2022. After…
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My long covid recovery recap: the timeline and tools
Ariel Conn's recovery centered on mind-body approaches: Claritin as one of only two things that helped in her first 18 months, then somatic meditations, Nicole Sachs' JournalSpeak journaling method starting December 2021, somatic and Internal Family Systems…
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Candida disappearing with Calcium
Calcium citrate initially replicated Hoosierfans' success, stopping his routine sore throat and improving sleep and gut motility. After adding NAC for three months he developed foot pain and agitation, then histamine-type reactions to the calcium itself…
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What worked for me!
Diagnosed with CFS in 2001, with TSH consistently low over the years, started Synthroid at 75mcg. Nineteen days after starting, reports feeling miserable, with low blood pressure, depression, liver pain and what she calls sugar rage. Reports no benefit and…
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Paula's ME/CFS and Fibromyalgia Success Story
Credits brain retraining. Paula had ME/CFS and reports a substantial improvement. Comorbid fibromyalgia noted in the title.
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The Nicotine Patch (Pauline Mitsuk)
Pauline Mitsuk used a Sefudin-brand nicotine patch, cutting down a 7 mg patch's backing to adjust the dose, for post-COVID shoulder, neck and arm pain on top of existing fibromyalgia. After an initial five days it was "helping a bit," and by continuing for…
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The Nicotine Patch: Long COVID, ME/CFS and Fibromyalgia (Patient 4)
This fourth case-series patient used a 7.5 mg/24h nicotine patch daily for fatigue, sleep disturbance and mood swings. Her mood swings resolved by day five, sleep returned to normal, and fatigue disappeared by day six. She remained in good health at…
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The Nicotine Patch: Long COVID, ME/CFS and Fibromyalgia (Patient 3)
This third case-series patient accidentally used a doubled nicotine-patch dose, about 15 mg/24h, in a single application before stopping due to severe vomiting and diarrhea from the overdose. Despite the adverse reaction, her fatigue disappeared by day four.…
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The Nicotine Patch: Long COVID, ME/CFS and Fibromyalgia (Patient 2)
This second case-series patient used a 7.5 mg/24h nicotine patch daily, a dose that was doubled at one point by mistake, for concentration problems, fatigue and post-exertional malaise. Her concentration was restored by day four, and fatigue and PEM were…
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The Nicotine Patch: Long COVID, ME/CFS and Fibromyalgia (Patient 1)
This patient in Dr. Leitzke's case series used a 7.5 mg/24h nicotine patch applied once daily in the morning for severe weakness. She became weakness-free by day nine of treatment. The page gives no further follow-up on whether the improvement was sustained.
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Success from Probiotics
Took a 14-strain Jamieson probiotic (2 capsules twice daily) for about two weeks while gradually reintroducing oats after roughly 1.5 years of fermentable-fiber intolerance causing brain fog, aches and malaise. After a few days he could increase oat intake…
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Nina Bosselaar
Nina spent about two years trying physiotherapy, occupational therapy, haptotherapy, osteotherapy and a multidisciplinary rehab program without success before shifting to a Tension Myositis Syndrome (TMS) mind-body approach centered on expressive journaling,…
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Gary
Credits trauma and somatic work and Sachs course. Gary was ill 4mo with severe long COVID and is described as fully recovered. Used a paid Freedom from Chronic Pain course.
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Enhancing the Endocannabinoid System in ME/CFS, Fibromyalgia and Long COVID: the Beta-Caryophyllene Option
Medical marijuana in the form of CB2 hemp seed oil capsules, two taken nightly after dinner, was used by a woman who had been severely ill with chronic fatigue syndrome for eight months, mostly bedridden. Within one week she saw dramatic results, and by…
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Enhancing the Endocannabinoid System in ME/CFS, Fibromyalgia and Long COVID: the Beta-Caryophyllene Option
Medical marijuana in the form of Cannanda CB2, a beta-caryophyllene hemp extract, was used by a patient with chronic fatigue syndrome, fibromyalgia and mast cell activation syndrome; her dose and how long she had been ill are not stated. She reports it helps…
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Ten Months of Long COVID
Marie Sanchez Nelson describes taking cetirizine, an antihistamine that calms her nervous system "in minutes," and had started nattokinase just three days before this post, which she hypothesizes may help repair blood vessels; no doses or durations are given…
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Daughter's recovery details
The regimen for Celandine's daughter included daily liquorice root powder and salt in plant milk, weekly-then-tapering Perrin Technique osteopathy (including breast lymphatic massage), the POTS medications ivabradine and midodrine with salt tablets and 2…
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The Strange Syndrome: MCAS, ME/CFS, Fibromyalgia and Long COVID (comment)
Xolair (omalizumab), given as a bi-weekly injection by her GI doctor for mast cell activation syndrome. The patient, described by her father in a comment, had intense MCAS for five years alongside ME/CFS, POTS and gastroparesis, and was very severely ill:…
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My Recovery Journey from Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS)
Mediterranean diet was adopted as one strand of a broad, multi-modal recovery program that also included intermittent fasting, low-dose naltrexone, structured pacing and vagus nerve stimulation, with no separate dose or duration given for the diet itself. He…
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Dr. Craig on Fasting For Better Health in Fibromyalgia and Chronic Fatigue Syndrome
Lowered carbohydrate intake combined with intermittent fasting, progressing after some months to therapeutic fasts of 24 to 72 hours. He had CF/ME-type symptoms for an unstated period until discovering this approach in 2022; severity is not given. After 7 to…
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List of ME/CFS Recovery and Improvement Stories (page 11 discussion)
Dude reported a 20-30% improvement within days of starting 2.5mg aripiprazole every other day, with less brain fog, pain and fatigue, and returned to 19 hours a week of work as a software developer. The gain was described as a meaningful but partial…
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My gigantic story going back to 1996, treatment plan included
Five days into a thiamine/magnesium/potassium-focused protocol after nearly three decades of worsening illness, TexRob reports restored temperature regulation, normalized sweating, resumed GI and urinary function, and reduced brain fog/neuropathic pain,…
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A Patch On It: Melissa's Cerebral Spinal Fluid Leak ME/CFS Recovery Story
Melissa's health declined after a jarring spinal injury in 2019 and she spent a year bedbound with extreme cognitive impairment, having been misdiagnosed with tickborne illness, narcolepsy and POTS. A CT myelogram finally found a spinal fluid leak, and five…
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Leon Williams
Leon Williams recovered using a mind-body/neuroplasticity approach rooted in Dr. John Sarno's Tension Myositis Syndrome (TMS) framework, practicing somatic tracking meditation, expressive writing, breathwork and general meditation, with gardening as a…
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After 37 Years Flo Finds Her Answer
Flo lived with ME/CFS, fibromyalgia and migraines for 37 years, mostly homebound with severe brain fog, vertigo and light and sound sensitivity. She worked through decades of bodywork, energy and conventional therapies with limited success. EFT tapping and…
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Jennifer
Jennifer combined three weeks of lymphatic drainage physiotherapy (started June 2022) with a mind-body/nervous-system retraining approach drawn from Alan Gordon's book The Way Out, the Curable app, Annemarieke Fleming's Dutch fatigue book Je vermoeidheid te…
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Michelle
Michelle saw more than ten specialists and tried extensive medical treatment: beta blockers, the migraine drug Ubrelvy, meclizine for dizziness, two rounds of prednisone, B12 shots for neuropathy, and Paxlovid taken months after her initial infection, plus…
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It was a great revelation and relief to discover that I had the power to heal myself
Began following Nicole Sachs' free "Healing Yourself" videos and her paid "Freedom from Chronic Pain" course, alongside Dr Howard Schubiner's "Unlearn Your Pain" resources, substituting "pain" for "symptoms" as he worked through them from late October 2022,…
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Gary
Gary's recovery is credited to Nicole Sachs' free YouTube series "Healing Yourself" (Parts 1-4) followed by her paid course Freedom from Chronic Pain, plus Dr. Howard Schubiner's mind-body material at unlearnyourpain.com, applying pain-reprocessing…
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Impact of extended-course Paxlovid in established Long COVID (Case 11)
Case 11, a 33-year-old woman roughly three years into severe Long COVID/ME since March 2020, initially bedridden and dependent on caregivers and later "mostly housebound," had a 5-day Paxlovid course in May 2022 that brought significant improvement, ending…
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Impact of extended-course Paxlovid in established Long COVID (Case 7)
Case 7, a 29-year-old man about 10 months into Long COVID/ME since July 2022 with extreme fatigue, PEM, tachycardia, POTS, persistent headache, brain fog, chest pain and shortness of breath, took a 15-day extended Paxlovid course in May 2023 while also on…
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Impact of extended-course Paxlovid in established Long COVID (Case 5)
Case 5, a woman with roughly three years of Long COVID since March 2020 causing respiratory issues, fatigue, PEM, brain fog and body aches that had stopped her from exercising daily, took a 10-day extended Paxlovid course in June 2023 while otherwise only…
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Impact of extended-course Paxlovid in established Long COVID (Case 4)
Case 4, a 51-year-old man about 6 months into Long COVID with fatigue, daily headaches, brain fog, mental exhaustion, PEM, racing heart, palpitations, tinnitus and visual/sensory disturbances, took a 15-day extended Paxlovid course in March 2023 alongside…
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The Guanfacine Gambit: Treating Brain Fog in Long COVID
Trudy takes guanfacine together with NAC, on a modified schedule of half the prescribed guanfacine dose every other day and a full pill on the days between. She had already had fibromyalgia for over 25 years and had been dealing with long COVID for 1.5…
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Lucie's Surprisingly Simple Chronic Fatigue Syndrome Recovery Story
Lucie became ill with relatively mild but disabling ME/CFS around 2011, unable to exercise and with her work and social life sharply curtailed. Following pacing advice and an orthostatic-intolerance protocol of high salt and 2.5 litres of water daily, she…
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Carnivore Diet Reduces Bloating
GreenEdge, who had spent the prior 2 years of a 26-year illness increasingly bed-bound, felt "totally normal" after 6 months on a carnivore diet, with better eyesight, brain function, sleep and muscle function, and managed significant physical projects…
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Healing from Long Covid with water fasting
Eleven months into Long COVID with chest pain, breathlessness, anxiety and depression, Luke did a 28-day water-only fast built around three short dry-fasting stretches of 36, 60 and 84 hours roughly a week apart. Fatigue and brain fog cleared within the…
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Vedicinals-9 for Long Covid - my experiences
Vedicinals-9, taken as one bottle daily for six weeks, three boxes and 42 bottles in total. She had long COVID for more than two years before the trial. Early days brought no change, nausea appeared around days four to eight, energy and ability to go outside…
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I am back to myself – fun with family and friends, working in a full-time job that I love!
