ME/CFS
Mild → no benefit
Mild-to-moderate ME/CFS with multi-day PEM, still limited to short walking intervals
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
I have mild-moderate ME/CFS
In context ↗ - At worst: Mild
I have mild-moderate ME/CFS
In context ↗ - Now: No benefit
I have mild-moderate ME/CFS
In context ↗
Summary
Nightjar 40903 has mild-to-moderate ME/CFS and works as an engineer with flexible hours, taking some days off or working odd hours. Short intervals of slow walking (7 minutes walking, 3 minutes sitting) are manageable, but long sessions without rest bring multi-day PEM spent lying down all day. PEM usually starts about two days after a trigger, and they track daily step counts to tell it from ordinary fluctuation.
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What they tried
Also tried
Their words about each treatment
- intervals of slow walking · Helped
I've found that it's good for me to do intervals of slow walking: 7 minutes of walking slowly on flat ground, and then 3 minutes of sitting down
In context ↗ - plotting my daily step counts · Not said
recording all my activities and plotting my daily step counts
In context ↗ - avoiding other triggers the day after · Helped
Nothing seems to reduce my PEM after the trigger except for avoiding other triggers the day after.
In context ↗ - sit-stand desk · Helped a lot
The sit-stand desk made a massive difference.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | ME/CFS onsetI have mild-moderate ME/CFSIn context ↗ | Not stated |
| 2026-10-11 | working as an engineer with flexible hours, short slow-walking intervals with rests, tracking daily step countsI work as an engineer, and if I've got a big report due in a few weeks' time, then I can often work some days but not othersIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
then I get multi-day PEM where I have to lie down all day
In context ↗