Miruvor
Long COVID Severe → substantialIll for 4 yearsNeeds ongoing treatment

Recovery from Long COVID Shouldn't be This Exhausting

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill for
4 years
Published
Mar 2025

Summary

In this post, Zeest Khan describes using a beta-agonist or steroid inhaler along with unspecified pills, injections for allergic triggers, and steroids — no drug names, doses, or durations are given. In 2021 she was bedbound, unable to stand without nearly passing out. By March 2025 she could stay upright most of the day, drive short distances, and record a podcast. She is explicit that these gains are fragile and maintenance-dependent, requiring constant vigilance and strict lifestyle modifications around sleep, nutrition, and trigger avoidance, and that "every deviation" from her routine makes the progress harder to sustain.

Read it in their words

longcovidmd.substack.com

What they credit

Credits Low-dose naltrexone, POTS medication, Antihistamines & MCAS, Diet, Other prescription drugs, Pacing, Pacing and the energy envelope.

Symptoms mentioned

Symptoms: Mast cell (MCAS) & allergies.

Similar stories

  • Australian Women's Weekly: For six years, Lily couldn't leave her bed

    Partial ME/CFS SevereIll 6 years emerge.org.au Sep 2026

    Credits pacing and family support. Lily was ill 6y with severe ME/CFS and reports a partial improvement. Bedbound at 16; now works part-time, still much reduced.

  • A Day in The Life with Long COVID

    Partial Long COVID SevereIll 3 years illnessandinsight.substack.com Jul 2026

    Credits pacing and environment. Sage was ill 3y with severe long COVID and reports a partial improvement. Improved versus 2024 baseline but still a wheelchair user.

  • On the road to recovery from Long Covid

    Partial Long COVID SevereIll 1.83 yearsEffect faded thewellnessaesthetic.substack.com Apr 2026

    Lauren combined nicotine patches at one-eighth of a patch daily through December with a broad daily supplement regimen, including CoQ10 100mg, Ionic Fulvic Acid 1ml three times a day, Hawthorn Leaves 5ml, and products like Adrenal Complex, Adreno Active,…

  • 18/6 intermittent fasting has benefitted me greatly (Mary)

    Partial ME/CFS Ill 20 years forums.phoenixrising.me Mar 2026

    After about two months on a 7am to 5pm eating window, this poster reports a noticeably increased energy envelope and stamina, and that her white blood cell count came back normal for the first time in twenty years. She frames it as meaningful but ongoing…