Miruvor
ME/CFS Severe → substantialIll for 15 yearsNeeds ongoing treatment

Fearing Death Was at Hand, Fred Finds an Answer

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
15 years
Published
Aug 2016

Summary

Fred, a university professor, became severely ill with an acute flu-like onset in 1991 and was homebound by 2006. Valcyte under Dr Lerner's protocol brought him to about 75% functioning within six months, letting him socialise, travel and do home maintenance. He describes his life as near normal but still cannot exercise vigorously.

Read it in their words

healthrising.org

What they credit

Credits Antivirals, PDE5 inhibitors (sildenafil, tadalafil), Valcyte / valganciclovir.

Symptoms mentioned

Symptoms: Flu-like symptoms.

Similar stories

  • Has anyone achieved remission or recovery from treatment by any doctor?

    Near-full ME/CFS forums.phoenixrising.me Mar 2015

    SOC's daughter took two years of combined antivirals, Valcyte (valganciclovir) and Valtrex (valacyclovir), prescribed by an ME/CFS specialist. Beforehand she had been declining, sitting around activity level 4-5; on the antivirals she rose to about level 8-9…

  • Jordan - Long Covid Recovery Story

    Partial Long COVID ModerateIll 1.83 years cfsrecovery.com Mar 2026

    Credits brain retraining. Jordan was ill 22mo with moderate long COVID and reports a partial improvement. Resigned job from fatigue; regained pet-sitting and socialising.

  • Melody's ME/CFS, Fibromyalgia and Long COVID Recovery Story

    Near-full ME/CFS SevereIll 3 years healthrising.org Jun 2024

    Melody was infected early in the pandemic, hospitalised with double pneumonia, then bedbound for six months and homebound on supplemental oxygen for two and a half years despite thirteen prescription drugs and multiple specialists. She credits a combination…

  • the best treatments I've found

    Substantial ME/CFS forums.phoenixrising.me Aug 2023

    Shanti1 credits this vasodilator/oxygen combination with improving brain circulation and says episodes of feeling oxygen-starved, once frequent, are now rare, describing sustained improvement "over time as underlying conditions addressed." No specific doses…