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ME/CFS Outcome unclear

ME/CFS, working part-time and studying, tried CBT and sleep medication

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
Not stated
Last post
Jun 2019
In their words
  • Condition: ME/CFSYeah I was diagnosed in 2010 through exclusion. In context ↗
  • At worst: Mildwhat they suggested I do didn't fit in with working part-time, being at Uni and having kids In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on

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Summary

Diagnosed with CFS in 2010 after a long process of exclusion, Horizon 94940 was working part-time, studying at university and raising children. They tried a programme in Leeds along with CBT but gave up, saying the advice did not fit their life, and called CBT a waste of time. A sleep medication helped them sleep through the night but left them too groggy in the morning, so they stopped it.

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What they tried

Also tried

CBT· No changesleep medication (not named)· WorseFatigue Service (Leeds)· Not said
Their words about each treatment
  • Fatigue Service (Leeds) · Not saidTried it in Leeds along with CBT. The advice they gave didn't fit my lifestyle so I gave up. In context ↗
  • CBT · No changePersonally for me it was a waste of time, they tell you to manage your energy levels In context ↗
  • sleep medication (not named) · WorseIt helped me sleep through the night but I was so groggy in the morning I had to stop taking them In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
2010diagnosed with CFS through exclusion after a long processYeah I was diagnosed in 2010 through exclusion. Took a long time but in all honesty my doctor was brilliant. In context ↗Not stated
2019working part-time, studying at university and raising childrendidn't fit in with working part-time, being at Uni and having kids. In context ↗Mild

Adverse events

  • “It helped me sleep through the night but I was so groggy in the morning I had to stop taking them” In context ↗ Side effects

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsIt helped me sleep through the night but I was so groggy in the morning I had to stop taking them In context ↗

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