Miruvor
ME/CFS RelapsedBenefit faded or relapsed

My Rituximab experience with RA and ME

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Published
Jun 2014

Summary

Completed a full course of 6 Rituximab infusions and got "only a few weeks of CFS/ME symptom remission" before it faded. In a later post about the same OMI-administered treatment she called it "not worth $40k," saying she has since done better with Dr. Montoya's Valcyte plus an anti-inflammatory combination, though that took about a year to show benefit. She does not regret trying Rituximab but found it not cost-effective for her.

Read it in their words

forums.phoenixrising.me

What they credit

Credits Antivirals, Biologics & antibodies, Rituximab, Valcyte / valganciclovir.

Similar stories

  • Björn recovered from severe ME with antivirals (valganciclovir, ritonavir and isentress)

    Substantial ME/CFS forums.phoenixrising.me 2021

    Ran a long multi-drug protocol: valganciclovir at 450mg twice daily for a year then a lower maintenance dose for another 8 months, repeated after HHV-6 reactivated again; famciclovir 500mg three times daily for 6 months; gammaglobulin infusions every three…

  • 3-month IVIG experience

    Near-full ME/CFS Very severeIll 4 years forums.phoenixrising.me Jul 2020

    Did two years of IVIG (July 2016 to July 2018) at 82g per infusion cycle, run at a very slow infusion speed of 40 ("but it was the fastest that I could tolerate"), for autoimmunity, MCAS and dysautonomia that included years of muscle weakness and breathing…

  • The Temporary Recovery Stories (Judith)

    Relapsed ME/CFS Ill 30 yearsEffect faded healthrising.org Jan 2020

    Commenter Judith described multiple remissions and relapses since childhood, including a Rituximab course that caused complications. She now manages with AHCC, magnesium, Plaquenil and colchicine, and describes the illness as progressive, each relapse…

  • Rituxan Number Three, Some Improvement, Still Early to Tell

    Partial ME/CFS Severe forums.phoenixrising.me Mar 2019

    Previously bed- and wheelchair-bound with complex neuroimmune disease, EDS, PID, NK-cell deficiency and MCAS, she had two Rituximab infusions in November 2018 and a third by March 2019. By the 3-month mark she reported clearly improved muscle strength and…