Long COVID
Severe → no benefitIll for 13 months
Mostly confined to bedroom with long COVID, still ill despite gym and walks
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill for
- 13 months
- Last post
- Jun 2023
In their words
- Condition: Long COVID
Constant symptoms since vid:
In context ↗ - At worst: Severe
I spent most of it in my bedroom because I was so tired and exhausted.
In context ↗ - Now: No benefit
I am not well, I'll need to lay down.
In context ↗ - Began after: COVID
I got covid, I was sick for about 2 weeks.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
After COVID in May, a Canadian developed constant palpitations, dizziness, near-fainting spells, feeling sick when eating, swollen lymph nodes and severe weakness; sinus and tooth infections followed. By autumn they were mostly confined to their bedroom, unable to eat without feeling ill and too weak to leave the room. Through spring 2023 they remained ill despite trying the gym and walks, still almost fainting weekly and needing to lie down.
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What they tried
Also tried
Chiro· Helpedworking out at home, going to the gym· Worsechanged my diet to incorporate a lot of vegetables· Not saidantibiotics· Not said
Their words about each treatment
- changed my diet to incorporate a lot of vegetables · Not said
I'm eating right (I actually changed my diet incorporate a lot of vegetables just before covid as well)
In context ↗ - antibiotics · Not said
Another round of antibiotics (3x in less than a year) and another tooth gone.
In context ↗ - working out at home, going to the gym · Worse
I start going to the gym, I'm over working myself and I am so tired all the time
In context ↗ - Chiro · Helped
February, vertigo is back. Chiro helps but it doesn't help as much as it should.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| May 2022 | COVID infection, sick for about two weeksI got covid, I was sick for about 2 weeks.In context ↗ | Mild |
| October 2022 | mostly confined to bedroom, unable to eat without feeling ill, lost 50 lbI'm still dealing with not being really able to leave my room, I've lost 50 lb because I can't eat without feeling illIn context ↗ | Severe |
| November 2022 | vision loss and uncontrollable shaking after cold wind exposureI lost my vision, my entire body started to tremor and shake uncontrollablyIn context ↗ | Severe |
| December 2022 | regular cold while still weakDecember, I get sick just with a regular cold. No covid. I'm still weakIn context ↗ | Severe |
| February 2023 | vertigo returnedFebruary, vertigo is back.In context ↗ | Moderate |
| March 2023 | shaking episode, hospital visit, license cancelledWent to the hospital, got my license canceled because they thought it was a seizure but it turns out it was just something called rigorsIn context ↗ | Moderate |
| April to June 2023 | still ill, trying gym and walks, almost fainting weeklyI am almost fainting once a week. I never know what my days will bring.In context ↗ | Moderate |
Symptoms mentioned
Anxiety & low moodFlu-like symptomsGut problemsHeart symptoms & palpitationsMuscle weaknessPOTS & dysautonomiaTemperature regulationVision problems
Their words about their symptoms
- Heart symptoms & palpitations
Heart palpitations ... Random increase in heart rate while resting
In context ↗ - POTS & dysautonomia
Dizziness ... Random almost fainting spells
In context ↗ - Gut problems
Cannot eat without feeling sick or dizzy
In context ↗ - Flu-like symptoms
Swollen lymph nodes painful
In context ↗ - Muscle weakness
General weakness
In context ↗ - Anxiety & low mood
My anxiety is now through the roof
In context ↗ - Vision problems
I lost my vision
In context ↗ - Temperature regulation
Can't go outside without getting a chill
In context ↗