ME/CFS
Outcome unclear
Mostly in the house with ME/CFS, pacing in five-minute blocks; some weeks still awful
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Oct 2017
In their words
- Condition: ME/CFS
my life with ME/CFS
In context ↗ - At worst: Moderate
My house is a mess, I have few friends and mostly live in the house.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A Reddit user with ME/CFS lived mostly in the house, with a messy home and few friends, while their husband did dishes, laundry and errands. They stretched their energy by pacing in five-minute blocks, doing dinner prep in the morning and gardening minutes at a time, and did their own laundry every three weeks. Their one social activity was weekly knitting, sometimes cancelled; some days and weeks were still awful.
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What they tried
Also tried
Their words about each treatment
- pacing · Helped
I found I can use the energy i do have in small, efficient ways. ... Called pacing
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| — | ME/CFS onset; later living mostly in the housemy life with ME/CFSIn context ↗ | Not stated | |
| 2017-10-26 | pacing tasks in five-minute blocks, knitting once a week, some awful days and weeksI found I can use the energy i do have in small, efficient ways.In context ↗ | Moderate | Pacing and the energy envelope |