Took a three-day online Lightning Process course over Zoom, at a cost of £800, after her GP suspected ME/CFS and suggested she might need a wheelchair, and then did the course's mental exercises "around 100 times a day for the first four months." Her Long…
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Chrissy Zmijewski
This page names no specific program, drug, dose, or therapy for her personally; it is a short video-introduction page that frames her recovery within the site's general mind-body approach and points readers to a fuller account on an external blog. She is…
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Ivermectin for Fibro.
Ivermectin, taken in an initial course of five doses, was tried by someone with a chronic multi-symptom illness (brain fog, muscle aches, fatigue, chemical sensitivities) dating to 1981, based on a hypothesis of ongoing parasitic infection. After the initial…
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Robyn Dale
Robyn was prescribed short-term propranolol for heart arrhythmia and palpitations, at doses that were increased despite her objections, short-term zopiclone and diazepam to help her rest, and medium-term amitriptyline for insomnia, mood, and to stop cluster…
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Diane recovers from ME CFS Fibromyalgia using ANS REWIRE - testimonial
Credits brain retraining. Diane was ill 30y with ME/CFS and reports a substantial improvement. Three decades ill, described as rapid recovery, few specifics.
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Substantial improvement with strange dietary adjustments
Wonkmonk built a highly specific elimination/adjustment diet after years of downhill CFS. He says he moved from borderline "very severe" to the lower end of "severe" - pain almost gone, able to get up, cook, and walk a few miles - and calls it "very…
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Bye-Bye Fight or Flight? Stellate Ganglion Blocks (Patient Two)
This second patient received the same stellate ganglion block procedure, injections on both sides of the neck, after seven months of severe post-COVID cognitive difficulties requiring occupational, physical and speech therapy, along with profound memory…
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Enhancing Butyrate and Gut Health in ME/CFS, Fibromyalgia, Long COVID and Allied Disorders
A butyrate supplement, along with inulin from Jerusalem artichoke, each tried as a single-capsule test rather than a sustained course. He had been ill with severe CFS for about twenty years before this attempt. After just one capsule of either substance he…
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Alternative health and mind/body treatments return former aerobics instructor to health
Used a combination of alternative-health and mind/body approaches for ME/CFS. Was bedbound at her worst. Illness duration and the specific techniques used are not detailed in the visible excerpt. The site describes her as having returned to health and going…
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Fermented Foods Heal Louis's Gut and Health
Louis had 14 years of ill health with severe gut pain, occasional bleeding and fatigue, though he was never formally diagnosed with ME/CFS and kept working full-time. Multiple doctors could not resolve it. Drinking kefir and adopting intermittent fasting…
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My brain maintained my condition by pondering questions such as: 'How am I doing today, which symptoms are the hardest, and consequently; what will I be doing today?'
Minja's recovery centred on gradual "baby steps" increases in activity combined with mindfulness, breathing exercises and progressive relaxation (drawing on teacher Rick Hanson), Brené Brown's podcast "Unlocking Us," and therapy she had previously used for…
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Cusack protocol for EDS—reports from anyone trying it
Maitake mushroom, one component of the Cusack Protocol supplement regimen, was taken by a forum poster with thoracic spinal instability linked to their ME; illness duration is not stated. Within days of starting it they noticed they could stand longer and…
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Paul Garner
At seven months post-infection he was connected with a Norwegian psychology PhD candidate who had recovered from post-viral fatigue and taught him that unconscious defence mechanisms were generating false fatigue alarms, and that he could retrain his bodily…
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Amygdala Retraining Program Improves Symptoms and Biology in Fibromyalgia
The Gupta Program, also referred to as Amygdala and Insula Retraining, using NLP-based techniques to rewire the brain's threat response, done 100 percent for 6 months. She had ME/CFS since 2008 and fibromyalgia since 2010, and by 2018 was completely bedbound…
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Amygdala Retraining Program Improves Symptoms and Biology in Fibromyalgia
The Gupta Program, also referred to as Amygdala and Insula Retraining, using its techniques and support system to calm the limbic system, over an unspecified number of months. She had been unwell for about 10 years, diagnosed with ME/CFS, fibromyalgia, and…
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Some Patients Are Reporting Recovery from Long COVID
Lana Lynch's Long COVID symptoms improved after her second dose of the Pfizer-BioNTech COVID-19 vaccine in May, the only treatment named in the article. Before that she had months of fatigue and daily headaches and had to carefully ration her exertion.…
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I was an ME patient for 23 years. I was in care. Today I can do anything I want, and I enjoy living my life
In 2017 she took a three-day Lightning Process course with practitioner Live Landmark in Oslo after 23 years of "serious degree" ME (diagnosed by neurologist Harald Nyland in 1996), which by then had left her bedbound, wheelchair-dependent, unable to speak…
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Mysterious Ailment, Mysterious Relief: Vaccines Help Some COVID Long-Haulers
The Pfizer COVID-19 vaccine, two doses, is credited with turning around long COVID that had lasted nearly a year. Before vaccination she had headaches, shortness of breath, extreme fatigue and loss of smell, and said she felt like she had aged 20 years. A…
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l-citrulline boosting energy (and BP!)
Citrulline malate, 3 grams taken two to three times daily, was tried by Hip for ME/CFS. He reported it did not seem to do much for his core ME/CFS symptoms. He did notice an anti-anxiety effect, which he attributed to citrulline's conversion to arginine in…
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List of ME/CFS Recovery and Improvement Stories (page 8 discussion)
2Cor.12:19 has used 1mg LDN with turmeric for 6 years for significant pain relief from ME/CFS, osteoarthritis and axonal polyneuropathy, rarely needing additional pain medication - notable enough that a treating neurologist was surprised at the lack of…
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List of ME/CFS Recovery and Improvement Stories (page 7-8 discussion)
godlovesatrier, previously almost housebound, credited the same HASD protocol (v3.2, with EGCG and a broader supplement stack) as BrightCandle for progressing to tolerating low levels of exercise, with resolution of a sore throat, neck pain,…
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The best thing I have done is to say: no way will I accept that my daughter will just lie there and suffer indefinitely, without us being able to do anything
Her mother credits a phone consultation and course with Lightning Process coach Live Landmark, alongside a four-week stay, later repeated, at the Catosenteret rehabilitation centre run by Dr Bard Fossli Jensen, for her daughter's recovery from ME. Before…
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Beating ME: Interview with Sophie Helbig on The Puzzle of Healing
No specific treatment, therapy or program is named on the page itself; it states only that Sophie Helbig had fibromyalgia and extreme fatigue for 24 years before recovering. No detail is given on her symptoms or severity while ill. She is described as a…
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To anyone struggling with ME, I want to say that you can get well!
A woman who fell ill with ME at 29 while studying graphic design and working at a coffee shop credits a Lightning Process course, taken after finding hope reading other recovery stories, with her recovery, though the account does not name the instructor or…
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CBT for CFS: Luke Shares His Experience and Recovery
Luke combined self-directed CBT (working through his own negative thought patterns rather than with a therapist) with a methylation protocol developed by Rich Von Konynenburg (B vitamins plus folic acid), guidance from two books -- Kristina Downing-Orr's…
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A COVID-19 Long Hauler Case Report Points to Autoimmunity and IVIG
Received IVIG at 2g/kg monthly for two months, then reduced to 1g/kg monthly because of IVIG-induced headaches, for post-COVID symptoms that began two weeks after her acute infection resolved: severe leg pain, burning in her feet and hands, blurred vision,…
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Since my recovery, I have completed medical school and worked as a doctor – full-time
Thomas Overvik, a medical student, attended a three-day Lightning Process course in London in summer 2011 after about nine months of illness that began roughly eight months into medical school in autumn 2010, bringing repeated infections, headaches,…
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I was a mother with ME and two children sick with ME – There is hope!
Anette completed a three-day Lightning Process course in November 2017 after 13 years of ME/CFS during which she was bedbound 15-20 hours a day with severe pain, cognitive impairment and sound/light sensitivity. Her son (ill 7 years) and daughter Viktoria…
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The best thing I have done is to say: no way will I accept my daughter will suffer
Aftur, the then-14-year-old daughter in this account, had four weeks of intravenous antibiotics, a biopath-prescribed supplement regimen taken three to four times daily, a strict no-sugar, no-carbohydrate diet, and acupuncture, before doing a 3-day Lightning…
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At last, there was somebody who understood. This is why I was on the phone, crying because of the kindness of these strangers
Recovered following a self-owned graded activity plan designed with Hans Petter Fundingsrud, head of department at University Hospital of North Norway (UNN) in Tromso, after the family was connected to him via former footballer Arild Berg and a Swedish…
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ME/CFS Patient Goes into Remission After Taking Elixir of Youth (GDF11)
beatsmyth, bedbound for a decade with CFS/fibromyalgia, had already improved his gut and skin issues on an 8-month antibiotic protocol before adding BPC-157 and LL-37 peptides for three months, which he called "absolutely miraculous": remaining stomach…
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ME/CFS patient goes into remission after taking GDF11
Ill for fifteen years and bedbound as recently as 2016, this patient self-injected the GDF11 protein subcutaneously every other day alongside an NMN supplement. After about two months he reported feeling one hundred per cent cured, with dramatic resolution…
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Pulsed high dose methylprednisolone plus inosine plus inositol = cured?
After 30 years of illness, pattismith reports that a short pulsed high-dose corticosteroid course (with valacyclovir and inosine/inositol layered in) resolved her pain quickly, restored energy, and cleared her thinking enough to socialize again - "pain was…
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EST, Landmark Education, ME/CFS and Fibromyalgia: My Story
Cort Johnson developed ME/CFS around 1980 and did a roughly 60-hour EST training in January 1982, after which he felt like "a rocket blasting off" and went on to work, finish his degree and feel states of freedom he had never had, though he remained unable…
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Pulsed high dose methylprednisolone (valentinelynx)
Valentinelynx, ill decades with fibromyalgia and CFS, tried a roughly five-day prednisone burst and felt probably less pain and more alert. She is explicit that the effects were not persistent.
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Adrienne Dellwo Shares Her Fibromyalgia Remission Story
Adrienne Dellwo's regimen included low-dose naltrexone at 3mg (compounded, versus a standard 30mg dose per the article), plus rhodiola rosea, L-theanine, vitamin B and D, a custom herbal blend and acupuncture from her rheumatologist, meditation, yoga, a…
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The Temporary ME/CFS and Fibromyalgia Recovery Stories - What Can They Tell Us?
