ME/CFS
Severe → no benefit
Still bedbound with ME/CFS after COVID, no benefit from magnesium or guided imagery
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Jun 2023
In their words
- Condition: ME/CFS
me/cfs/long shitty covid
In context ↗ - At worst: Severe
to severe - bedbound in the past three months after getting covid. use wheelchair to get to bathroom when i can. which is not always.
In context ↗ - Now: No benefit
I declined from moderate cfs ... to severe - bedbound in the past three months after getting covid.
In context ↗
Summary
Moon 79357, 40, had moderate ME/CFS, living alone, pacing carefully and working part time. A COVID infection about three months before pushed them to severe: bedbound, wheelchair to the bathroom when able. They took magnesium lysinate glycinate for muscle twitches and joined online guided-imagery sessions, which they said gave them energy. Mould forced a move to temporary housing; they were applying for assisted living and still bedbound in June 2023.
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What they tried
Also tried
Their words about each treatment
- magnesium lysinate glycinate · Helped
i take magnesium from drs best and that seems to make it go away
In context ↗ - guided imagery · Helped
i join the guided imagery ones ... i find it gives me energy
In context ↗ - gi gong · Not said
I go to gi gong online on Thurs which I love
In context ↗ - qi healing · Not said
do qi healing sometimes too
In context ↗ - pacing · Not said
I declined from moderate cfs living alone, pacing carefully, working part time but still enjoying life
In context ↗ - temporary housing due to mold · Not said
I am in temporary housing due to mold
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | moderate ME/CFS, living alone and working part timeI declined from moderate cfs living alone, pacing carefully, working part time but still enjoying lifeIn context ↗ | Moderate |
| 2023-06-27 | declined to severe and bedbound after getting covid; wheelchair to bathroombedbound in the past three months after getting covid. use wheelchair to get to bathroom when i can.In context ↗ | Severe |
| 2023-06-27 | still bedbound, moved to temporary housing because of mould, applying for assisted livingI am in temporary housing due to mold and completing paperwork for an assisted livingIn context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Mast cell (MCAS) & allergies
all my friends have animals I'm allergic to
In context ↗