Too weak to leave bed with ME/CFS, now somewhat better on ADHD medication and Abilify
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4 years
- Last post
- Dec 2025
In their words
- Condition: ME/CFS
I’ve been diagnosed with me/cfs sometime in 2021.
In context ↗ - At worst: Severe
There’s a chance I was severe but the meds keep me moderate.
In context ↗ - Now: Somewhat better
I could do chores, I could walk for longer and get back to a normal desk. ... I still crash really bad after cleaning
In context ↗
Summary
Diagnosed with ME/CFS in 2021 after being too weak to leave bed or reach the bathroom, Maple 79047 improved on ADHD medication and 2 mg Abilify, reaching a moderate level where they could do chores and desk work but still needed 2-4 hours extra sleep and crashed after cleaning. A severe PEM crash in December 2025 left them bedbound and unable to eat; by mid-December their appetite returned and they were starting to feel better.
Ask Miruvor AI
What they tried
What they credit
Their words about each treatment
- adhd meds · Helped
At some point, I got on my adhd meds and abilify 2mg (depression) I started to feel better. I could do chores, I could walk for longer and get back to a normal desk.
In context ↗ - abilify · Helped
At some point, I got on my adhd meds and abilify 2mg (depression) I started to feel better.
In context ↗
Approaches: Other drugs and medicines · Stimulants
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| 2021 | ME/CFS onset, bedboundI remember not even being able to get out of bed or go to the bathroom. I remember my hands feeling heavy by picking up my phone.In context ↗ | |
| — | started ADHD meds and 2 mg Abilify, could do chores and desk workI got on my adhd meds and abilify 2mg (depression) I started to feel better. I could do chores, I could walk for longer and get back to a normal desk.In context ↗ | Low-dose Abilify / aripiprazole |
| December 2025 | severe PEM crash, fully bedbound and could not eati had trouble eating during a really bad pem, i went to full bed bound where I couldn’t eat with getting more exhaustedIn context ↗ | |
| 2025-12-16 | appetite back, starting to feel betternow im starting to feel better and want to eat a lot and drink a lot of water. I crave meat and sweets a lot.In context ↗ |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I still crash really bad after cleaning
In context ↗ - Sleep problems
I still need to sleep for 2-4 hours extra every day
In context ↗ - Muscle weakness
I remember my hands feeling heavy by picking up my phone.
In context ↗ - Gut problems
i had trouble eating during a really bad pem, i went to full bed bound where I couldn’t eat with getting more exhausted
In context ↗ - Anxiety & low mood
abilify 2mg (depression)
In context ↗
Ask Miruvor AI
Similar stories
-
ME/CFS with brain fog and tachycardia, somewhat better, only feverishness improved
Swan 60679 fell ill in 2018 with CFS triggered by EBV, and spent most of the day in bed or at the computer with brain fog and tachycardia. Stimulants and ketamine gave only temporary relief, and stimulants were stopped after panic attacks. CPAP for sleep…
-
Unable to work, relearning to walk with ME/CFS; much better with pacing and Abilify
Lynx 74916 had ME/CFS from about age 12 and kept working until they could no longer, then quit and spent a few years relearning to walk. Years of pacing and being unemployed let them manage their baseline and return to work. By late 2024 they were pacing,…
-
Not enough detail to draw a path
ME/CFS cognitive fatigue and POTS, somewhat better with D-ribose and doctor care
Plover 84634, a Reddit user with ME/CFS, described years of cognitive symptoms, including being fatigued by reading a paragraph, and POTS with heart rate rising on standing. D-ribose helped noticeably. By 2024 they said working with doctors had improved…
-
Almost bedridden with ME/CFS, now much better after a specialist regimen and pacing
A California woman infected with COVID in March 2020 was sick six months, partly recovered, then relapsed and was almost bedridden by early 2023, unable to drive and sensitive to light and noise. An out-of-pocket ME/CFS specialist regimen of LDN, Abilify,…