She received Myers' cocktail IV infusions as one of dozens of treatments tried, alongside things like LDN, CBD oil, and hormone therapy, with no specific dose or duration recorded. She had been ill with ME/CFS, fibromyalgia, and POTS for over fifteen years,…
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The Temporary ME/CFS and Fibromyalgia Recovery Stories (anesthesia case)
A 53-year-old woman with severe ME/CFS and fibromyalgia, functioning at about 15 per cent, underwent an unrelated ten-hour surgery under general anaesthesia. Her functional level jumped to roughly 70 per cent, with brain fog, flu-like feelings and…
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How I recovered from M E Hell
Used Ashok Gupta's amygdala retraining program every day for months, giving it what she calls her very best shot. Illness duration and severity are not detailed in this post. Says in her own words that it made no difference to her PEM, weakness,…
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How I recovered from M E Hell
Started the ANS ReWire neural-retraining program at the end of August 2018, alongside osteopathy for pain and a daily 45-minute Qigong practice. Had roughly a decade of severe ME/CFS, at the lowest point virtually unable to walk, talk or do much of anything,…
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Antiparasitic treatment is working
Took a sequence of antiparasitic drugs for a suspected parasitic infection: praziquantel plus albendazole for 14 days repeated after a two-week gap, then nitazoxanide for 14 days, then metronidazole (Flagyl) for 10 days, with an aluminosilicate toxin binder…
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Peter's ME/CFS and Fibromyalgia Story
Credits brain retraining. Peter was ill 30y with moderate ME/CFS and is described as almost fully recovered. 70-year-old; "90% cured" after 3 months, arthritis remains.
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Grape Seed Extract, Thins/Cleans our Blood
Took Pycnogenol daily for a year in 1995, then switched to ongoing Grape Seed Extract for more than 23 years since. Describes a lifetime of allergy and sinus issues beforehand. Says a lifetime of those issues went away, and by a later update at 82 years old…
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Fructose Malabsorption
Eliminated high-fructose foods, including apples, suspecting fructose malabsorption. Illness duration and severity are not detailed. Reports still experiencing nasty diarrhea with gut pain and sometimes gut bleeding, oscillating with constipation, despite…
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Partial success with liver health improvement - choline
Built a liver-support regimen around choline citrate, tapered down from a prescribed 3g per day to 1-1.5g for tolerance, plus milk thistle, inositol, B2, 5-HTP, phosphatidylserine, gamma oil, weekly chicken liver cooked with onion, garlic, ginger and…
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Surprising amazing response to cinnarizine (vasodilator)
Cinnarizine at half a 25mg tablet twice daily - 12.5mg in total, well under the usual 75mg - produced a response within hours of the first dose, with tingling in the hands, feet and fingers and a sense of life coming back into the body. Pressure in the head…
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Never, never give up hope that you can make progress towards your goal of recovery
Credits the Lightning Process, which he took in 2005 after eight years of illness and many prior approaches including acupuncture, juicing, meditation and yoga, nutritionist-prescribed supplements, herbal medicine, naturopathy, Chinese herbs, functional…
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A Calcium Channel Blocker for ME/CFS and Fibromyalgia? Nimodipine Pt. II
Nimodipine, a dihydropyridine calcium channel blocker, caused a severe adverse reaction in this patient after just two tablets, one per day. Illness duration before the trial is not stated. She experienced paralysis in her arms and legs, which reversed only…
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3 Decades of ME/CFS, Fibromyalgia, MCS, Lyme End Fast
Claudia treated chronic Lyme disease from 2012-2015 with three years of low-dose Byron White herbal protocols plus a strict elimination diet, then in 2019 did the three-month ANS REWIRE nervous-system retraining program alongside naturopath adjustments that…
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Trauma, EMDR helped remove a lot of pain from my body
After more than a decade of ME/CFS with chronic kidney/adrenal pain and stimulant intolerance, did EMDR therapy followed by about two years of Internal Family Systems (IFS) work with a former Buddhist monk. Reports kidney pain subsiding for the first time in…
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Jennifer Brea's Recovering Story: the Spinal Series Pt II (Mattie)
The same post describes Mattie, a web developer in the Netherlands whose ME/CFS began in 2010 with a gradual decline to being mostly bedridden. Three months after craniocervical and atlantoaxial fusion surgery she was no longer mostly bedridden and her POTS,…
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My message to all ME/CFS, Fibromyalgia and POTS sufferers is 'don't lose hope!'
Recovered using ANS REWIRE, a method he developed himself combining brain-retraining techniques, DEEP mindfulness meditation, nutrition and physiological and lifestyle changes to calm and retrain the autonomic nervous system, working with an integrative…
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Rituxan Number Three, Some Improvement, Still Early to Tell
Previously bed- and wheelchair-bound with complex neuroimmune disease, EDS, PID, NK-cell deficiency and MCAS, she had two Rituximab infusions in November 2018 and a third by March 2019. By the 3-month mark she reported clearly improved muscle strength and…
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My daughter's ME recovery story
A mother describes her daughter's recovery through two Lightning Process courses, the first in Newcastle in January 2009 and a second about a year later with a different instructor, after a stay at Catosenteret rehabilitation centre during which her…
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It has been important for me to feel ownership to my own process. I've been my own coach all the way
Torill Sorkmo credits a self-designed recovery approach combining meditation, mindfulness, visualisation and a focus on positive ("endorphin") thinking, developed after seeing a Gestalt therapist and a psychologist and after Dr Paul Kavli in Oslo diagnosed…
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When school started after the summer holiday, it was as if he'd never been ill
A mother describes her ten-year-old son's recovery through a Lightning Process course, recommended by a doctor who had himself once been an LP instructor, after about eight months of illness beginning with a cold in January 2018. He slept up to 17 hours a…
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Could Craniocervical Instability Be Causing ME/CFS, Fibromyalgia and POTS? (Jeff)
Jeff was young, healthy and active before a viral infection with high fever triggered symptoms that progressed until he was bedbound, unable to chew food, and diagnosed with ME/CFS, POTS and mast cell activation syndrome. Years into his decline he learned he…
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Luckily I am stubborn, and so I decided to disprove the idea that you just have to live with this diagnosis
Benedicte Viggen Fintland attended Vikersund Kurbad rehabilitation centre and then, from November 2015, Dr Bjarte Stubhaug's stress-management programme at what became Klinikk for Stressmedisin in Fitjar, after being rejected by Catosenteret for being too…
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Did finding an infection via Armin Labs have a positive influence on your treatment & recovery
Antibiotics for Borrelia found via Armin Labs testing gave her relief from "the unrelenting horror of Lyme disease pain and malaise," but she reports the years of undiagnosed infection left lasting autoimmune-type sequelae -- severe POTS, muscle weakness,…
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If I had let my symptoms stop me, I would never have been able to continue
Lise used a self-directed graded walking program, starting at 100 metres on New Year's Day and building to a full 1.3km block after six months, alongside positive self-talk, gradual sensory exposure to light and sound, and progressively harder reading…
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Emil learnt to control his focus by himself, and then things improved very quickly
Emil did an initial three-day Lightning Process course with a private tutorial, then repeated a second course three months later as an observer, both led by Live Landmark, alongside a parent-led strategy of keeping him engaged in enjoyable activities.…
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I had to move in with my mother to get care, but now I define myself as recovered
Anne Mari did a three-day Lightning Process course in September 2018, which she says gave her "more stable energy and an inner confidence of recovery." She had been ill for about a year after contracting Q-fever in November 2017, diagnosed in April 2018 with…
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For me it was about realising that the mind and body is connected, and learn that I could influence my health through cognitive tools
Recovered through a three-day Lightning Process course, learning "cognitive tools" that he says had "an immediate effect" on his physical and mental health, after care from public and private clinics and multiple doctors and hospital specialists had not…
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If I could sleep for a hundred years…
Had psychomotor physiotherapy from early 2017, which gave her "a compass to navigate by," then took a Lightning Process course that included six months of follow-up support. She had experienced fatigue for about ten years, worsening through autumn 2015 until…
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When I read my story today about my illness period, I can hardly believe how bad it was
Attended a three-day Lightning Process course in Oslo in September 2017, after eight hours of municipal cognitive therapy had earlier proved "incredibly effective" and helped her avoid a formal ME/CFS diagnosis. She had been severely ill for about 18 months…
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The illness experience, and the tools I learnt, made me an Olympic athlete
Recovered through a three-day Lightning Process course in December 2009 with her father, taught by two newly licensed instructors from the new Norwegian company Aktiv Prosess, after nothing else had helped — not a GP who told her to exercise through the…
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For me it became vital to think that I was well, to say I was well
Recovered using the Lightning Process, taught over two days in her soundproofed bedroom on 11-13 December 2007 by an LP coach who had herself recovered from bedridden ME, after her mother heard about the method and her doctor recommended it having seen other…
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It is awfully demanding when you are seriously ill, but it is well worth the effort!
Took a Lightning Process course in November after seven years of ME/CFS, having initially been advised against it by the ME association. Before the course she was bedridden and able to walk only a few meters, with breathing difficulty, muscle weakness,…
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From ME to MMA
Recovered after a stay at the AiR Rauland rehabilitation centre, which taught mindfulness, energy-pacing (sorting activities into "green" and "yellow" rest zones) and structured daily routines, following a second severe relapse; before that she had seen a…
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Hyperalgesia and pain resolved with INOSINE
A combination of inosine and caffeine with calcium glutarate, several minerals/B6 and later ribose produced "complete reversion" of longstanding neuropathic pain and pain-free mornings, plus better tolerance of B-vitamin injections. She is explicit it is not…
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More Fatigue with Famciclovir, I Must Continue
Mel9, mostly bedbound with heavy legs and a POTS-type heart-rate response to standing, took 30mg (half a tablet) of Mestinon every four hours and became able to manage a 4km walk plus a further short activity after resting, with reduced POTS symptoms and…
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Instant relief with inosine plus caffeine
pattismith reports that inosine combined with caffeine relieves her muscle weakness/pain and brain fog within about an hour of taking it, and as of a follow-up three weeks later says it is "still working for me." This reads as reliable short-acting symptom…
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Pain gone with AMBROXOL
Ambroxol 15mg three times daily made 35-year-old neuropathic leg/hip pain "vanish" within two hours of the first dose, which she called "a kind of miracle" while immediately doubting it -- "hard to believe... let's see if the effect will keep going on the…
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Plaquenil for ME/CFS: work for anybody?
