How it went
Did it last?
- 1 of 5 said the benefit wore off: the one who relapsed.
- 1 of 5 needed to keep doing it to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 0 | 0% |
| Near-full | 0 | 0% |
| Substantial | 2 | 40% |
| Partial | 2 | 40% |
| Relapsed | 1 | 20% |
| No benefit | 0 | 0% |
Only 5 accounts. Treat these percentages as anecdotes, not rates.
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Moderate | 1 | 0% | |
| Severe | 1 | 0% |
3 accounts don’t say how ill the person was.
Who published these accounts
Right-hand number: share describing a full or near-full recovery. Pages that sell something, and advocacy sites, tend to publish only the successes.
All 5 accounts
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Treatments. Yes, they do exist.
In this follow-up post, Encephalogirl (Michelle) lists an expanded regimen: low-dose naltrexone, low-dose Abilify, guanfacine, about nine months of tenofovir as part of a planned minimum one-year antiviral course, six weeks of low-dose rapamycin at 1mg once…
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List of ME/CFS Recovery and Improvement Stories (page 14 discussion)
ixikd2025 credited a broad, kitchen-sink regimen spanning stimulant, mitochondrial, antihistamine/MCAS, and lifestyle interventions (meditation, running, acupuncture) for significant improvement. With so many concurrent changes, no single component could be…
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Several long-COVID patients report improvements from antihistamines (Rich D)
Tried Singulair (montelukast), which produced significant, though not huge, improvement within about a week, while Pepcid (famotidine) and Zyrtec (cetirizine) had no effect for them. They suggest antihistamines are most useful for long-COVID patients who…
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Amber's Long MCAS, POTS, MCS, ME/CFS Recovery Story
Amber had digestive and allergy problems since childhood that became severe MCAS, POTS, MCS and ME/CFS after a marathon at thirty and a bad flu-shot reaction at thirty-one, leaving her homebound and fainting daily despite seeing more than a hundred doctors.…
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The Temporary Recovery Stories (Michael)
Commenter Michael credited the allergy drug Singulair, taken for post-nasal drip, with months of improvement that let him sleep, exercise and do cognitive training. No further detail on illness duration or on what happened after he stopped is given.