ME/CFS
Outcome unclear
ME/CFS with shingles among worst five weeks, Valtrex and light therapy no help
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Jan 2024
In their words
- Condition: ME/CFS
Shingles plus cfs = some of the worst 5 weeks of my life.
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
A person with CFS who had shingles and took a full two-week course of Valtrex, which had zero effect; the shingles period was among the worst five weeks of their life. They tried various light-therapy glasses and about half a dozen lights for a non-24-hour sleep pattern; the lights only gave them headaches. Two colonoscopies caused no fatigue crash.
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What they tried
Also tried
Their words about each treatment
- valtrex · No change
I had shingles and had a full two week course of valtrex. Zero effect at all.
In context ↗ - bright light therapy (SAD lamps and light glasses) · Worse
I have tried the various glasses here and found them not any better than the various lights, which in my cause just were more of headache inducing.
In context ↗ - colonoscopy · Not said
I've had two. I think the full body clean out was more of an issue here than it triggering any fatigue for me.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | Living with CFSShingles plus cfs = some of the worst 5 weeks of my life.In context ↗ |
| before 2022-04-17 | Shingles (chicken pox/shingles virus) with CFS |
| 2024-01-05 | Still living with CFS; no fatigue crash after colonoscopiesI think the full body clean out was more of an issue here than it triggering any fatigue for me.In context ↗ |
Adverse events
- “I have tried about a half dozen different lights and all I ever got was headaches.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
all I ever got was headaches
In context ↗ - Sleep problems
For DSPD which is now just non-24
In context ↗