ME/CFS
Moderate → somewhat better
Housebound with ME/CFS as a young person, now only slightly better
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- May 2026
In their words
- Condition: ME/CFS
emotions also contribute to PEM which I do find myself forgetting about
In context ↗ - At worst: Moderate
then I became housebound and instead had to start depending even more on my parents
In context ↗ - Now: Somewhat better
Even though I’ve become slightly better now thus I am physically able to do some things myself
In context ↗
Read from 7 of their posts and comments; links to the 5 this page draws on
Summary
They fell ill as a young person and became housebound, depending on their parents for daily life. By 2025 they were only slightly better, able to do some things for themselves but still not well enough to feel like an adult. A COVID infection in early 2023 made them feel horrific, but they returned to their previous baseline. Collagen restored some hair density but made it harder to fall asleep, and CBD oil caused a bad flare.
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What they tried
Also tried
collagen (the hydrolysed kind)· Helpedvitamin D tablets· No changeCBD oil· Much worseCollagen· Not said
Their words about each treatment
- collagen (the hydrolysed kind) · Helped
Supplementing collagen (the hydrolysed kind) helped me get quite a bit more density back after experienced a crazy amount of hair loss.
In context ↗ - CBD oil · Much worse
I've only tried CBD oil but even that caused a really bad flare up for me.
In context ↗ - vitamin D tablets · No change
Day 1000 of waiting for my vitamin D tablets to kick in and cure me
In context ↗ - Collagen · Not said
I purposely take it in the morning rather than at night though because I felt like it made it even harder for me to fall asleep.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | became housebound and dependent on parentsthen I became housebound and instead had to start depending even more on my parentsIn context ↗ | Moderate |
| 2025-07-19 | slightly better, able to do some things aloneEven though I’ve become slightly better now thus I am physically able to do some things myselfIn context ↗ | Moderate |
| 2026-05-23 | still ill, waiting for vitamin D to helpDay 1000 of waiting for my vitamin D tablets to kick in and cure meIn context ↗ | Moderate |
Adverse events
- Collagen“I purposely take it in the morning rather than at night though because I felt like it made it even harder for me to fall asleep.” In context ↗ Insomnia from treatment
- CBD (cannabidiol)“I’ve only tried CBD oil but even that caused a really bad flare up for me.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
emotions also contribute to PEM which I do find myself forgetting about
In context ↗ - Hair loss
after experienced a crazy amount of hair loss
In context ↗ - Sleep problems
I felt like it made it even harder for me to fall asleep
In context ↗ - Anxiety & low mood
plus the anxiety that comes with it
In context ↗