In bed 20+ hours a day with long COVID, improved then relapsed after reinfection
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2.5 years
- Last post
- Aug 2022
In their words
- Condition: Long COVID
I began experiencing LC about 4 months later
In context ↗ - At worst: Severe
Most days I stay in bed or seated for 20+ hrs per day
In context ↗ - Now: Relapsed
I got reinfected in March of 2022 and it reset me significantly but I feel better now
In context ↗ - Began after: COVID
I was originally infected in Dec of 2019 but I believe I began experiencing LC about 4 months later
Summary
They dated their long COVID to about April 2020, four months after a December 2019 infection, and in August 2022 were still spending 20+ hours a day in bed or seated most days. By late 2021 they were back at the gym more than five days a week. A presumed COVID reinfection in March 2022 reset them; by August 2022 energy and inflammation had improved, but they were still mostly in bed and hoped to work out again.
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Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 20 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| April 2020 | long COVID began about four months after a December 2019 infectionI began experiencing LC about 4 months laterIn context ↗ | Not stated |
| late 2021 | back at the gym more than five days a week and jogging above 5mphin late 2021 I was hitting the gym more than 5 days a week and also jogging above 5mphIn context ↗ | Near normal |
| March 2022 | presumed COVID reinfection set them back with new symptomsI got reinfected in March of 2022 and it reset me significantlyIn context ↗ | Not stated |
| 2022-08-16 | energy and inflammation improved, but still in bed or seated 20+ hours a dayMost days I stay in bed or seated for 20+ hrs per day.In context ↗ | Severe |
| 2022-08-25 | feeling better after the reinfection, hopes to get back to working out eventuallybut I feel better now and am hopeful that I'll regain my health and be working out again eventuallyIn context ↗ | Severe |