Over 25 years ill with ME/CFS, now somewhat better after monolaurin and B12
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 25 years
- Last post
- Oct 2017
In their words
- Condition: ME/CFS
I was just prescribed 500mg of Valtrex per day for my CFS
In context ↗ - At worst: Mild
I am on four different types of antidepressants and Adderall every day just to be able to stay awake.
In context ↗ - Now: Somewhat better
and I just now feel like I'm getting back to life
In context ↗ - Began after: glandular fever or EBV
the severe case of mononucleosis I had when I was a child
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
They had been ill for over 25 years after a severe childhood case of mononucleosis, needing four antidepressants and Adderall just to stay awake. After their PCP cut most of those drugs and raised valacyclovir, and a specialist connected with the Holtorf group prescribed monolaurin while they took vitamin D and B12, they felt much better, and their depression lifted on methylated B12; they later said Valtrex did not work for them. A year of tests and changes later, they felt they were getting back to life.
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What they tried
What they credit
Also tried
Their words about each treatment
- antidepressants (Paxil, Wellbutrin, Buspar) · Not said
I am on four different types of antidepressants and Adderall every day just to be able to stay awake.
In context ↗ - Clonopin · Not said
I have successfully gone off of all my antidepressants (Paxil,Wellbutrin,Buspar,Clonopin)
In context ↗ - Adderall · Not said
was on 450 Wellbutrin, 2 Buspar pills, Paxil, plus 60 mg of Adderall to keep me awake
In context ↗ - Valtrex · No change
I was given Valtrex as well, on top of all the other meds, and it did not work for me.
In context ↗ - Vitamin D · Helped
After a month of taking high doses of Vitamin D (blood tests show I was low) and B-12 (also low in my blood), and adding Lauricidin twice a day, I am beginning to feel much better.
In context ↗ - methylated B-12 · Helped a lot
My depressive symptoms improved dramatically when I switched to the methylated form of B12.
In context ↗ - Lauricidin (monolaurin) · Helped
adding Lauricidin twice a day, I am beginning to feel much better
In context ↗
Approaches: Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 24 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| childhood | Severe mononucleosis as a childthe severe case of mononucleosis I had when I was a childIn context ↗ | Not stated | |
| 2016-06-28 | On four antidepressants and Adderall daily just to stay awake; had to stop mid-drive to avoid falling asleepI am on four different types of antidepressants and Adderall every day just to be able to stay awakeIn context ↗ | Mild | |
| 2016-06-29 | Most meds cut, Valtrex raised to 1,000 mg daily and vitamin D startedSo far, after 2 days of much less meds and the Valtrex, I feel so very good.In context ↗ | Mild | Valtrex / valacyclovir |
| 2016-08-22 | Added monolaurin twice a day plus high-dose vitamin D and B12; off all antidepressantsAfter a month of taking high doses of Vitamin D (blood tests show I was low) and B-12 (also low in my blood), and adding Lauricidin twice a day, I am beginning to feel much better.In context ↗ | Mild | |
| 2017-08-21 | Switched to methylated B12 under a Holtorf-associated clinic; depression improved dramaticallyMy depressive symptoms improved dramatically when I switched to the methylated form of B12.In context ↗ | Mild | Vitamin B12 |
| 2017-10-02 | After a year of tests and medication and supplement changes, feels they are getting back to lifeIt's been a little over a year, countless tests and meds/supplement changes, and I just now feel like I'm getting back to life.In context ↗ | Mild |
Adverse events
- Paroxetine (Paxil), Bupropion (Wellbutrin), Buspirone (Buspar), Amphetamine salts (Adderall)“was on 450 Wellbutrin, 2 Buspar pills, Paxil, plus 60 mg of Adderall ... He said those were contributing to my exhaustion” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Sleep problems
Sometimes I have to stop inthe middle of a 40-minute drive if I am taking my kids somewhere so I don't fall asleep and kill us all.
In context ↗ - Anxiety & low mood
My depressive symptoms improved dramatically when I switched to the methylated form of B12.
In context ↗
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