Life largely stopped with ME/CFS, somewhat better after cannabis and caffeine
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Mar 2023
In their words
- Condition: ME/CFS
I was diagnosed at 24 and I'm now 26.
In context ↗ - At worst: Moderate
My life stopped pretty much completely ... The only thing that has helped is having my family and friends visit me on occasion and try to get out for some fresh air on a very good day.
In context ↗ - Now: Somewhat better
what I've been doing doesn't take the fatigue away fully but it makes me feel like I can manage it a bit better. So that's a small win to me :)
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
Zephyr 78177 was diagnosed with CFS at 24 and two years later said their life had stopped pretty much completely, with family visits and fresh air on a very good day the only things that helped. They found warm drinks and ginger steeped in hot water soothing for sore throats and nausea. In March 2023 they reported that mixing high-THC cannabis with caffeine made the fatigue easier to manage, a small win rather than a full fix.
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What they tried
What they credit
Also tried
Their words about each treatment
- raw ginger in hot water · Helped
I steeped some raw ginger in hot water for 20 min and sipped on that for awhile. I also found that good for my nausea.
In context ↗ - black tea · Helped
I do find warm/hot drinks soothing. ... I do like drinking steeped black tea too.
In context ↗ - high THC · Helped
I've been mixing combinations of high THC and caffiene and it's been going ok so far
In context ↗ - progesterone only pills (mini pill) · Helped
I was using progesterone only pills (mini pill)
In context ↗ - progesterone patch called Evra · Helped
I find progestin is the only thing that works for me.
In context ↗
Approaches: Sex hormones
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | CFS onset; diagnosed at 24I was diagnosed at 24 and I'm now 26.In context ↗ | Moderate |
| 2023-02-22 | life stopped completely; mostly at home, only family visits and occasional fresh airMy life stopped pretty much completely and I'm now just trying to pick those pieces back up.In context ↗ | Moderate |
| 2023-03-18 | mixing high-THC cannabis with caffeine made the fatigue easier to manageI've been mixing combinations of high THC and caffiene and it's been going ok so far ... it makes me feel like I can manage it a bit better. So that's a small win to me :)In context ↗ | Moderate |
| 2023-03-31 | still managing fatigue; using a progesterone patchnow have moved onto a progesterone patch called Evra. I find progestin is the only thing that works for me.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Gut problems
I also found that good for my nausea
In context ↗ - Flu-like symptoms
my throat would start to hurt and get really sore
In context ↗
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