ME/CFS
No benefit
ME/CFS with years of clinic visits, no big change from lifestyle and medication advice
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- May 2023
In their words
- Condition: ME/CFS
I was actually dx w/CFS at the Mayo Clinic unexpectedly
In context ↗ - Now: No benefit
So far that’s helped a bit but no big improvements.
In context ↗
Summary
A Canadian Reddit user diagnosed with CFS at the Mayo Clinic about five years before an October 2022 comment, and had symptoms of a few other conditions for years. They attended the clinic every 13 weeks for years, where the advice for CFS was lifestyle changes, a few medication changes and a stimulant as needed. They said this had helped a bit but brought no big improvements.
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What they tried
Also tried
lifestyle changes· Helpeda few med changes· Helpeda stimulant· HelpedSensodyne· Helpedfluoride-chlorhexidine mouth-wash· Helpedflossing· Helpedthis toothpaste· Not said
Their words about each treatment
- lifestyle changes · Helped
For CFS their recommendations were lifestyle changes ... So far that’s helped a bit but no big improvements.
In context ↗ - a few med changes · Helped
a few med changes & a stimulant when needed. So far that’s helped a bit
In context ↗ - a stimulant · Helped
a stimulant when needed. So far that’s helped a bit but no big improvements.
In context ↗ - this toothpaste · Not said
I used this toothpaste for gingivitis & noticed the same thing.
In context ↗ - Sensodyne · Helped
I switched to Sensodyne (contains fluoride) ... My gums improved greatly
In context ↗ - fluoride-chlorhexidine mouth-wash · Helped
a fluoride-chlorhexidine mouth-wash ... My gums improved greatly
In context ↗ - flossing · Helped
started flossing more ... My gums improved greatly
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | ME/CFS onset, trigger not describedI was actually dx w/CFS at the Mayo Clinic unexpectedly (in addition to a few other conditions that I had symptoms of for years)In context ↗ |
| five years before October 2022 | Mayo Clinic CFS advice (lifestyle changes, medication changes, stimulant as needed) gave slight helpFor CFS their recommendations were lifestyle changes, a few med changes & a stimulant when needed ... So far that’s helped a bit but no big improvementsIn context ↗ |
| 2022-10-17 | still only a bit better, no big improvementsSo far that’s helped a bit but no big improvements.In context ↗ |
Adverse events
- “chlorhexidine discoloured my teeth slightly” In context ↗ Side effects