Vyvgart brought us back to life (Judith)
- Condition
- Long COVID
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill for
- Not stated
- Published
- Oct 2025
Summary
Judith was on Vyvgart (efgartigimod) for five months during the trial's open-label phase, though no specific dose is given. Previously largely housebound, she improved enough to return to work, travel to a friend's wedding, and no longer meet clinical criteria for POTS on tilt-table testing. After the trial ended, her health became worse than before she started, and she has been unable to hold a consistent job, has lost her independence and income, and had to move back in with her parents.
What they credit
Credits POTS medication, Biologics & antibodies, Efgartigimod / Vyvgart.
Similar stories
-
Vyvgart brought us back to life (Clare)
Clare, a nurse previously unable to work because of Long COVID, received Vyvgart (efgartigimod) in the trial, with no specific dose stated, and it significantly improved her tachycardia and lessened her post-exertional malaise. After the trial ended, her…
-
Vyvgart brought us back to life (Michaelene)
Michaelene was on Vyvgart (efgartigimod) for five months in the trial's open-label phase and had improved enough that she no longer met criteria for POTS when the trial was abruptly canceled. She had been severely disabled before treatment. After the trial…
-
Vyvgart brought us back to life (Ellie)
Ellie also received Vyvgart (efgartigimod) in the trial, with no specific dose described. A geologist previously limited by severe Long COVID symptoms, she improved enough on the drug to resume field work without fearing she would pass out. The article does…
-
Vyvgart brought us back to life (Mia)
Mia Delli Gatti took part in the same Vyvgart (efgartigimod) trial, though the article gives no specific dose or schedule for her. As a college student, Long COVID had previously left her unable to maintain a full course load, but on the drug she was able to…