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Long COVID: recovery stories and what people tried

Ask about long COVID

40,623
people with long COVID
6,553
recovered or near normal: 22% of the 30,225 who say how they are now
1,153
treatments with 5+ of them

How many people here recovered?

22%
recovered or near normal
6,553 of 30,225
49%
much or somewhat better
14,840 of 30,225
12%
relapsed
3,540 of 30,225
17%
no benefit
5,292 of 30,225
10,398
outcome unclear
not in the shares

Shares are out of the 30,225 people with a clear outcome; 10,398 more don’t say how they are.

Show as a table
Outcome describedPeopleShare
Recovered2,1577%
Near normal4,39615%
Much better4,28714%
Somewhat better10,55335%
Relapsed3,54012%
No benefit5,29217%
Outcome unclear10,398—

“Today I consider myself mostly recovered, perhaps 90%.”

D.C. Elton · Near normal · Ill 4 months

Recovery stories, in their own words

Recovered

2,157

Near normal

4,396

Each dot is about 50 people; a filled dot carries one person’s own words. Point at, tap or focus one to read it.
  1. Near normal I am about 90% recovered now after 2.5 months. I only have extremely mild PEM very seldomly that lasts between 24-48 hours. Maple 98395
  2. Near normal · Ill 2 years I’m 95% recovered, other than the tinnitus. Oak 83835
  3. Near normal · Ill 1 year I'm in remission and functioning at 95% my former self. Trail 48834
  4. Near normal I feel 100% mentally capable now at 4 years in and about 90% physically recovered now. Meadow 66733
  5. Recovered · Ill 18 months Now I'm 100% healthy again. I work full-time and go to the gym. Puffin 27365
  6. Recovered I recently recovered from longcovid after 5 years. I've been extremely productive since my body isn't dragging me down anymore. Ridge 51444
  7. Near normal · Ill 4 years I've got my energy levels back to about 90% and the leg pain/tingling is GONE. Summit 26160
  8. Near normal I am now almost 98% normal almost 2 years later. Fjord 53167
  9. Recovered I’ve been fully recovered for two years now! Petrel 21036
  10. Recovered I’m 61 and fully recovered. LC since 2022. Pelican 50619
  11. Recovered · Ill 13 months Since I feel like I am back at my baseline before covid, I feel like I am recovered. Creek 74345
  12. Near normal · Ill 2.5 years I am 90% back to myself I can work and function. Moon 81360
  13. Near normal · Ill 8 months I've mostly recovered, symptoms are mild and infrequent now. Dusk 25060
  14. Near normal I'm about 7 months out now and have recovered around 90%. Tide 91994
  15. Recovered I recovered after 2.5 years so it is possible. Creek 16927
  16. Recovered I workout 3-4x a week. I’m 100% healthy. Alder 30027
  17. Recovered · Ill 6 months I was very severe, completely bedbound unable to do anything independently and I am 100% recovered. Tulip 40392
  18. Near normal · Ill 3.5 years I’m basically almost back to my regular self and living a normal life now. Breeze 71182
  19. Recovered · Ill 1 month Completely symptom free :). I work full time, work out and travel. Falcon 59981
  20. Near normal · Ill 2 years I feel mostly better. Last symptoms are just Raynauds and acid reflux. Glacier 65900
  21. Near normal · Ill 16 months I am able to work full time, workout every single day and take care of my three kids. Moon 63595
  22. Recovered I had long covid/me/cfs for 2.5 years and now I’m fully recovered over 1.5 years now, totally normal, work everyday and workout everyday. Alpine 58122
  23. Near normal · Ill 2 months I have recovered from most symptoms accept I have lingering chest tightness. Cardinal 29271
  24. Near normal · Ill 13 months Hi, I've improved. Probably 90%. Recently, I climbed Mount Fuji. Stream 48435
  25. Near normal · Ill 3 years I have been working full time now, and can tolerate 30 mins of running on the elliptical. Birch 42357
  26. Near normal I’m nearing 11 months now and pretty much recovered. Creek 17895
  27. Recovered · Ill 3 years I had long COVID and I'm 100% better now. Canyon 43178
  28. Recovered · Ill 10 months I recovered completely from Long COVID, no pacing and no intolerances, no PEM. Marsh 11929
  29. Near normal · Ill 3 years I'm always 90 percent recovered cuz of this BS. Kestrel 25515
  30. Near normal Luckily for me I am mostly recovered after a year. Sparrow 32867
NowPeople
Recovered2,157
Near normal4,396

What did people with long COVID try, and how did they say it went?

