Bedbound with ME/CFS for four years, now much better after B12 injections
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4 years
- Last post
- Apr 2023
In their words
- Condition: ME/CFS
I got mono at 18 and it developed into cfs
In context ↗ - At worst: Severe
was bed bound and relapsing for around 4 years
In context ↗ - Now: Much better
I have made a significant recovery and now I’m able to function with accommodations
In context ↗ - Began after: glandular fever or EBV
I got mono at 18 and it developed into cfs
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
They developed CFS after mono at age 18 and were bed bound or relapsing for around four years. B12 injections twice a month for a year, combined with other interventions, helped them go from bed bound to functioning with accommodations, and they returned to college. Fifteen years later they reported a significant recovery, able to function with accommodations.
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What they tried
What they credit
Also tried
Their words about each treatment
- B12 injections · Helped
I did B12 injections in the glute twice a month for a year. That combined with other interventions helped me go from bed bound, to functioning with accommodations.
In context ↗ - stool in my kitchen for cooking sitting down · Helped
I have a stool in my kitchen and a island that allows me to chop and prep things sitting down ... Helped a lot in my case!
In context ↗
Approaches: Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 12 months after onset: the story doesn’t say how ill they were before that. 1 step has no time and sits in story order between the steps around it. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| age 18 | mono developed into CFSI got mono at 18 and it developed into cfsIn context ↗ | Not stated | |
| about a year in | very sick and bed bound with no help from GPwas very sick/bed bound for about a year with no help from my GPIn context ↗ | Severe | |
| about two years in | recovered enough to go back to collegeI was able to “recover” enough to go back to collegeIn context ↗ | Mild | Vitamin B12 |
| during the first four years | bed bound and relapsingwas bed bound and relapsing for around 4 yearsIn context ↗ | Severe | |
| 2023-04-20 | significant recovery, functioning with accommodationsI have made a significant recovery and now I’m able to function with accommodationsIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Muscle weakness
I was to weak to really even know what was going on a lot of the time
In context ↗
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