Hydroxychloroquine at 400mg daily, started August 2018, brought substantial improvement within about two months. Before starting, symptoms were borderline mild-to-moderate ME/CFS with POTS-like dysautonomia, frequent GI symptoms, headaches and rashes. After…
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ANS Rewire Program Works For Bed Bound 11 Year ME/CFS/FM Patient
Used the Dynamic Neural Retraining System (DNRS) program for ME/CFS, fibromyalgia and mold sensitivity that had at one point forced her to sleep outside on a back porch for over a year. Initially had mini-crashes but could sleep indoors again, and by a…
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My Brain Retraining Story
She practiced the Gupta Programme's limbic retraining for several months, including daily 20-minute breathing meditation, NLP-style hand motions, and "soften and flow" visualization. She had been severely ill with ME/CFS for about six years, housebound and…
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Chaga Tea, dramatic but temporary
Drank very strongly brewed chaga mushroom tea for ME/CFS marked by muscle pain, air hunger, shortness of breath and, at its worst, "intense trouble even forming a thought." Reports "significant (above placebo) relief" from the muscle pain, air hunger and…
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The Case for IVIG Treatment in ME/CFS, Fibromyalgia, SFN and POTS
Has been on IVIG since May 2014 for an underlying immunodeficiency (CVID), though the page doesn't specify her exact dose or infusion frequency. It took at least a year before she felt better, and she initially got worse as the new antibodies fought off…
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Plaquenil for ME/CFS: work for anybody?
Hydroxychloroquine, started at 200mg daily and increased to 200mg twice daily, was taken for about 18 months after being prescribed for an autoimmune skin condition (granuloma annulare). The person had severe ME at baseline and described the drug as…
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First time in remission with ketogenic diet
Adopted a strict ketogenic diet after 5.5 years of moderate ME/CFS with escalating weekly crashes: a 48-hour initial fast, under 25g net carbs a day, roughly 75/20/5 fat/protein/carb macros, electrolyte and baking-soda supplementation, and blood monitoring…
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Beginning of improvement?
Six weeks into a self-directed antiviral/immune-booster stack (famciclovir, amantadine, cimetidine, astragalus, inosine, vitamin C) for CFS that began after an unresolved flu six years earlier, reports "much more energy, no brain fog, no fatigue, no chest…
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Choose the order: Oximatrine, Olmesartan, Famciclovir, Inosine Pranobex and Cycloferon.
Olmesartan, an angiotensin receptor blocker taken as part of a Marshall Protocol approach; he does not give his own exact dose, though he notes a severe ME/CFS patient he knew benefited on as little as 20mg daily within a few months. He reports the drug…
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High Altitude Living?
Traveling from Calgary, at roughly 3,000 feet, down to sea level, with no drug or program involved, just a change in elevation. Illness duration and severity beforehand are not stated. After just three days at sea level in Halifax, she reports the pain and…
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ANS Rewire Program Works For Bed Bound 11 Year ME/CFS/FM Patient
Peter, a businessman, developed ME/CFS and fibromyalgia after stress and trauma, becoming mostly bedbound for 11 years and running up significant debt on other treatments. He enrolled in Dan Neuffer's paid ANS Rewire course, a mind-body program of…
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Moderate success with hookworms/helminthic therapy after 2.5 yrs
After 15 years of severe ME/CFS/FM (about 85% housebound, severe PEM, chronic muscle pain, borderline POTS, brain fog), tried hookworm therapy, titrating from 5 up to 25 worms before settling on a maintenance dose of 10. Over 2.5 years reports reduced…
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26 Years of Hell: An ME/CFS/FM Recovery Story
After 26 years of ME/CFS and fibromyalgia (and roughly $200,000 spent on failed treatments), this patient started the Pridgen protocol of Famvir, Celebrex and Cymbalta, with Tramadol for pain. Around 10 weeks in she had a sudden resolution of sensory…
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Colostrum Maf
Used Dr Enlander's injectable GcMAF and developed nerve pain in his feet, leading him to discontinue. No benefit is reported before stopping; presented purely as an adverse-effect-driven discontinuation.
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After 26 Years of Hell, the Pridgen Protocol Does it for X
The patient, identified only as "X", used the Pridgen Protocol under Dr. Pridgen — Famvir (an antiviral) combined with Celebrex (an anti-inflammatory) — though the page gives no specific doses or treatment duration. He had been ill for 26 years, dropping…
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Hematologic Ozone put me in remission
Had already completed hyperbaric oxygen therapy, 30 sessions over two and a half weeks, before this post, and says it was very helpful for ME/CFS and fibromyalgia. Illness duration and severity are not detailed. At the time of posting was considering IV…
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Cumin (Cuminum cyminum): Possible PEM Blocker
Wishful found that eating about 2-2.5 teaspoons of ground cumin before strenuous exertion (2+ hours of chainsaw work) blocked PEM entirely for roughly 8 days of continued heavy activity, before the effect abruptly stopped working, as it had once before after…
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Starting on Valtrex --feeling die-off -- any positive stories?
On Valtrex 6g/day since January, reports joint pain "disappeared completely," with heat tolerance and heart palpitations also improved, and explicitly self-labels as "a responder and success story." Caveats that energy levels remained low: "still in bed most…
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Gaps diet put me in direction to recovery
Diagnosed with ME/CFS and fibromyalgia and bedbound by April 2012, she began the GAPS introduction diet with VSL#3 probiotic, enemas, CoQ10, B12 and vitamin C. Within two weeks she started improving slowly, and over roughly two years on the diet she went…
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This Is Why I Quit Exercise Therapy
Graded exercise therapy, prescribed by an NHS specialist, started with five minutes of walking a day and increased weekly, reaching six minutes in week two and continuing upward. She had been unwell for roughly five months, with flu-like exhaustion, joint…
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Doing well on azythromycin
After 35-plus years of symptoms, including 15 years of joint/back pain and fatigue she likened to ankylosing spondylitis and feeling "half dead with pain and fatigue" going in, took azithromycin 500mg/day for bronchitis and found her joint and back pain…
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Oxymatrine: What to expect with fatigue and how long? (And my on-going journey, info and questions.)
Titrated oxymatrine up to one pill twice daily over 5-6 months, for ME/CFS that had left her housebound on constant bedrest and functioning at "about 35-40%." After an initial worsening (cold sweats, fever, vomiting), reports going "from functioning at about…
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Julie Rehmeyer's Mold Avoidance Recovery Story
Took a two-week mold sabbatical in Tecopa, California, combined with a modified Pridgen Protocol of valtrex 500mg plus celebrex 200mg, for ME/CFS confirmed by two-day exercise testing (originally diagnosed as fibromyalgia). Had been unable to exercise…
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What's worked for me
About a month into an mTORC1-activation supplement regimen, later adding YK-11, tramadol, leucine/glutamine and MYO-X, reports "less PEM, less fatigue, less pain and improved mood." Frames the gains as incremental and additive ("on top of my regimen") rather…
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My start to healing and how Tendonitis/Tendonosis/Bursitis/Gout can overlap and mimic each other
For joint pain including shoulder and hip bursitis, this poster credits bromelain, rutin and parsley as "particularly effective," alongside capsaicin, fish oil and estrogen replacement therapy - the latter she says "saved my kidneys." Presented as clearly…
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WHAT DOES THIS POSITIVE EFFECT OF PREDNISONE MEAN?
Two months into a prednisone taper, this poster describes "breathtaking improvements" in PEM, neck/back pain, fatigue, muscle weakness, brain fog, joint pain and dizziness, while noting not everything resolved completely. She continues despite osteoporosis…
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Desmopressin Does it For ME/CFS/POTS patient
An unnamed patient with severe ME/CFS and POTS was mostly homebound for several years before starting oral desmopressin under Dr Lucinda Bateman's care, alongside pacing and treatment of sleep, pain and anxiety. Within a year the patient reported complete…
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Supplement - Increasing N.O. w/o crashing (arginine, lysine, etc.)
L-arginine, dose and duration unspecified, initially produced a big increase in energy, decreased inflammation and pain, and what the poster called extreme mental focus. This ME/CFS patient, for whom brain fog was one of the most troubling symptoms, then…
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My recovery after my one and only crash.
Combined a strict elimination diet (no gluten, dairy, processed food or fructose) with Lyrica at 225mg per day, low-dose naltrexone, ketotifen, antihistamines, B12 with methylfolate, rifaximin plus neomycin for SIBO, hyperbaric oxygen, and later tDCS.…
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Iron Man: How One Young Person Recovered From POTS / ME/CFS
Jack Schlanger fell severely ill with POTS and ME/CFS-like symptoms at 13 after an infection, unable to attend school full-time with near-constant stomach pain and exercise intolerance. Diagnosed with iron deficiency contributing to his POTS, he was treated…
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Good results from valtrex and valcyte combo
Added Valtrex 1g/day, then Valcyte 450mg twice daily a month later, on top of about a year already on Truvada, for CFS present "5 to 6 years" but only diagnosed 3-4 months earlier; self-rated baseline severity "5 or 6 out of 10," never bedridden but with…
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Verapamil, a calcium-channel blocker, eases my symptoms
Verapamil ER, a non-dihydropyridine calcium channel blocker, was started at 120mg and later raised to 180mg extended-release, taken each evening for several years by the time of posting. Illness duration before starting is not stated. He reports night sweats…
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Did MitoQ Mend Us? A Fibromyalgia and Chronic Fatigue Syndrome (ME/CFS) CoQ10 Trial
MitoQ at 10mg per day was, in this ME/CFS patient's words, "extremely helpful" and, she said, the first drug to keep her from crashing. Illness duration before the trial is not stated. She enrolled in a non-placebo-controlled arm of a formal MitoQ trial but…
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Did MitoQ Mend Us? A Fibromyalgia and Chronic Fatigue Syndrome (ME/CFS) CoQ10 Trial
MitoQ caused severe insomnia in this ME/CFS patient (diagnosed at OMI) after a single 10mg dose, and moderate-to-severe insomnia again when a lower 5mg dose was tried separately. No fatigue or functional benefit is reported from either trial. The person…
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Antiviral Regimen Returns Wheelchair-Bound ME/CFS and Fibromyalgia Patient to Health
Jacyln, wheelchair-bound and sleeping over 20 hours a day with body-wide pain after onset following pregnancy, was put on high-dose Valtrex plus Valcyte by Dr. Lerner to target active EBV. By age 24, about three years after onset, she reported being fully…
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A Fibromyalgia Patient Finds Help with Antivirals
Melissa followed Dr. Lerner's antiviral protocol after testing positive for active cytomegalovirus and Epstein-Barr virus, taking unspecified antibiotics and antivirals; the page does not give exact drug names or doses. She had developed fatigue, postpartum…
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A Decades Long Struggle with Chronic Fatigue Syndrome Ends
Kate, a high school teacher, developed a persistent flu-like illness in 1987 that left her severely disabled for 25 years with fevers, chills, muscle and joint pain and memory problems. Dr Lerner diagnosed an active HHV-6 infection and prescribed high-dose…
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Long Treatment Regimen Reaps Dividends for Irene
Irene, a college teacher, developed severe ME/CFS with active EBV and HHV-6 infections after 2001, with extreme fatigue, migraines, joint pain and memory loss. Over more than a decade she combined Valtrex and Valcyte, Babesia treatment, atenolol, complete…
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Recovering from ME/CFS and Fibromyalgia: The Lerner Way (Marilynne)
Began with nine twice-monthly hospital infusions of IV valacyclovir, then moved to Valcyte (valganciclovir) at 450mg, two tablets twice a day, continuing through May 2015 until she started regressing after switching to a generic version of Valcyte introduced…
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Recovering from Chronic Fatigue Syndrome and Fibromyalgia: The Lerner Way
Janet went from a 1 to a 7-8 out of 10 on Dr. Lerner's functional scale on Valtrex, starting at three pills a day and reducing to two after 11 years. The gain requires ongoing maintenance dosing: dropping to a lower dose brings back headache, swollen glands…
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The Flu That Never Ends Finally Does for Heather
After four years of cognitive trouble, digestive problems, body aches and severe fatigue that diet, yoga, acupuncture, chelation and blood irradiation had not touched, Heather was prescribed Valtrex by Dr. Lerner in 2010. By 2012 she reported being fully…
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ME/CFS/Fibromyalgia Recovery - When Retreat Means Advance
Credits brain retraining and ANS regulation. Dan was ill 7y with very-severe ME/CFS and is described as fully recovered. Later created and now sells the ANS REWIRE program.