Most tried first

How it went for the people with long COVID here who tried it and said so
  • TreatmentHow it wentRecoveredFadedGot worse
  • Pacing and the energy envelope5,689 tried it4,589 of the 5,689 who tried it here said how it went. 95% helped and 1% got worse.29% recovered or near normal: 940 of 3,257 who credit it here2% faded: 52 of 3,257 who credit it here1% got worse: 33 of 4,589 who said how it went here
  • COVID vaccination as treatment5,503 tried it3,957 of the 5,503 who tried it here said how it went. 39% helped and 44% got worse.39% recovered or near normal: 400 of 1,031 who credit it here23% faded: 238 of 1,031 who credit it here44% got worse: 1,754 of 3,957 who said how it went here
  • Everyday exercise and activity5,437 tried it4,535 of the 5,437 who tried it here said how it went. 57% helped and 39% got worse.44% recovered or near normal: 762 of 1,724 who credit it here3% faded: 57 of 1,724 who credit it here39% got worse: 1,772 of 4,535 who said how it went here
  • Meditation, yoga, breathwork5,080 tried it4,334 of the 5,080 who tried it here said how it went. 89% helped and 4% got worse.38% recovered or near normal: 680 of 1,786 who credit it here and said how they are now2% faded: 36 of 1,787 who credit it here4% got worse: 184 of 4,334 who said how it went here
  • Vitamin D and sun exposure4,963 tried it3,270 of the 4,963 who tried it here said how it went. 79% helped and 6% got worse.37% recovered or near normal: 647 of 1,734 who credit it here2% faded: 41 of 1,734 who credit it here6% got worse: 204 of 3,270 who said how it went here
  • Magnesium4,892 tried it3,738 of the 4,892 who tried it here said how it went. 81% helped and 7% got worse.39% recovered or near normal: 480 of 1,222 who credit it here2% faded: 20 of 1,222 who credit it here7% got worse: 254 of 3,738 who said how it went here
  • Salt, electrolytes and fluids4,020 tried it3,263 of the 4,020 who tried it here said how it went. 90% helped and 2% got worse.32% recovered or near normal: 401 of 1,262 who credit it here1% faded: 15 of 1,262 who credit it here2% got worse: 83 of 3,263 who said how it went here
  • Probiotics and fermented foods3,694 tried it2,862 of the 3,694 who tried it here said how it went. 74% helped and 13% got worse.37% recovered or near normal: 411 of 1,114 who credit it here3% faded: 38 of 1,114 who credit it here13% got worse: 379 of 2,862 who said how it went here
  • Low-dose naltrexone3,344 tried it2,952 of the 3,344 who tried it here said how it went. 69% helped and 17% got worse.18% recovered or near normal: 245 of 1,358 who credit it here7% faded: 100 of 1,358 who credit it here17% got worse: 489 of 2,952 who said how it went here
  • Time and spontaneous remission2,931 tried itNot shown: people name it once they’re better42% recovered or near normal: 1,117 of 2,637 who credit it here5% faded: 129 of 2,637 who credit it here– got worse: not shown, people name it once they’re better

All 1,153 treatments

How long had people been ill before they improved?

  1. Under 2 years 8,92656%
  2. 2–5 years 5,87037%
  3. 5–10 years 1,0427%
  4. 10+ years 1<1%, few people

People with long COVID who say they improved (recovered, near normal, much or somewhat better); shares are of the 15,839 who say how long, 5,554 more don’t.

Show as a table
Years ill before improving or writingPeopleOf 15,839
Under 2 years8,92656%
2–5 years5,87037%
5–10 years1,0427%
10+ years1<1%

Which symptoms do people here describe most?

  1. Anxiety & low mood14,300 people
  2. Brain fog14,297 people
  3. POTS & dysautonomia11,755 people
  4. Heart symptoms & palpitations11,722 people
  5. Gut problems10,561 people
  6. Sleep problems10,504 people
  7. Pain & fibromyalgia10,169 people
  8. Post-exertional malaise9,719 people
  9. Headaches & migraine9,074 people
  10. Breathlessness8,488 people

All 20 symptoms, across both conditions

Learn from people who’ve been there

Find people like you Members

Tell your story and Miruvor finds the people like you. It shows you how they got better, so you can find what might help you recover too.

Paths like yoursSample
RecoveredNear normalMildModerateSevereVery severeOnset123 yrsYou are hereABC
You, so far Your closest matches Lines start at first symptoms. Theirs carry on past where you are now.

ME/CFS

What 28,680 people with ME/CFS tried, and how they are now.

people with ME/CFS
28,680
recovered or near normal
1,579

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