How it went
Did it last?
- 8 of 8 said the benefit wore off: the 8 who relapsed.
- No one said they needed to keep it up to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 0 | 0% |
| Near-full | 0 | 0% |
| Substantial | 0 | 0% |
| Partial | 0 | 0% |
| Relapsed | 8 | 100% |
| No benefit | 0 | 0% |
Only 8 accounts. Treat these percentages as anecdotes, not rates.
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Moderate | 1 | 0% | |
| Severe | 4 | 0% | |
| Very severe | 3 | 0% |
0 accounts don’t say how ill the person was.
Who published these accounts
Right-hand number: share describing a full or near-full recovery. Pages that sell something, and advocacy sites, tend to publish only the successes.
All 8 accounts
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Vyvgart brought us back to life (Clare)
Clare, a nurse previously unable to work because of Long COVID, received Vyvgart (efgartigimod) in the trial, with no specific dose stated, and it significantly improved her tachycardia and lessened her post-exertional malaise. After the trial ended, her…
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Vyvgart brought us back to life (Michaelene)
Michaelene was on Vyvgart (efgartigimod) for five months in the trial's open-label phase and had improved enough that she no longer met criteria for POTS when the trial was abruptly canceled. She had been severely disabled before treatment. After the trial…
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Vyvgart brought us back to life (Ellie)
Ellie also received Vyvgart (efgartigimod) in the trial, with no specific dose described. A geologist previously limited by severe Long COVID symptoms, she improved enough on the drug to resume field work without fearing she would pass out. The article does…
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Vyvgart brought us back to life (Mia)
Mia Delli Gatti took part in the same Vyvgart (efgartigimod) trial, though the article gives no specific dose or schedule for her. As a college student, Long COVID had previously left her unable to maintain a full course load, but on the drug she was able to…
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Vyvgart brought us back to life (Nicole)
Nicole Barrick, a nurse who contracted COVID while working on a COVID unit, received weekly Vyvgart (efgartigimod) infusions, and after six months in the trial's open-label phase she no longer met the clinical criteria for POTS on tilt-table testing, with…
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Vyvgart brought us back to life (Judith)
Judith was on Vyvgart (efgartigimod) for five months during the trial's open-label phase, though no specific dose is given. Previously largely housebound, she improved enough to return to work, travel to a friend's wedding, and no longer meet clinical…
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Vyvgart brought us back to life (Sarah)
Sarah received Vyvgart (efgartigimod) infusions in the same Long COVID trial, though the article does not specify her exact dose or schedule beyond trial participation. She had been bedbound with Long COVID for months before treatment, and on the drug she…
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Vyvgart brought us back to life, but the Long COVID trial was canceled
Roman White received weekly infusions of Vyvgart (efgartigimod) during the open-label phase of a Long COVID trial; no specific dose is given beyond the weekly infusion schedule. Previously a firefighter left unable to work, he improved dramatically on the…