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Antiviral Regimen Returns Wheelchair Bound ME/CFS and Fibromyalgia Patient to Health
Jaclyn developed ME/CFS and fibromyalgia around age 21 following a pregnancy, becoming wheelchair-bound with severe short-term memory impairment and sleeping more than 20 hours a day. Dr Lerner treated her with Valcyte and Valtrex plus increased water…
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Has anyone tried "GABA" supplement- need feedback!
GABA (Solgar brand, 500mg) was tried once at bedtime by a patient who uses a motorized wheelchair and carries positive anti-GAD65 antibodies affecting glutamate-to-GABA conversion. Duration of illness is not stated in the post. Rather than helping, the…
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My start to healing and how Tendonitis/Tendonosis/Bursitis/Gout can overlap and mimic each other
A longtime ME/CFS poster reframed two years of debilitating bilateral shoulder pain as "atypical gout" tied to a suspected nightshade/solanine sensitivity. Over 6-12+ months on a large supplement stack plus avoiding nightshades, he regained most shoulder…
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Emotional Healing Key for Fibromyalgia Patient
Tried Bach Flower Remedies herself and says she liked how they felt, describing them as very gentle. Illness duration and severity are not detailed. Says in her own words that the Bach remedies didn't address her physical symptoms, and that she found…
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The Master Cleanse
Fourteen years into CFS and CIRS (also citing heavy metal toxicity, mold and Lyme disease), Eric documented a roughly 25-day Master Cleanse of lemon juice, maple syrup and cayenne, adding psyllium and bentonite shakes and continuing some supplements against…
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Monet finds relief from mind/body practices plus homeopathy
Monet developed ME/CFS and fibromyalgia after a reaction to a vaccination, becoming wheelchair-bound within nine months and mostly bedbound for over a decade. She pursued homeopathy, dietary change, herbal supplements and extensive spiritual and…
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Retraining Puts Linda on the Path to Recovery
Linda, a business owner, became mostly homebound with ME/CFS, fibromyalgia and multiple chemical sensitivities, with crushing fatigue, severe chemical and electromagnetic sensitivity and widespread pain. She credits about 95% recovery to amygdala-retraining…
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Fructose Malabsorption
Cut fructose out of his diet and separately treated a confirmed case of SIBO, after developing worsening stomach pain and going on to develop full ME/CFS on top of existing fibromyalgia over about a year. Describes going downhill more and more beforehand,…
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Vagus Nerve Stimulation Turns Jean's Life Around
Jean developed fibromyalgia during a pregnancy and gradually became mostly bedbound with severe widespread pain, allodynia, brain fog and IBS. Under Dr Benjamin Natelson's care she had a vagus nerve stimulator surgically implanted. She still has some pain…
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Ketamine gives Stephanie a chance at a life
Stephanie developed severe degenerative disc disease after a back injury at 22, leading to multiple surgeries and a mostly bedbound life with extreme pain that opioids, injections, physiotherapy and acupuncture failed to relieve. Ketamine infusions cut her…
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Nutritional Genomics and My Complete Recovery
P5P (vitamin B6) was taken occasionally and in low amounts, specifically when lower-back pain or depression flared, as one part of a broader nutritional-genomics-guided supplement stack that also included biotin 5,000mcg two to three times daily, magnesium…
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Success treating multiple infections with Chlorine Dioxide
Followed Kerri Rivera's MMS (chlorine dioxide) protocol for 4.5 months, combined with a raw vegan diet and daily castor oil packs, for CFS/ME diagnosed 15 years earlier and later found to involve Lyme, bartonella, babesia, EBV, mycoplasma and mold. Had been…
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Rimfaximin seems to have helped my gut
After years of rolling gut pain, alternating bowel habits and frequent migraines, she took Rifaximin 400mg three times daily for 10 days, followed by five days of Azithromycin plus a probiotic and enzyme/fiber regimen. Following the Azithromycin course her…
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A Story of Survival: How Diet Saved a Chronic Fatigue Syndrome (ME/CFS) Patient's Life
Naomi narrowed her diet to ten foods she did not react to and stayed on that restricted diet for five years, alongside deliberate stress reduction and faith practice, a later shift to organic food, and unspecified herbs and vitamins. Her pain and migraines…
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Low Glycemic Diet Eventually Does it For Former Runner
Chris, a competitive runner, became severely ill after a trip abroad and a flu-like illness in 1977 and was eventually reduced to part-time work. Over about twelve years on a low-glycemic diet with sugar eliminated, he reached what he calls 99% cured and…
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Emotional Healing Key for Fibromyalgia Patient
Beth was diagnosed with fibromyalgia in 1987 and was mostly bedbound for close to a decade with severe fatigue, back pain, migraines and insomnia. She pursued Bach Flower Remedies, a candida diet, chiropractic, massage and Reiki alongside addressing…
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I start to relapse every time I come off equilibrant
Equilibrant, a supplement combining shiitake mushroom with selenium, astragalus, sophora flavescens, olive leaf and licorice, was taken daily for over a year, working up to six pills a day. They had a severe bacterial infection that nearly killed them,…
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Do People Really Recover From ME/CFS and/or Fibromyalgia? An Inquiry (John)
John, ill and unable to work full-time since 1987, commented that rife machine therapy once gave him two days of feeling completely cleared of his CFS symptoms. He was unable to reproduce the result afterwards and remained ill.
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Do People Really Recover From ME/CFS and/or Fibromyalgia? An Inquiry (Alice)
Alice commented that after six years of fibromyalgia she felt much better than she had in years for about six weeks after starting a herbal antimicrobial protocol, a mushroom combination, megadose vitamin C, ashwagandha and L-phenylalanine. The improvement…
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Do People Really Recover From ME/CFS and/or Fibromyalgia? An Inquiry (Sandrine)
Commenting on this inquiry post, Sandrine described about two years of severe fibromyalgia so bad she was once unable to brush her teeth and would scream from pain. She credits essential oils taken internally and topically, liposomal vitamin C, MSM, olive…
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My CFS Recovery
Jocelyn became severely ill with CFS more than 25 years before writing, at one point nearly bedridden for over a year with fatigue, muscle and joint aches, brain fog and near-fainting. Intravenous vitamin therapy and dietary change first let her work and…
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Cavitations and Root Canals
ERROL_FARNHAMSURREY had suffered 25-30 years of phantom tooth pain, ear/sinus/eye pain and chronic flu-like drainage before a maxillofacial surgeon found and removed a 2.5cm necrotic jawbone cavitation in June 2015. Within 5-10 days of surgery his…
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Eight Years of ME/CFS Disappears in Two Hours
Had normal thyroid panels for years despite developing dry skin, dry hair and joint pain, until T3 levels eventually tested abnormal and thyroid medication was started. Illness duration before this point is not given, though she describes herself as still…
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Renewal and Relapse: An Anti-inflammatory Chronic Fatigue Syndrome Story
Diclofenac was taken as a 75 mg slow-release tablet, later increased to twice daily, after 32 years of living with ME. Both pain and fatigue improved substantially and he felt he had essentially recovered while on it. After an unspecified period the effect…
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Louise Finds One Thing That Turns Life Around
Louise, who had a prior history of anxiety and depression, developed post-viral fatigue after stress-induced poor sleep escalated into flu-like symptoms, severe muscle and joint pain and a sore throat that left her unable to work. Amitriptyline, rest,…
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Recovery Story Survey Suggests Some Commonalities
Combined yoga breathing exercises, dietary changes and other selectively chosen natural approaches with a scientific basis, for ME/CFS, while explicitly rejecting the Lightning Process as an option. Illness duration and severity are not detailed in this…
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Spiritual Experience Changes Matt's Life
Matt developed chronic fatigue syndrome after a viral illness in the mid-1990s and by 1998 was severely disabled with fatigue, dizziness, breathing difficulty, muscle pain, night sweats and brain fog that forced him to stop working. He states supplements and…
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Rachel's Fibromyalgia Recovery - Robust the Second Time
Credits unspecified. Rachel was ill 15y with ME/CFS and is described as fully recovered. Method vague; symptom-free 6+ years, exercises daily.
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Oxygen and Fatigue in Fibromyalgia and ME
Used a mouth spray marketed to athletes and said to increase oxygen at the cellular level, for about a month by the time of posting. Illness duration and severity are not given. Says she feels so much better, has been able to train again, and her headaches…
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Feeling better.
