ME/CFS
Outcome unclearNeeds ongoing treatment
ME/CFS with fractured sleep, still fractured; Xylimelts made a difference
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Aug 2025
In their words
- At worst: Mild
I work on site sometimes and no one is any the wiser.
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
A person in the UK with CFS used melatonin, blackout blinds, Xylimelts dry-mouth lozenges and comfortable bedding to improve their sleep. They also got various benefits from vaporised, microdosed medical cannabis, at £50 for the initial consultation and £60 per 10g. They sometimes worked on site. By 2025 their sleep was still fractured, though Xylimelts made a noticeable difference.
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What they tried
Also tried
melatonin· Helpedsleeping mask/blackout blinds· Helpedxylimelts· Helpedcannabis (THC), privately prescribed· Helped
Their words about each treatment
- melatonin · Helped
Improving sleep quality with - melatonin
In context ↗ - sleeping mask/blackout blinds · Helped
melatonin, sleeping mask/blackout blinds
In context ↗ - xylimelts · Helped
xylimelts for dry mouth to stop waking up from dry mouth in the night
In context ↗ - cannabis (THC), privately prescribed · Helped
personally I've had various benefits from it. I'm vaping and micro dosing smallest possible amount
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| onset | CFS; onset not describedmy albeit still fractured sleep qualityIn context ↗ | Not stated |
| 2022-06-03 | better sleep quality with melatonin, blackout blinds, Xylimelts and comfortable beddingImproving sleep quality with - melatonin, sleeping mask/blackout blinds, xylimelts for dry mouth to stop waking up from dry mouth in the nightIn context ↗ | Not stated |
| 2022-08-09 | various benefits from vaporised, microdosed medical cannabis; working on site sometimespersonally I've had various benefits from it. I'm vaping and micro dosing smallest possible amount, I work on site sometimesIn context ↗ | Mild |
| 2025-08-12 | sleep still fractured but Xylimelts make a noticeable differenceXylimelts dry mouth lozenges at night significantly improved my albeit still fractured sleep qualityIn context ↗ | Not stated |
Adverse events
- “i had bad side effecfs from those meds too” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Sleep problems
Xylimelts dry mouth lozenges at night significantly improved my albeit still fractured sleep quality
In context ↗