Amber's Long MCAS, POTS, MCS, ME/CFS Recovery Story
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 30 years
- Published
- Jun 2023
Summary
Amber had digestive and allergy problems since childhood that became severe MCAS, POTS, MCS and ME/CFS after a marathon at thirty and a bad flu-shot reaction at thirty-one, leaving her homebound and fainting daily despite seeing more than a hundred doctors. Years of functional-medicine work stabilised her on high-dose antihistamines, a leukotriene antagonist, ketotifen, low-dose naltrexone, cholestyramine and thyroid medication plus the CranioBiotic Technique. She now exercises and travels internationally, though environmental sensitivities and some chronic symptoms remain. She has since written a book, founded a telehealth clinic and become a CranioBiotic practitioner.
Read it in their words
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What they credit
Credits Low-dose naltrexone, POTS medication, Antihistamines & MCAS, Diet, Hormones & thyroid, Mould avoidance, Supplements, Elimination and ketogenic diets, Ketotifen / cromolyn, Low-dose naltrexone, Mold avoidance / CIRS protocol, Montelukast / Singulair, Thyroid (T3, T4, NDT).
Symptoms mentioned
Symptoms: Gut problems, Mast cell (MCAS) & allergies, POTS & dysautonomia.
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