Miruvor
ME/CFS Very severe → substantialNeeds ongoing treatment

My antiretroviral Regime for Antiretroviral Treatment of Myalgic Encephalomyelitis

Condition
ME/CFS
At worst
Very severe (bedbound, unable to do basic care)
Ill for
Not stated
Published
Jun 2018

Summary

Reishi mushroom (Ganoderma lucidum) 500mg daily was used as a protease-inhibitor substitute within a broader antiretroviral regimen that also included tenofovir, started at a fraction of a tablet and raised over seven months to full dose, plus cistus incanus 2,100mg daily. The patient, the author's daughter, was severely ill with ME (Bell Scale 0, essentially bedbound), and her total illness duration before treatment is not stated. After reaching full-dose therapy for three to four months the family reports the treatment was successful and describes her as returning to life, though no specific percentage or functional-capacity figure is given. Improvement is described as wave-like rather than linear. The antiretroviral regimen, including the reishi component, is described as permanent maintenance medication, since stopping it is said to risk rapid symptom return.

Read it in their words

meversuscfs.blogspot.com

What they credit

Credits AHCC and medicinal mushrooms (reishi, shiitake, maitake), Cistus incanus and antimicrobial botanicals, Tenofovir / antiretrovirals.

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