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Long COVID No benefit

Long COVID symptoms and light sensitivity ongoing; vaccination no change, MCAS meds tried

Condition
Long COVID
At worst
Not stated
Ill for
Not stated
Last post
Oct 2026
In their words
  • Condition: Long COVIDno immediate / obvious improvement or change to my ongoing symptoms so far. In context ↗
  • Now: No benefitno immediate / obvious improvement or change to my ongoing symptoms so far. In context ↗
Read from 4 of their posts and comments; links to the 3 this page draws on

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Summary

Has ongoing symptoms, and has been light sensitive since before they began. A vaccination in January 2026, the first since 2021, left a painful arm and a wiped-out weekend but no change to symptoms. A medication, taken with famotidine after persuading their GP to prescribe both, helped hugely with MCAS symptoms. Severity and overall outcome were not described.

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What they tried

Their words about each treatment
  • vaccination · No changeno immediate / obvious improvement or change to my ongoing symptoms so far. In context ↗
  • Fexofenadine · Helped a lotHelps me hugely with MCAS symptoms, in conjunction with famotidine. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
—ongoing long COVID symptoms (onset not dated)my ongoing symptoms In context ↗
2026-01-19COVID vaccination: painful arm, wiped out over the weekend, no change to ongoing symptomsfelt a bit wiped out over the weekend In context ↗
2026-06-22MCAS symptoms much improved after GP prescribed fexofenadine and famotidineHelps me hugely with MCAS symptoms, in conjunction with famotidine. In context ↗Fexofenadine (Allegra)

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Mast cell (MCAS) & allergiesHelps me hugely with MCAS symptoms, in conjunction with famotidine. In context ↗
  • Light & noise sensitivityI've always been light sensitive even before all this bollocks started. In context ↗

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