Miruvor
ME/CFS Substantial

mTor Inhibitor Rapamune Helps 5 ME/CFS Patients in Dallas

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Published
Apr 2017

Summary

Started Rapamune (rapamycin) roughly a month before the quoted comment, changing nothing else in her regimen, and reports "SIGNIFICANT improvement in both physical and cognitive functionality." Says her oncologist has four other ME/CFS patients on Rapamune with "the same improvement." Explicitly hedges on durability: "I don't know if it will last."

Read it in their words

forums.phoenixrising.me

What they credit

Credits Other prescription drugs, Rapamycin / sirolimus.

Similar stories

  • Clinical trials are testing rapamycin for Long COVID and ME (Kelly)

    Partial Long COVID SevereEffect faded thesicktimes.org Jul 2025

    Kelly, a 40-year-old in New York City who was sometimes bed-bound with Long COVID and ME, took rapamycin obtained through AgelessRx starting in November 2024. Within about a week she reported some improvement in her symptoms, though she described the overall…

  • Clinical trials are testing rapamycin for Long COVID and ME (Wade)

    Substantial Long COVID Very severe thesicktimes.org Jul 2025

    Wade, a 32-year-old in Nashville who was nearly bedbound with Long COVID, took rapamycin obtained through Healthspan, starting his first dose in March 2025. After an initial negative reaction he reported feeling great in a way he had not for months, able to…

  • Treatments. Yes, they do exist.

    Partial ME/CFS encephalogirl.substack.com Jul 2025

    In this follow-up post, Encephalogirl (Michelle) lists an expanded regimen: low-dose naltrexone, low-dose Abilify, guanfacine, about nine months of tenofovir as part of a planned minimum one-year antiviral course, six weeks of low-dose rapamycin at 1mg once…

  • Martin's Paradoxical Temporary ME/CFS Remission Story

    Relapsed ME/CFS Very severeIll 10 yearsEffect faded healthrising.org Jul 2024

    Martin became ill after EBV reactivation, Lyme disease and food poisoning, and was bedbound for the last three of his ten years of illness with severe post-exertional malaise. Lyrica, benzodiazepines, tianeptine, quetiapine, rapamycin and methylprednisolone…