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Long COVID Mild → somewhat betterIll 3 years before improving or writing

Long COVID with gut, anxiety, insomnia and histamine intolerance, slightly more manageable

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
3 years
Last post
Mar 2023
In their words
  • Condition: Long COVIDpinning to possibly a longhauler situation In context ↗
  • At worst: MildI could only eat a few things (e.g., pasta, bread), was constantly nauseous and anxious. In context ↗
  • Now: Somewhat bettersymptoms that have gotten slightly more manageable over time In context ↗
  • Began after: COVIDIt is possible (based on personal exposure, circumstance, and long-term symptoms) that I had asymptomatic COVID before it was declared a pandemic.
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Orchid 58784 dates bizarre health problems to March 2020, suspecting asymptomatic COVID around a conference trip weeks earlier. Gut problems, anxiety, insomnia, dryness, tinnitus and food intolerance followed; IBS-C, SIBO and food sensitivity diagnoses did not resolve them. Histamine intolerance and possible MCAS remain the hardest part. Symptoms are slightly more manageable over three years, but they still seek management.

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What they tried

Also tried

stopped eating gluten· Not saidsupplements· Not said
Their words about each treatment
  • stopped eating gluten · Not saidI stopped eating gluten to try to deal with my gut ... Went on a number of elimination diets In context ↗
  • supplements · Not saidWent on a number of elimination diets, supplements, etc. To try to resolve the "issue" In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered18 mo2 y2.5 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 17 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
March 2020digestive problems, nausea, anxiety and fatigue beganMarch 2020: About 2.5-3 weeks after returning from the trip, significant digestive problems hit for me In context ↗Not stated
June 2020dryness everywhere, couldn't sleep, gut and mental health issues persistedJune 2020: Moved home briefly because I started having significant issues with dryness - dry eyes, dry mouth, dry nose, dry lungs In context ↗Not stated
August 2021symptoms became slightly more manageable over timeI have been trying to navigate the symptoms that have gotten slightly more manageable over time In context ↗Mild
2023-03-23still uncomfortable, seeking symptom managementI am still uncomfortable enough that I am seeking management for the symptoms In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Gut problemssignificant digestive problems hit for me - I could only eat a few things In context ↗
  • Anxiety & low moodwas constantly nauseous and anxious In context ↗
  • Sleep problemsCouldn't sleep, digestive issues persisted In context ↗
  • TinnitusTinnitus was significant. In context ↗
  • Mast cell (MCAS) & allergiesThe histamine intolerance / possible MCAS is the most challenging. In context ↗
  • POTS & dysautonomialeast with POTS, but still with some symptoms of that as well In context ↗

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