Sleepy most of the time for 15 years, partly better on modafinil and antidepressants
- Condition
- Condition not stated
- At worst
- Not stated
- Ill before improving or writing
- 15 years
- Last post
- May 2024
In their words
- Condition: Condition not stated
Not sure if I have CFS, Dysthymia or Sleep Apnea.
In context ↗ - Now: Somewhat better
They have worked more or less, but I'm still sleepy most of the time.
In context ↗ - Says they never had: Anxiety & low mood
because I'm not depressed in the emotional sense
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 28-year-old in Mexico reported about 15 years of hypersomnia and being sleepy most of the time. One doctor diagnosed CFS and prescribed modafinil, which caused vertigo; another suggested dysthymia or sleep apnoea and prescribed modafinil plus antidepressants. Those helped only partly, and they were still sleepy most of the time when they wrote.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- Modafinil · Worse
One told me it was CFS right away and just prescribed me Modafinil (which gave me vertigo)
In context ↗ - antidepressants · Helped
just prescribed Modafinil as well and antidepressants ... They have worked more or less
In context ↗
Approaches: Other drugs and medicines
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| onset | hypersomnia beganI've had hypersomnia for the better part of the last 15 years (I'm 28)In context ↗ |
| 2024-05-11 | still sleepy most of the time on modafinil and antidepressantsThey have worked more or less, but I'm still sleepy most of the time.In context ↗ |
Adverse events
- Modafinil / armodafinil“just prescribed me Modafinil (which gave me vertigo)” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I've had hypersomnia for the better part of the last 15 years
In context ↗
Ask Miruvor AI
Similar stories
-
Not enough detail to draw a path
ME/CFS bedridden nearly a month after flu jab, now much better with pacing and LDN
Fell ill in January 2010 with an unidentified virus that attacked her nervous system, spent three weeks in hospital and has had ME/CFS since. Mostly mild to moderate, she works a few hours a day from home and credits pacing, cutting sugar and carbs, LDN and…
-
Not enough detail to draw a path
Long COVID from bed to couch, now somewhat better, mostly housebound on clonidine, Rinvoq
Pond 55514, a US librarian, worked part time for twenty years with a mild pain-and-fatigue illness until a fifth COVID vaccine in 2022 brought hives, POTS and worse fatigue. COVID in fall 2023 cost her the job and she spent 2024 going from bed to couch.…
-
Bedbound and housebound with ME/CFS, now much better with pacing and POTS/MCAS drugs
Diana fell ill at 12 in 1998 and was very severe for about 15 years, bedbound for about four years and housebound for another seven or so. Endometriosis surgery moved them to moderate, and treating POTS and MCAS from late 2024 brought them toward mild.…
-
Severe ME/CFS, much better and mostly mild; propranolol coincided with fewer severe flares
After a suspected post-viral onset from EBV mono and CMV, they were extremely ill and severe, later moderate-severe. They were often mild across the decade since, though a February 2023 COVID infection left them short of their usual baseline and March 2024…