In bed with ME/CFS, somewhat better with supplements and rest
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Sep 2024
In their words
- Condition: ME/CFS
I do have a generic liver issue and this probably plays into the CFS.
In context ↗ - At worst: Severe
Having used a wide variety of supplements, style combinations worked well enough to get me out of bed.
In context ↗ - Now: Somewhat better
I'm not cured, of course I'm not. But with the rest patterns and other ways I've tried to manage my stress triggers, physical triggers and so on, I am seeming to be doing better for longer more often.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A person with CFS who described having been in bed until a wide range of supplements helped them get up. They later cut back to an antihistamine, magnesium and vitamin D, reduced processed foods and seed oils, and credited rest patterns and stress management. They said they were not cured but were crashing less often and doing better for longer.
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What they tried
What they credit
Also tried
Their words about each treatment
- a wide variety of supplements · Helped
Having used a wide variety of supplements, style combinations worked well enough to get me out of bed.
In context ↗ - reducing processed foods · Helped
I have been reducing processed and following some of the simple 'hacks' from Glucose Goddess. It has helped me reduce my weight a little as a by-product and I think this has helped.
In context ↗ - only olive oil and butter, no seed oils or margarine · Not said
I only use olive oil and butter, no seed oils or margarine. This is an example of my decisions in diet to reduce inflammation.
In context ↗ - an antihistamine · Not said
I now take only an antihistamine all year round (was for 8 months per year, now switching to 12)
In context ↗ - a highly available magnesium supplement · Not said
a highly available magnesium supplement with vitamin D
In context ↗ - rest patterns · Helped
with the rest patterns and other ways I've tried to manage my stress triggers, physical triggers and so on, I am seeming to be doing better for longer more often
In context ↗
Approaches: Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | CFSthis probably plays into the CFSIn context ↗ | Not stated | |
| — | largely in bed, needed supplements to get out of bedworked well enough to get me out of bedIn context ↗ | Severe | |
| 2024-09-25 | crashing less often, doing better for longerI am seeming to be doing better for longer more oftenIn context ↗ | Mild | Pacing and the energy envelope |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
as I started to crash less often and manage the condition better
In context ↗
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