A Young Lawyer Beats ME/CFS: Kato's Recovery Story
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving
- 18 months
- Published
- No date given
In their words
- Condition: ME/CFS
when I got a clinical diagnosis of CFS
Watch the video ↗From the video’s captions - At worst: Severe
I thought all I do is lying on the couch
Watch the video ↗From the video’s captions - Now: Recovered
then in it was a matter of weeks and I was fully recovered so it was really flipping from one side to the other flipping from being very ill to being fully well and climbing mountains running
Watch the video ↗From the video’s captions - Began after: a bacterial or tick-borne infection
it started with a bad side infection that didn't go away
Summary
Kato got chronic fatigue syndrome at age 24 after a bad infection and spent about two years mostly on the couch and out of work. Mindfulness and therapy did not help, and the ANS Rewire program helped without bringing recovery. Brain training with a coach in the Netherlands got her walking and running within weeks, and she reports being recovered since spring 2022, though she still has some unwell days.
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What they tried
What they credit
Their words about each treatment
- mindfulness session (sent by parents) · No change
I just it didn't work
Watch the video ↗From the video’s captions - therapist · No change
it wasn't really helpful because she didn't really know anything about CFS
Watch the video ↗From the video’s captions - ANS rewire program · Helped
it helped me a lot and I think I could have recovered during the program
Watch the video ↗From the video’s captions - brain training with a coach in the Netherlands · Helped a lot
until I finally found a coach that really helped me recover
Watch the video ↗From the video’s captions - real rest · Helped
I think it was important that I had rested
Watch the video ↗From the video’s captions
Approaches: Brain retraining · Radical rest
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| age 24, about early 2020 | unrelenting fatigue and headaches after a sinus infection; stopped work after two weeksfor me it started with a bad side infection that didn't go awayWatch the video ↗From the video’s captions | Moderate | |
| first months | on sick leave, lying on the couchI thought all I do is lying on the couchWatch the video ↗From the video’s captions | Severe | |
| 12 mo | felt a little better and worked half time from home, crashing oftenafter a couple of months when I felt a little bit better I started working again but only half timeWatch the video ↗From the video’s captions | Mild | |
| summer 2021 | major crash while working half timethen just after a major relapseWatch the video ↗From the video’s captions | Moderate | |
| after summer 2021 | ANS Rewire brain training helped but did not bring recoveryI didn't cover during the program but it helped me a lotWatch the video ↗From the video’s captions | Moderate | Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust) |
| spring 2022 | fully recovered within weeks of brain training with a Dutch coachthen in it was a matter of weeks and I was fully recoveredWatch the video ↗From the video’s captions | Recovered | Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust) |
| more than a year after recovery | working as an attorney and hiking in the mountains, with occasional fear of relapseI think I've been recovered for more than a year nowWatch the video ↗From the video’s captions | Recovered |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
but I crashed all the time
Watch the video ↗From the video’s captions - Headaches & migraine
like really bad headaches
Watch the video ↗From the video’s captions - Sleep problems
I slept for I think more than 12 hours
Watch the video ↗From the video’s captions - Anxiety & low mood
but still sometimes I'm feeling just this fear
Watch the video ↗From the video’s captions
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