List of ME/CFS recovery and improvement stories
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Published
- Dec 2023
Summary
Treated with Kampo herbal medicine after developing ME/CFS following a SARS-CoV-2 infection, with no formula, dose or duration recorded. The patient is described as having recovered after treatment, with nothing said about how long the recovery held. Readers pushing back noted this is a single-patient report and that the patient did not quite satisfy the Canadian clinical case definition, because the sleep problems had already resolved. The detail here comes from the index entry, which quotes the case report's abstract, rather than from a fetched account - the underlying article could not be retrieved.
Similar stories
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Treatments. Yes, they do exist.
In this follow-up post, Encephalogirl (Michelle) lists an expanded regimen: low-dose naltrexone, low-dose Abilify, guanfacine, about nine months of tenofovir as part of a planned minimum one-year antiviral course, six weeks of low-dose rapamycin at 1mg once…
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Severe ME/CFS 2013, Remission 2017, Relapse, Remission Dec 2022
Treating what she frames as underlying candida/parasite causes with a long, MD/PhD-supervised rotation of antifungals, antiparasitics and herbs, GlacierBloom reached remission by December 2022 after being severe/bedridden from 2013-2017 and again after a…
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Radical Rest and Beyond
The author of Encephalogirl (who signs as Michelle) treats her ME/CFS-related dysautonomia and POTS with guanfacine and low-dose Abilify (titrated from 0.5mg down to 0.25mg after migraines, then back up to 0.5mg), an increased dose of low-dose naltrexone, a…
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My experiences with apoptosis treatment for HHV-6b, EBV subgroup ME/CFS
Built a long-running self-treatment stack over 15 years - artemisinin, galangal and magnolia bark to unblock apoptosis, a sublingual terpene mix (pinene, beta-caryophyllene, limonene) dosed 20-60 drops, curcumin, and doxycycline for the bacterial component -…