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ME/CFS Mild → somewhat better

ME/CFS crashes after a few days of activity, now somewhat better with a pomodoro rest rule

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill before improving or writing
Not stated
Last post
Jun 2025
In their words
  • At worst: MildHalf of the time, I was working (regulating stress consciously), the other half walking like a lonely and filthy zombie (sleepy all the time and all). In context ↗
  • Now: Somewhat betterI've come a long way from that. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A Reddit user with cycles of cognitive ability and disability who crashes into bed after a few days of activity, walking like a zombie, avoiding everyone at college, maybe crying or thinking about tall structures. About a year before the post they set a pomodoro-based rest rule and said they had come a long way, but crashes continued and the rule failed once fog set in. Last semester they used pomodoro until faint strain then rested, but half the time worked and half walked like a sleepy zombie, and they found it humiliating that nobody seemed able to relate.

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What they tried

Their words about each treatment
  • pomodoro "rest" rule · No changeI used to use pomodoro till I feel the faintest signs of strain and then rest (during the active phase). ... But it failed due to the fog. In context ↗

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
around a year before June 2025set a pomodoro-based rest rule and felt they had come a long wayI've come a long way from that. I had made a pomodoro "rest" rule around a year ago to NOT over-utilize the active cycles. In context ↗Pacing and the energy envelope
last semesterpacing rule failed; crashed half of the semesterBut it failed due to the fog. Half of the time, I was working (regulating stress consciously), the other half walking like a lonely and filthy zombie In context ↗
2025-06-09still crashing into bed after a few days of activityBut after a few days, bam. I'm in bed. I walk like a zombie. In context ↗

Symptoms mentioned

Their words about their symptoms
  • Anxiety & low moodMaybe crying. Maybe thinking about tall structures. In context ↗

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Asking aboutStarling 64780’s story

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