Tried a homeopathic medication, type and dose not specified, while 95% bedbound with ME/CFS, describing every day beforehand as a new exercise in pain, PEM and lost sleep. Says in her own words that she now feels so much better. Notes that her daughter, who…
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Unexpected benefits of piracetam - helps with muscle aches, improves physical function
Taking piracetam on and off for about a year alongside exercise, this poster reports improved circulation and "clearer thinking," but attributes the benefit to the combination of piracetam plus exercise rather than the supplement alone - a modest, qualified…
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"Clean Energy": Can a Ketogenic Diet Help with ME/CFS and Fibromyalgia?
First diagnosed with ME/CFS as a teenager in 1998 and later in remission, Dr. Courtney Craig relapsed into crushing fatigue, disturbed sleep and muscle weakness. She shifted to a ketogenic diet, getting roughly 80% of calories from fat and monitoring ketosis…
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Doing So Well On Modified Cowden Protocol
Nineteen years after a suspected tick bite left her unable to walk more than 10-20 minutes, a UK woman in her late 60s started a modified Cowden herbal protocol (Banderol/Cumanda, Andrographis 4/day, Japanese Knotweed 12/day for about three months, teasel…
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Adrienne Delwho's Pathway to Remission
Adrienne, a former full-time TV news producer, developed full-blown fibromyalgia in 2006 that knocked her down hard. Over about four years she pursued endometrial ablation, acupuncture, a range of targeted supplements and a CPAP machine for newly diagnosed…
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I had Rituxan and I feel amazing
Ill 33 years with feeding-tube dependence, orthostatic blood pressure of 58/42, bedbound autonomic dysfunction and photophobia, she received 4 weekly Rituximab infusions (375mg/m2) with methotrexate and steroid premedication at Stanford, finishing mid-March…
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Clindamycin is a miracle drug for my CFS/ME/POTS/Fibromyalgia symptoms
Took clindamycin 300mg three times daily for 10 days on two separate occasions, once for a tooth infection and once for a throat infection. Reported it helped "tremendously with ALL of my diagnoses" (CFS, POTS, fibromyalgia and others), to the point of not…
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Mickel Therapy Turns the Corner for Experienced Mind/Body Practitioner
Susie, herself a trained mind-body practitioner, became severely ill in 1991 with energy near zero plus severe pain, having already tried homeopathy, visualisation, acupuncture and CBT without success. About 24 years later she credits Mickel Therapy, built…
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20 Years of Fibromyalgia, CFS, PTSD, Depression End
Credits mindset book, EFT tapping and diet. Leah was ill 20y with severe ME/CFS and is described as fully recovered. EFT, anti-inflammatory diet, lost 70lb.
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Unexpected benefits of piracetam - helps with muscle aches, improves physical function
After two years of permanent muscle aches, this poster found piracetam made the aches disappear within days, alongside enhanced senses, better word-finding, improved sleep and enough strength to jog again for the first time in years. Cognition itself wasn't…
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Going Under the Knife Does It
Diane had sinus surgery, along with herbs, nutritional supplements, hormone supplements, and "serious meditation"; IVIG was also tried but had no effect. None of these interventions are given specific names, doses, or durations. She fell ill in her mid-30s…
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Thirteen years after occupational exposure - Doug is well
Doug developed ME/CFS after occupational exposure to a waterlogged building around 1996-2000, with constant flu-like illness, fever, joint pain and IBS, relapsing three or four times a year during a long partial-recovery phase. Over about thirteen years he…
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Equilbrant feels like helping me
Twenty-two years into illness and functioning at an estimated 30-40% of former capacity, started Equilibrant (oxymatrine) up to two capsules daily. Over the first ten days to a month reported better and longer sleep, dressing without pain medication,…
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Combination of Supplements Allows Me to Work and Exercise - But causes extreme Gastritis
Built a roughly 60-item daily supplement stack (B12, NADH, high-dose antioxidants/glutathione, SAM-e, CoQ10, glandulars, ribose, phosphatidylserine and more) over three-plus years of trial and error for CFS, fibromyalgia and Hashimoto's. Says the combination…
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My Chronic Fatigue Recovery Story
Functioning at an estimated 20-30% with brain fog and activity-triggered crashes, this poster credits about a month of intensive journaling and emotional-processing work (targeting suppressed anger), guided by a self-help book, for a full recovery. Back…
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2 Months Into Valtrex Treatment
With high EBV titers causing ongoing flu-like symptoms, took Valtrex 1g twice daily for about two months and reported "significant relief of symptoms/pain." The thread ends there without follow-up on whether the improvement was sustained.
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Is Lyme Disease Curable? Katina Makris' Story
Credits CBT or psychological work and mentor mindset. Katina was ill 10y with severe ME/CFS and reports a substantial improvement. Chronic Lyme plus fibromyalgia; mindset shift.
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GcMAF spray and bravo yogurt
The same patient who had a marginal-to-positive response to GcMAF/Bravo products for his ME/CFS found that after later contracting COVID and developing long COVID, the products "would flare up my Cov chest pain/tightness and general inflammation" - a clear…
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Boo's Healing with B12 Journal
About two years into B12-deficiency-related neurological symptoms, depression and heart palpitations severe enough to include hospitalization for a suspected cardiac event, she moved to monthly hydroxocobalamin injections alongside potassium, magnesium, iron…
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Mind-body Work and Alternative Treatments Kisses 15 Years of ME/CFS Good-Bye
The unnamed subject first fell ill after measles at age 12 and was severely disabled by 1979, losing his balance, unable to stand, with headaches and muscle pain, eventually working part-time before retiring at 50. Over 15 years he pursued self-hypnosis,…
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Dr. Craig on Fasting For Better Health in Fibromyalgia and Chronic Fatigue Syndrome
Periodic intermittent fasting of 12 to 18 hours, one to two times a week, with an early dinner followed by a late breakfast the next day. She had chronic fatigue syndrome for 15 years before getting it under control and calls the fasting routine crucial to…
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Sinus Surgery Does the Trick
Diane underwent sinus surgery — the specific procedure isn't named — and also tried IVIG (intravenous immunoglobulin), which the page says had no effect; no other treatment names, doses, or durations are given. She had been a high-energy woman in her mid-30s…
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Interferential current therapy via electroacupuncture: significant benefits / recovery from ME/CFS
After 23 years of illness and roughly 600 practitioner visits, reports "presently having great success" with spironolactone, saying it let her cut all her pain medications by at least half. No dose is given and the post does not describe overall functional…
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Methylation recovery survey. Recovery stories here!!
Followed a "Yasko lite" methylation protocol blending Rich Van Konynenburg/Freddd/Ben Lynch approaches for about 1.5 years, including methylcobalamin, adenosylcobalamin, potassium, magnesium, molybdenum and methylfolate. She discontinued long-term antifungal…
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Those who have benefited from B12 and methylation treatment
Ran a Freddd-style active methylation stack - L-carnitine fumarate, methylcobalamin, methylfolate and adenosylcobalamin, doses escalated then scaled back to around 2 tablets a day each - in what he called the "very early days" of trying it. He got an initial…
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High-Dose Selenium Significantly Improves My Fatigue and Brain Fog
Hip is a long-standing, moderately ill ME/CFS forum member and prolific self-experimenter who has never found one cure but has documented dozens of individual n=1 supplement/technique trials, each targeting a specific symptom. Notably, high-dose selenium…
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Woman's Significant Health Improvements Using Baking Soda - [Sodium Bicarbonate]
About 1/4 teaspoon of baking soda every few days (more after phenol exposure) is credited with ending her headaches entirely, bringing blood pressure and heart rate to "excellent," and restoring energy to "where it was 20 years ago," waking refreshed.…
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Diet and improvement
Followed a strict "Practical Paleo"-book diet for 30 days, then eased off slightly, over about two months total. She reports "significant improvement" - much more energy, headaches and dizziness gone, and anxiety gone (though she notes that "could be from…
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Ten Years of healing: No more congestive heart failure, FMS, CFS and minus 100 pounds
After roughly a decade disabled to the point of managing only 8 minutes of rebounding exercise a day, she followed the Deadlock Quartet methylation protocol and reported "doing so well." A year later, in a separate thread, she described "massive…
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Ten Years of healing: No more congestive heart failure, FMS, CFS and minus 100 pounds
Twenty years into disabling CFS, fibromyalgia and congestive heart failure requiring daily diuretics for 85lbs of water retention, he began an injectable methylcobalamin/adenosylcobalamin/methylfolate/L-carnitine protocol (the "Deadlock Quartet," later…
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Healing results---good news
After more than a year of severe illness (internal tremors, burning/throbbing hands, nerve pain), she followed Freddd's protocol for 5 years total — sublingual methylcobalamin for about 3 years, then near-daily injections for 2 more. She reports "absolutely…
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what seems likely to have improved my gut?
After years of gut pain following nearly every meal, he built up a broad supplement stack and reports his gut pain "starting to improve dramatically in the past week," on top of an earlier partial improvement within the first week of starting magnesium. The…
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Conversations for Coping: Prayer, Peace and Dealing with Upsets in Chronic Fatigue Syndrome
Daily prayer, described by Brenda Brown Elliott as "Letting Go" and "Letting God," practiced as an ongoing coping habit rather than a defined course of treatment. She writes of living with the daily pain, fatigue and frailty of ME/CFS but does not state how…
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Anyone have any success with GAPS?
After 3.5 years of severe ME, she combined a GAPS/Paleo hybrid diet with aloe vera, glutamine, bone broth, juicing, liver-detox herbs and probiotics. She estimates the diet alone took her from "10% with pain to 40% with no pain," describing it as ongoing,…
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Are Opioids a Mistake in Fibromyalgia and ME/CFS?
One hydrocodone/acetaminophen 500/50 tablet at bedtime, combined with Xanax, taken nightly for sleep and pain, with an occasional second dose allowed on the worst days. Reported daytime pain around 2/10 rising to about 6/10 in the evenings, consistent with…
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Liz Dyde's Mind-Body Connection in Fibromyalgia
Credits mind body and brain retraining. Liz had ME/CFS and is described as fully recovered. Practitioner interview; recovery called accidental.
