Moderate ME/CFS with crashes, somewhat better with pacing and supplements
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 5 years
- Last post
- Sep 2026
In their words
- Condition: ME/CFS
I have to believe holding onto some of my muscle mass is good for my ME.
In context ↗ - At worst: Moderate
I’m at moderate right now, slowly reintegrating into work.
In context ↗ - Now: Somewhat better
I think I’ve been sick for close to 5 years or more and I’ve started to see improvements in the past 6 months as I’ve nailed down a diagnosis/ found the kinds of techniques discussed here/ really prioritized recovery
In context ↗ - Began after: stress or burnout
suspect my ME/CFS is partially related to childhood trauma
Read from 15 of their posts and comments; links to the 7 this page draws on
Summary
Sandpiper 91490 has had ME/CFS for close to five years, linking it partly to childhood trauma, and rated themselves moderate in 2026: working full time from home while saying they should not be, and fully crashing in June 2026. In the past six months they saw real improvement, crediting pacing, supplements, diet changes, meditation and breathing work, and responding well to symptoms.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- walking every day and light gym work · Helped
I do feel like being more active again is significantly helping my mental state, which is helping everything else
In context ↗ - meditation/ breathing, breath work · Helped
it was amazing to me how fast the shifts started coming (at least compared to before) once i began taking breath work seriously and getting more disciplined about meditation
In context ↗ - the pill · Worse
The pill really fucked with me emotionally
In context ↗ - IUD · Helped
I’m on my second iud and I do love it and have had zero issues.
In context ↗ - pacing · Helped
I’ve been pacing well ... I’ve felt more hope in the last month or so than I have in a very long time
In context ↗ - childhood trauma work · Not said
suspect my ME/CFS is partially related to childhood trauma ... these are many of the things I’m focusing on now
In context ↗ - supplements · Helped
taking a bunch of supplements
In context ↗ - eating like a nutritionist · Helped
eating like a nutritionist
In context ↗ - intentionally responding well to symptoms · Helped a lot
The single most dramatic shift was when I started intentionally responding well to symptoms
In context ↗
Approaches: Exercise and activity · Mind-body practices · Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 4.7 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| ~2021 | onset of ME/CFSI think I’ve been sick for close to 5 years or moreIn context ↗ | Not stated | |
| 2026-05-09 | returned to full-time remote work after a month of medical leave and lost earlier physical and social progressI took a month of medical leave and then went back to work (full time remote, at times fairly stressful job) ... I lost all my other physical / social progress when I went backIn context ↗ | Moderate | |
| 2026-06-07 | crashed after a week with family in a rural placeUpdate: I fully crashed lol. Makes more senseIn context ↗ | Moderate | |
| 2026-09-10 | started to see improvements over the previous six monthsI’ve started to see improvements in the past 6 months as I’ve nailed down a diagnosis/ found the kinds of techniques discussed here/ really prioritized recoveryIn context ↗ | Moderate | |
| 2026-09-14 | pacing, supplements, diet and breathing work; felt more hope than in a long timeI’ve been pacing well, taking a bunch of supplements, eating like a nutritionist, and doing meditation/ stress reduction/ breathing exercises for monthsIn context ↗ | Moderate | Pacing and the energy envelope |
Adverse events
- Everyday exercise and activity“yesterday I did two gym machines I haven’t done in a bit and had a couple emotionally high stress moments, so I feel a bit more tired today” In context ↗ Made symptoms worse
- Hormonal birth control (unspecified)“The pill really fucked with me emotionally” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I did two gym machines I haven’t done in a bit and had a couple emotionally high stress moments, so I feel a bit more tired today
In context ↗ - Anxiety & low mood
have anxiety constantly that I can’t complete the tasks in front of me for the day
In context ↗
Ask Miruvor AI
Similar stories
-
Long COVID with panic, gut problems and dysautonomia; somewhat better with rest and pacing
Prairie 75127 fell ill with long COVID in summer 2020 after a Covid infection in December 2019, with daily panic and anxiety, gut problems and dysautonomia, and could not keep working. They credited time, rest, pacing, meditation, quitting alcohol and…
-
Long COVID insomnia and adrenaline surges, much better at about 80% after pacing
Infected in March 2020, he developed mild long COVID dominated by two years of severe insomnia and night-time adrenaline surges, while working full time from home. From 2023 he paced strictly, did daily nervous-system work (yin yoga, breathing, meditation,…
-
Bedbound at worst with ME/CFS, now much better and mild/moderate after pacing
Fjord 25428 fell ill around 2018 and was bedbound at her worst. She built back slowly with pacing, therapy, short walks and later midodrine, duloxetine and electrolyte drinks, reaching four days a week of home work by 2023 while still calling herself a…
-
Not enough detail to draw a path
ME/CFS for over 16 years, now recovered after tai chi and cold-water swimming
Nightjar 85524 had ME/CFS for over 16 years by 2022, working part time much of that time. Pacing, a smartwatch and NADH brought slow gains, while a second Pfizer dose caused a severe crash that took about eight months to recover from. Tai chi and carefully…