ME/CFS
No benefitIll for 18 yearsNeeds ongoing treatment
CFS with flares, then COVID brought back worst symptoms; Paxlovid gave no fatigue relief
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 18 years
- Last post
- Jul 2023
In their words
- Condition: ME/CFS
I was diagnosed with CFS 18 years ago
In context ↗ - Now: No benefit
the fatigue has not improved and it has not been a quick recovery for me
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Diagnosed with CFS 18 years ago, she said her illness had been manageable as long as she listened to her body, though she had flares. In July 2023, in the third trimester of pregnancy, she caught COVID for the first time and it brought her back to how she felt at diagnosis, her worst. She was given Paxlovid and felt better after a week (no more fever, chills and body aches), but her fatigue did not improve and recovery was slow.
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What they tried
Also tried
Their words about each treatment
- listen to my body · Helped
My CFS has been manageable (luckily) as long as I listen to my body
In context ↗ - Paxlovid · Helped
While I do feel better after a week (no more fever, chills, body aches, etc) the fatigue has not improved
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| 2005 | diagnosed with CFS, illness at its worstI was diagnosed with CFS 18 years ago ... when I was first diagnosed with CFS and it was at its worstIn context ↗ | Not stated | |
| before July 2023 | CFS manageable while listening to her body, with occasional flaresMy CFS has been manageable (luckily) as long as I listen to my bodyIn context ↗ | Mild | |
| July 2023 | first COVID infection in third trimester of pregnancyCOVID brought me back to when I was first diagnosed with CFS and it was at its worstIn context ↗ | Not stated | |
| 2023-07-31 | COVID symptoms eased after Paxlovid but fatigue persistedI do feel better after a week (no more fever, chills, body aches, etc) the fatigue has not improvedIn context ↗ | Not stated | Paxlovid / nirmatrelvir |
Symptoms mentioned
Their words about their symptoms
- Flu-like symptoms
no more fever, chills, body aches, etc
In context ↗