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having a lot of relief from my cfs symptoms
Six years into CFS, fibromyalgia and hepatitis C, with ankle/foot pain limiting her to walking only minutes, this poster reports being able to walk for hours pain-free after adding RNA drops containing "iCell" to her existing Effexor/gabapentin/Cymbalta…
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Starting to see moderate success on Valcyte against CMV
Four years into illness, after 3.5 years of antibiotics and antimalarials for Lyme and co-infections (Bartonella, Chlamydia pneumoniae, Mycoplasma pneumoniae, Babesia) stopped helping, switched to Valcyte 2 tablets daily. After three months her CMV…
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Skyline's Journal: Progress & Experiments
About a week into restarting a full methylation protocol (high-dose methylfolate, dual-form B12, folinic acid and potassium alongside L-carnitine and B-vitamins), this poster's self-rated daily tracking shows energy reaching "10," headaches nearly resolved,…
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My Valcyte pilgrimage
Eighteen years into illness and previously bedbound, unable to sustain even a five-minute conversation and enduring daily headaches at 7-8/10 severity for up to 15 hours a day, reported that after 18 months on Valcyte they could take frequent 30-45 minute…
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Fibromyalgia/CFS Recovery Story: Berit Frivold
Credits the Lightning Process. Berit was ill 13y with moderate ME/CFS and is described as fully recovered. Later became a Lightning Process practitioner herself.
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Pat Gurnick Learned How to Get Well from CFS
Pat Gurnick's main treatment was the Guaifenesin Protocol (developed by Dr. Paul St. Amand), followed for 1.2 years, alongside the antiviral Kutapressin and pacing and self-regulation techniques from Dr. William Collinge's CFS book, plus staying within her…
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Stem Cell Treatments For Chronic Fatigue Syndrome: Susan Lucey
Susan Lucey traveled to Panama for stem cell treatment across two visits (the first in May), describing it as the "30 day MS Protocol," and was able to titrate down from 40mg to 5mg of Cortef shortly after her second visit; the account does not specify the…
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My Story - Dan Neuffer's ME/CFS Fibromyalgia POTS Recovery
Dan Neuffer's page gives only general categories of treatment rather than specific drugs or doses: he says he "healed my gut and changed my diet" under a doctor's guidance, used unnamed supplements to support metabolism, detoxification and oxidative stress,…
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GOOD things happening!! Am I a responder???
Ill 35 years and largely confined to the couch in a fetal position with severe pain, she had two Rituximab infusions two weeks apart (of a planned eight) and initially became "vertical a LOT more," with flu-like symptoms down 80%+ and able to dine out,…
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Magnesium threonate helping with mood, pain, and sleep!
Took roughly two-thirds of the recommended dose of magnesium L-threonate (Life Extension's Neuro-Mag) morning and early afternoon for almost three weeks. The first week brought "wonderful euphoria and a powerful mood boost," settling into a "subtle, even…
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Does anyone consider LDN to be a cure??
Took 1mg LDN for 3-4 days at a time, over the last 4 months. Reports his white blood cell count doubled and he had "more energy," but muscle pain got worse over the same period -- a mixed, uncertain result rather than a clean win, which he presents with…
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Some things that have helped me
A ten-month combination of Lugol's iodine, desiccated thyroid, an elimination diet, monthly liver flushes and an antiparasitic herbal mix brought "much more energy and much less pain" after 9.5 years of CFS/fibromyalgia, with symptoms shifting within a day…
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CFS tension headaches- home ultrasound miracle cure!
Had been on permanent analgesics and regular physiotherapy for chronic tension headaches tied to her CFS, then began using a home ultrasound device on her neck muscles. Says it "completely relaxes them" and her headaches are "always completely gone by the…
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Update from Michael Snyderman, MD
Dr. Snyderman, who developed CFS about a decade after an oral polio vaccine and later CLL, started AZT plus raltegravir 571 days after his CLL diagnosis and improved for about 9.4 months, with falling cytokine markers and better fatigue, concentration and…
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Anyone improve from bed/housebound to high level of functionality?
With no medication, just strict pacing and aggressive bed rest whenever a crash threatened, she recovered very slowly over roughly 3-5 years from total bedridden severity (about 9 months unable to stand, with periods of unconsciousness) plus fibromyalgia,…
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Anyone improve from bed/housebound to high level of functionality?
Mostly bedridden (occasionally a little more functional) for years after a 1982 onset, she did colonic irrigation, acupuncture and Chinese herbs from 1986-1988 and rose to near-normal activity with only mild symptoms, holding that level for about 15 years…
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Feel much better on methylation and pyroluria treatment, but still weird symptoms
After years of chest pain and anxiety severe enough to require benzodiazepines, combining B12 injections, folate, P5P and a kryptopyrroluria (KPU) protocol of high-dose zinc and B6 resolved chest pain he'd had for over 2 years, sharply reduced anxiety, and…
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THE CASE FOR RAPID HEALING WITH METHYLCOBALAMIN, ADENOSYCONBALAMIN AND METAFOLIN
Developing Parkinson's-like tremors alongside fibromyalgia/CFS and neurotransmitter dysfunction, she began methylcobalamin and adenosylcobalamin injections (later adding hydroxocobalamin) plus Metafolin, avoiding folic and folinic acid. She reports the…
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My experience on Famvir
Relapsed with CFS in October 2010 after three months of stress, then started Famvir 250mg twice daily (briefly upped to 500mg twice daily for 5-7 days) combined with Cycloferon; within two to three weeks felt "substantially better," with milder headaches and…
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Diagnosis Unknown - Story of CFS Recovery
Book-excerpt account (from "Diagnosis Unknown") quoted on the forum describing Linda Smith's illness, which had left her unable to walk unassisted, in constant pain, with swollen feet/fingers and largely bedridden after 5+ years. Following an extended…
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What treatments HAVE ACTUALLY helped?
Eliminated grains and complex starches and added probiotic foods. From a worst point of being bedbound 20 hours a day, she says she now manages 12-hour days that include 1-2 hours of brisk walking, and that her pain resolved and anemia improved. Fatigue…
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What treatments HAVE ACTUALLY helped?
Took a mitochondrial-support stack of CoQ10, B3, magnesium and zinc after being, in her words, "totally bed ridden with super low ATP." Reports being "much better than I was," a substantial gain, but says she is "still mostly house bound" and was actively…
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Who Here Takes Any Kind of Mushroom?
Cordyceps was taken by jeffrez for about a year without any problems, by his own account on a forum thread about medicinal mushroom use. He reported never having issues with it, but did not describe any specific energy or symptom benefit either, only that it…
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What worked for me
After 8+ years on Humira, Enbrel, Methotrexate and cortisol shots, switched to desiccated thyroid hormone (Armour, later Erfa) starting in 2003. Says her pain "disappeared," fatigue became "much much better," previous bone density decline reversed, and food…
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Relief from Pain & Fatigue!!
Switched from 2.5 years of Cymbalta to Lyrica, titrating one up while tapering the other down, and started strain counterstrain therapy (3 of a planned ~6 sessions done). Describes "experiencing a turnaround" with pain and fatigue, substantial enough to help…
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SAM-e, Acyclovir, Atlas Profilax = Improvement from 3 to 4
After decades with ME/CFS and years stuck at "Activity Level 2-3," combined daily SAM-e (200mg) with very sporadic low-dose Acyclovir (roughly one dose every one to two weeks) plus an Atlas Profilax cervical-alignment procedure done about two years earlier.…
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What worked for me
Went 100% dairy-free and grain-free and says she was "completely well and pain free from FM" for three months (July-Sept 2005), but the remission faded and "I've only ever been able to last 3 months" on it. She hedges heavily, noting "that could have been…
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IVIG and Xiflaxan: A Dr. Peterson Patient Improves
After a long history of recurrent SIBO culminating in septic shock and 15-20 diarrheal episodes a day, he took Xifaxan 200mg four times daily for 15 days alongside Florastor probiotic. Relief was "dramatic" within about 10 days, leaving no abdominal pain and…
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? for those who feel "totally healthy" out of the blue
Was prescribed Xyrem as a sleep aid and had a severe adverse reaction -- a manic episode with hallucinations -- but says that once it resolved he "felt like a different person," with pain gone, energy up, and headaches eliminated. The improvement lasted only…
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Supplements that have helped me
Takes vitamin D ("makes a real difference for me"), B-vitamins, whey protein for GI problems, omega-3 for joint/muscle pain, and topical Traumeel/Lymphagen for chronically swollen throat and ear glands, alongside juicing and a grains/sugar-reduced diet.…
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Recovery from CFS: 50 Personal Stories
This page is a description of the book "Recovery from CFS: 50 Personal Stories," edited by Alexandra Barton, for which Jacob Teitelbaum — Medical Director of the Fibromyalgia and Fatigue Centers and himself a former CFS patient as a medical student — wrote…
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Vagus Nerve Stimulation Turns Jean's Life Around
Used vagus nerve stimulation (VNS), referencing the book Reborn: Reversing Fibromyalgia with Vagus Nerve Stimulation, for fibromyalgia and/or ME/CFS. Specific device model, settings and illness duration are not given in the excerpt. Had been bedbound…
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Arginine + Vitamin C for Long Covid
L-arginine at 1.5g twice daily, modeled on a published arginine-plus-vitamin-C protocol, was started by a long COVID patient who had been unable to work as a programmer since about four months after a March 2022 infection, with severe headaches, chest pain,…
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Ivermectin Lifts a Woman to the Summit
Ivermectin as a 1% topical cream, applied in increasing amounts up to three times daily, was used after about four years of severe long COVID following a 2022 Delta infection. Baseline symptoms included crushing fatigue, exertional breathlessness, chest pain…
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Verapamil, a calcium-channel blocker, eases my symptoms
Verapamil, a non-dihydropyridine calcium channel blocker, has been taken at 360-480mg per day for roughly 30 years, originally prescribed for cluster headaches rather than ME/CFS. Illness duration before this long-term use is not stated. Despite the high…
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It Made My Dreams Feel Possible Again: How Oxaloacetate CFS Helped Nate Reclaim His Future
Oxaloacetate supplement, dose unspecified, taken for about a year and a half at the time of writing. Nate, an audio engineer, had been ill for over a decade, with minor activity like walking his dog or washing dishes able to trigger multi-week crashes of…
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Heat vs. Fatigue: Hyperthermia as a Possible Treatment Option for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2025, Hochecker
Far-infrared sauna sessions, used some years before this post, with no stated dose or length of the course. She had ME/CFS for an unstated length of time and severity was not given, though she says she could not attempt the same sessions today. She reported…
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Sauna Therapy for Chronic Fatigue Syndrome (ME/CFS) & Fibromyalgia
Finnish sauna sessions, 3 to 4 times per week for about 20 minutes each. The author, a nutritionist who has had ME/CFS and fibromyalgia herself, gives no timeframe for how long she was ill before starting this routine or how severe it was. She reports the…
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Ear seeds: what are they and why have they been controversially linked to ME without scientific evidence?
