ME/CFS
Mild → no benefitIll for 12 years
Ill with ME/CFS for over a decade, still ill; therapy and pacing helped him cope
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 12 years
- Last post
- Jun 2025
In their words
- Condition: ME/CFS
ME/CFS sucks but what sucks more is becoming even sicker by punishing yourself at the gym.
In context ↗ - At worst: Mild
I used to work out 5x a week, now I do a 30 minute max walk when I am feeling up to it for my exercise. I had to cut it down from an hour originally.
In context ↗ - Now: No benefit
I eventually accepted I am no longer able bodied
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A male medical professional who had ME/CFS for over a decade before getting an official diagnosis. He cut exercise from hour-long walks to 30 minutes at most when able, and called mental healthcare his primary treatment, valuing a therapist who also had a chronic illness. He credited accepting that his old able-bodied self was gone, and pacing himself at work, with helping him cope. He was still ill and no longer able bodied.
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What they tried
Their words about each treatment
- exercising at the gym · Worse
what sucks more is becoming even sicker by punishing yourself at the gym ... I know this from experience.
In context ↗ - 30 minute max walk · Helped
now I do a 30 minute max walk when I am feeling up to it for my exercise
In context ↗ - mental healthcare · Helped
something that really really helped my experience is that I eventually got a therapist who also had a chronic illness
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| onset | ME/CFS began, undiagnosed for over a decadetrying to figure out what was wrong with me for over a decadeIn context ↗ | Not stated |
| 2025-06-04 | still ill, pacing himself and in therapynow I do a 30 minute max walk when I am feeling up to it for my exerciseIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
ME/CFS sucks but what sucks more is becoming even sicker by punishing yourself at the gym. ... I know this from experience.
In context ↗