Martin's Paradoxical Temporary ME/CFS Remission Story
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill for
- 10 years
- Published
- Jul 2024
Summary
Martin became ill after EBV reactivation, Lyme disease and food poisoning, and was bedbound for the last three of his ten years of illness with severe post-exertional malaise. Lyrica, benzodiazepines, tianeptine, quetiapine, rapamycin and methylprednisolone all failed and instead left him with months of severe insomnia. At his lowest point he unexpectedly felt a surge of energy and entered remission, which lasted about three months before his symptoms returned.
What they credit
Credits Antibiotics, Other prescription drugs, Trauma & somatic work, Benzodiazepines and Klonopin, Corticosteroid pulses, Lyme / co-infection protocols, Rapamycin / sirolimus, SSRIs and antidepressants.
Symptoms mentioned
Symptoms: Post-exertional malaise, Sleep problems.
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