List of ME/CFS Recovery and Improvement Stories
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Published
- Undated
Summary
LaurelW is listed moving from severe to moderate after roughly 7 years on Ampligen, with gains described as maintained even after the infusions were later stopped.
Similar stories
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List of ME/CFS Recovery and Improvement Stories
Kelvin Lord is listed moving from severe to mild after a year of Ampligen infusions, per the compiled list.
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A Town for People with Chronic Fatigue Syndrome (The New Yorker)
LaurelW was on Ampligen for a combined 7 years across two treatment periods and reported the drug "helped me so much." After being dropped from the compassionate-care program in 2016 when it became unaffordable, she maintained her gains for 2.5 years off the…
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A Town for People with Chronic Fatigue Syndrome (New Yorker) discussion
LaurelW used Ampligen intravenously over a total of seven years across two separate treatment periods, though the thread gives no specific dose or infusion frequency; she was taken off it in January 2016 when the manufacturer discontinued the…
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Ampligen Does the Trick for Anita
Took Ampligen (rintatolimod, AMP-511) for 19 years as part of an FDA clinical trial for severe ME/CFS. Says beyond a shadow of a doubt that the medicine works for her, citing laboratory proof and an exercise record as evidence, and calls for wider access to…