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ME/CFS Severe → no benefitIll for 10 years

ME/CFS for over ten years, still bedbound after covid, no improvement

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
10 years
Last post
Aug 2023
In their words
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Cardinal 37322 had ME/CFS for more than ten years, starting with a nasty infection in the last year of elementary school; at first it was mild and manageable. After catching covid at the end of 2020 they became basically bed bound and were still bed bound at their August 2023 post. No treatment or improvement is described.

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Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

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WhenWhat happenedWhere they were
last year of elementary schoolME/CFS began after a nasty childhood infectionI've had ME/CFS for over 10 years, since I had some nasty infection last year of elementary school, but it was mild ... it was manageable though, I could deal with it In context ↗Mild
end of 2020became bed bound after catching covidThen I cought covid at the end of 2020 and been basically bed bound ever since In context ↗Severe
2023-08-28still basically bed boundbeen basically bed bound ever since In context ↗Severe

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