Long COVID
Mild → relapsedIll 2 months before improving or writing
Severe insomnia after long COVID, brief relief from trazodone and prazosin, then relapsed
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 2 months
- Last post
- Sep 2021
In their words
- Condition: Long COVID
Been dealing with horrible insomnia and nightmares since getting covid.
In context ↗ - At worst: Mild
I'm back to working 45 hours a week. I have no choice
In context ↗ - Now: Relapsed
I stopped taking Trazadone. The second week taking it, I started to experience suicidal thoughts. ... I am currently not taking anything for sleep, just making myself really exhausted during the day so that I pass out.
In context ↗ - Began after: COVID
I am one of the very lucky people who was fully vaccined and still ended up hospitalized.
In context ↗
Summary
Fully vaccinated, they still caught COVID-19 and were hospitalised; afterwards came severe insomnia, sometimes two hours' sleep a night, while working 45 hours a week. Trazodone and prazosin were prescribed; after three nights they slept seven to nine hours and felt much better, but in the second week it caused suicidal thoughts, so they stopped and the thoughts cleared. They were left taking nothing for sleep, exhausting themselves in the day.
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What they tried
Also tried
Benadryl· No changeMelatonin· No changeHydroxyzine· No changeAmbien· No changeMirtazapine· No changeZquil· No changeNot using my phone/screen time an hour before bed· No changeTaking a warm bath· No changeMeditation· No changeChamomile Tea / Sleepy Time Tea· No changeWorking myself to pure exhaustion all day· No changeTrazadone· WorsePrazosin· Not said
Their words about each treatment
- Benadryl · No change
Things I've already tried that didn't work for my insomnia: Benadryl
In context ↗ - Melatonin · No change
Things I've already tried that didn't work for my insomnia: ... Melatonin
In context ↗ - Hydroxyzine · No change
Things I've already tried that didn't work for my insomnia: ... Hydroxyzine
In context ↗ - Ambien · No change
Things I've already tried that didn't work for my insomnia: ... Ambien
In context ↗ - Mirtazapine · No change
Things I've already tried that didn't work for my insomnia: ... Mirtazapine
In context ↗ - Zquil · No change
Things I've already tried that didn't work for my insomnia: ... Zquil
In context ↗ - Not using my phone/screen time an hour before bed · No change
Things I've already tried that didn't work for my insomnia: ... Not using my phone/screen time an hour before bed
In context ↗ - Taking a warm bath · No change
Things I've already tried that didn't work for my insomnia: ... Taking a warm bath
In context ↗ - Meditation · No change
Things I've already tried that didn't work for my insomnia: ... Meditation
In context ↗ - Chamomile Tea / Sleepy Time Tea · No change
Things I've already tried that didn't work for my insomnia: ... Chamomile Tea / Sleepy Time Tea
In context ↗ - Working myself to pure exhaustion all day · No change
Things I've already tried that didn't work for my insomnia: ... Working myself to pure exhaustion all day
In context ↗ - Trazadone · Worse
Night 3 of Trazadone last night: best sleep I've had! I'm feeling so much better.
In context ↗ - Prazosin · Not said
I was prescribed Trazadone for sleep and Prazosin for nightmares.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2021 | COVID-19, hospitalised despite full vaccinationI am one of the very lucky people who was fully vaccined and still ended up hospitalized.In context ↗ | Mild |
| 2021-08-14 | slept 7-9 hours on trazodone, felt much betterNight 3 of Trazadone last night: best sleep I've had! I'm feeling so much better.In context ↗ | Mild |
| 2021-09-13 | stopped trazodone after suicidal thoughts; nothing for sleep nowI stopped taking Trazadone. The second week taking it, I started to experience suicidal thoughts.In context ↗ | Mild |
Adverse events
- Trazodone (Desyrel)“The second week taking it, I started to experience suicidal thoughts.” In context ↗ Suicidal thoughts or attempt
- Trazodone (Desyrel)“It was making me feel completely dead inside.” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Sleep problems
For the past 3 weeks, I'm lucky if I get 2 hours of sleep at night. Sometimes none at all.
In context ↗