ME/CFS
Severe → somewhat better
In bed over a month with ME/CFS, now somewhat better
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Feb 2023
In their words
- Condition: ME/CFS
my pcp + neuro agree it’s likely what I have but not officially diagnosed yet
In context ↗ - At worst: Severe
I had to drop out of school and haven’t left the house (or really my bed) aside from 1 doctor appointment.
In context ↗ - Now: Somewhat better
I have been able to do some light chores and shower and go on my phone and have a real therapy session ... I still feel ill
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Dove 20026 was being assessed for ME/CFS after a crash that lasted over a month, the longest since becoming ill; they dropped out of school and stayed in bed apart from one doctor's appointment. The crash then lifted and they could do light chores, shower and hold a therapy session, though POTS, chronic migraine and undiagnosed gut problems remained. They were pacing carefully to avoid another crash.
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What they tried
Also tried
Their words about each treatment
- pacing · Not said
Now I’m working super hard on pacing and trying to avoid the triggers that got me to that place
In context ↗ - therapy session · Not said
have a real therapy session
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | became ill with ME/CFS-like illnesssince getting sick with thisIn context ↗ | Not stated |
| early 2023 | extremely long crash lasting over a monthI was in an extremely long crash. It lasted over a month ... I had to drop out of school and haven’t left the house (or really my bed) aside from 1 doctor appointment.In context ↗ | Severe |
| 2023-02-03 | crash lifted; light chores, showering and a therapy session possibleyesterday, I woke up and for the first time in what felt like forever and my fatigue had lifted ... I have been able to do some light chores and shower and go on my phone and have a real therapy sessionIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Recently, I was in an extremely long crash. It lasted over a month which is the longest I’ve ever experienced a crash since getting sick with this.
In context ↗ - POTS & dysautonomia
I have POTS too as well as chronic migraine and undiagnosed GI Issues
In context ↗ - Flu-like symptoms
not the viral-y flu like feelings I had been having for a month+
In context ↗