Ear seeds were used as one part of a combined self-treatment approach, alongside diet changes, acupuncture and Chinese herbs, over about a year. Before starting she had gone from working full-time in a busy advertising job to being mostly housebound and…
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Why Cold Exposure May Help with ME/CFS, Fibromyalgia and Long COVID
Cold water immersion, roughly 20-minute sessions at about 60F/14C in a hydro tank, is used by a commenter with low-end moderate ME/CFS who spends most of her time in bed; illness duration is not stated. She says the primary benefit is emotional, describing…
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Why Cold Exposure May Help with ME/CFS, Fibromyalgia and Long COVID
Cold exposure, via dips in a cold creek and use of an Ice Beanie, is used regularly by a commenter functioning at roughly 30% (low-to-moderate ME/CFS); illness duration is not stated. They describe the cold sessions as seeming to reset something and…
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Opioids and Brain Fog
Codeine, 30mg combined with paracetamol, taken once daily, is described by a forum poster as freeing them from distressing brain symptoms and improving cognition on days they take it. Illness duration and severity beforehand are not stated. The benefit is…
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M.E. CFS & Fibromyalgia Recovery Success Stories - The Chrysalis Effect
The Chrysalis Effect recovery programme, followed under a practitioner's guidance, is credited by a primary school teacher who had chronic fatigue; her illness duration and severity beforehand are not stated. Following the practitioner's advice consistently…
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M.E. CFS & Fibromyalgia Recovery Success Stories - The Chrysalis Effect
The Chrysalis Effect recovery programme, combined with diet changes and meditation, is credited by a woman who was severely ill and housebound and in what she calls a dark psychological place before joining in early 2013. Illness duration beforehand is not…
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M.E. CFS & Fibromyalgia Recovery Success Stories - The Chrysalis Effect
The Chrysalis Effect recovery programme, an online supported-recovery course, is credited by an IT project manager who was at risk of becoming bed-bound, jobless and divorced before starting it. Illness duration is not stated. She reports reaching what she…
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making a PRObiotic chart -- Bifido spp only!!
Bifidobacterium infantis 35624: taken as the Align probiotic brand, starting at one capsule daily for two weeks and then increasing to two capsules daily. She has ME/CFS with symptoms including joint pain, tinnitus and brain fog. The first two weeks produced…
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Reducing the Sting of Chronic Fatigue Syndrome and Fibromyalgia with Bee Venom
Bee venom therapy: six live bee stings applied every other day for six months to relieve chronic fatigue syndrome symptoms. She had persistent fatigue and muscle aches that had not responded to prior treatments before starting. The stings did not cure her…
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AcuPips - Original Ear Seed Specialists
AcuPips ear seeds (self-administered acupressure), duration of use and placement not specified. She had post-COVID headaches, with no other long-COVID symptoms or overall illness duration and severity stated. She reports relief within about two weeks of use.…
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List of ME/CFS Recovery and Improvement Stories
Linda is listed reaching full recovery on low-dose oral interferon alpha (250IU 4x/day), with brain fog improving within weeks and pain clearing within about 2 months.
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Gcmaf-reactions and side effects
On MAF (GcMAF) injections, developed a concerning sensation in the kidney area (bloodwork came back normal) plus "bad breast pain and stinging" radiating to the underarm and groin. She asked other patients whether this was a normal reaction; no improvement…
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Gcmaf-reactions and side effects
Started GcMAF at 1/4 dose IV, then switched to subcutaneous; developed intense lower-back burning/pain about 5-6 days after the first injection, plus sore throat and new light sensitivity. Stopped after 7 injections when insomnia developed, and slept…
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More info on GCMAF...
Used Japanese (Saisei Mirai) colostrum-based GcMAF for years - six months at a high dose then a maintenance dose - because the original English GcMAF was no longer available. Reports improvements in gait and joint pain beginning around 4 months on the…
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Fasting - full water only variety - has anyone here tried it?
GreenEdge, posting as a recovered ME/CFS patient, combined repeated extended water fasts with a very strict Lion Diet (carnivore). They describe three distinct recoveries, crediting two of them specifically to periods of fasting 5 or more days, during which…
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Katie's Healing Journey from ME/CFS and Fibromyalgia
Credits brain retraining. Katie had ME/CFS and is described as fully recovered. Different Katie from the Boston story (diff URL).
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How Lauren Reclaimed her Life from ME/CFS and Fibro
Credits brain retraining. Lauren had ME/CFS and is described as fully recovered. Comorbid fibromyalgia.
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9 inspiring ME/CFS recovery stories of people over 50 (updated)
Credits brain retraining. Claudia was ill 33 years with ME/CFS and is described as fully recovered. Comorbid fibromyalgia.
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Dr. Eleanor Stein's healing from ME/CFS and Fibromyalgia
Credits brain retraining. Eleanor was ill 30 years with ME/CFS and is described as fully recovered. Canadian psychiatrist; duration via cross-referenced roundup post.
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Christine's full recovery from ME/CFS & Fibro
Credits brain retraining. Christine had ME/CFS and is described as fully recovered. Comorbid fibromyalgia; may overlap with roundup Christine.
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Danny reclaimed his health from CFS and chronic pain (a TMS recovery story)
Credits TMS and mind body. Danny had ME/CFS and is described as fully recovered. Explicitly framed as a TMS recovery story.
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Anna de Vries' Story
She recovered from post-viral ME/CFS using Jan Rothney's Reset to Thrive programme, introduced via Rothney's book Breaking Free, combined with trauma therapy, somatic work including Trauma Releasing Exercises (TRE) and haptotherapy, and brain-retraining and…
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Primal Trust testimonials: Marla Hall
Credits brain retraining. Marla had ME/CFS and reports a substantial improvement. CFS and fibromyalgia; avoided planned colon surgery.
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Long Covid, CFS and Fibromyalgia Diagnosis - How Brent Is Recovering
Credits brain retraining and pacing. Brent was ill 2.5y with severe long COVID and reports a substantial improvement. Cut from 20-plus medications and supplements down to 8.
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Paul: CFS, Fibromyalgia and Multiple Chemical Sensitivities
Credits brain retraining. Paul had ME/CFS and reports a substantial improvement. Triple diagnosis, title-only entry.
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Maya's Story
She recovered through functional medicine (addressing mold exposure, liver toxicity and nutrient depletion), psychotherapy, physiotherapy, and a daily body-scan meditation practiced three times a day, later training as a Functional Medicine Certified Health…
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Alice's Story
She recovered from ME/CFS using The MindBody Reconnect, a mind-body nervous-system-regulation method, working with practitioner Clare Caldwell, alongside acupuncture and self-directed calming practices such as time in nature. Alice Bowley was ill for about 4…
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20-Year Battle with CFS: A Journey to Recovery through Mindset and Belief Work
She credits the Medical Medium diet-based protocol, Emotional Freedom Technique (EFT) tapping with affirmations for over an hour daily (later training as an EFT practitioner herself), functional medicine diagnosis, mindset and belief work, self-compassion…
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Paul Garner's Story
He credits a mind-body approach, working with an unnamed practitioner who had himself recovered from ME/CFS, using relaxation techniques and reinterpreting his symptoms as a stress response, alongside a gradual return to exercise from gentle activity up to…
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Payton Foeller's Story
She credits low-dose naltrexone (LDN, though she says it "helped somewhat, not a gamechanger"), talk therapy, brainspotting therapy, and mind-body work drawing on Dr. John Sarno's TMS framework, polyvagal theory, trauma-informed yoga and mindfulness,…
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Emotional Healing Key for Fibromyalgia Patient
Credits trauma and somatic work. An unnamed patient had ME/CFS and reports a substantial improvement. Fibromyalgia-only patient.
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A Fibromyalgia Patient Finds Help With Antivirals
Credits antivirals. An unnamed patient had ME/CFS and reports a partial improvement. Fibromyalgia-only patient.
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Peter's Fibromyalgia, ME/CFS and MCS Recovery Success
Credits brain retraining. Peter had ME/CFS and is described as fully recovered. Triple diagnosis; page returned server error.
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Shannon Shares How to Heal from CFS, Fibromyalgia and POTS
Credits brain retraining. Shannon had ME/CFS and is described as fully recovered. Triple diagnosis; page returned server error.
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Malin Recovers from CFS and Fibromyalgia with Recovery Program
Credits brain retraining. Malin had ME/CFS and is described as fully recovered. Likely Scandinavian; page returned server error.
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Gaurav's Story of How to Get Over Fibromyalgia
Credits brain retraining. Gaurav had ME/CFS and is described as fully recovered. One of few male South-Asian names in the set.
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Camille Shares Recovery from ME/CFS and Fibromyalgia
Credits brain retraining. Camille had ME/CFS and is described as fully recovered. Page returned server error on repeated fetch attempts.
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Unusually Fast Recovery from Long-Term CFS and Fibromyalgia
Credits brain retraining. An unnamed patient had ME/CFS and is described as fully recovered. Title emphasises speed; page fetch errored.
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Russ' Recovery - Fibromyalgia, CFS, ANS REWIRE
Credits brain retraining. Russ had ME/CFS and is described as fully recovered. Page returned server error on repeated fetch attempts.
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Lynn Shares Her Thoughts on How to Recover from Fibromyalgia
Credits CBT or psychological work, diet, graded exercise and meditation. Lynn had severe ME/CFS and is described as fully recovered. Hit rock bottom first; 3-5hr daily meditation.
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Emotional Healing to Slide into Full Fibromyalgia Recovery
Credits diet, trauma and somatic work and energy healing. Beth was ill 10y with severe ME/CFS and is described as fully recovered. Bach Flower Remedies, shamanic healing, emotional work.
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The Lightning Process - His Last-Ditch Effort for M.E.
Simon's recovery centered on the Lightning Process, alongside earlier CBT and a general multivitamin, mineral and vitamin C regimen; beyond noting it teaches relaxation techniques and is more than self-hypnosis, the page gives no detail on the Lightning…
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How She Recovered from Long-Term Fibromyalgia/ME-CFS After 20 Years
Credits candida parasite and holistic. Abigail was ill 20y with severe ME/CFS and reports a partial improvement. Self-rated 85% recovered; candida/parasite treatment.
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There Is No Cure for Fibromyalgia? Interview on Recovery from MCS/CFS/FMS
Evelyn's recovery involved meditation, vitamins, saunas, daily walks, and weekly massage with exfoliation for "toxin" removal, plus diet changes, though the page does not give specific supplement names, doses, or sauna type. She had suffered for years with…