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Long COVID Moderate → much betterIll 6 months before improving or writing

Long COVID with PEM after reinfection, much better after fasting

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
6 months
Last post
Oct 2023
In their words
  • Condition: Long COVIDI first got Covid in January 2022, with long Covid symptoms (no PEM, however) lasting through mid-July. In context ↗
  • At worst: ModeratePEM was making it hard for me to do even intermittent fasting. In context ↗
  • Now: Much betterI felt much, much better and was able to start doing light exercise again In context ↗
  • Began after: COVIDI first got Covid in January 2022
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Nightjar 89180 caught COVID in January 2022 and had long COVID symptoms without PEM until mid-July; a 10-day water fast left them feeling 100%. A reinfection in November 2022 brought worse symptoms including PEM. A 4-day fast in August 2023 made them much better and able to swim, cycle and walk again, with short-lasting PEM symptoms; in late October they were on day 5 of another fast.

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What they tried

Their words about each treatment
  • over-the counter antihistamines · Helpedover-the counter antihistamines helped me noticeably reduce severity of symptoms In context ↗
  • extended water fasting · Helped a lotsince I started dealing with COVID, every time I’ve done a fast of 3 days or longer my symptoms improve dramatically and it becomes easier for me to move forward In context ↗
  • intermittent fasting · Not saidPEM was making it hard for me to do even intermittent fasting In context ↗
  • light exercise: light swimming, indoor bike, long walks · Not saidLack of exercise was bringing me down significantly, both physically, mentally and emotionally. Post-exertional malaise (PEM) sure made me pay a price. In context ↗

Approaches: H1 antihistamines · Diet

Their path

Very severeSevereModerateMildNear normalRecovered6 mo12 mo18 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 6 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
January 2022COVID infection, long COVID symptoms beganI first got Covid in January 2022, with long Covid symptoms (no PEM, however) In context ↗Not stated
mid-July 202210-day water fast, felt 100% afterwardsI did a 10-day fast and felt 100% afterwards. In context ↗RecoveredExtended water fasting (3+ days)
November 2022COVID reinfection, symptoms much worseThen I got reinfected last November and still dealing with symptoms, which are much worse the second tine around. In context ↗Moderate
August 20234-day water fast, resumed light swimming, indoor bike, long walksI felt much, much better and was able to start doing light exercise again In context ↗MildExtended water fasting (3+ days)
2023-10-27day 5 of another water fast, on the way out of the illnessI am currently on Day 5 of another water fast. In context ↗MildExtended water fasting (3+ days)

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI still felt some PEM’ish symptoms (such as elevated heart rate, exhaustion) but they were short-lasting. In context ↗
  • Heart symptoms & palpitationsstrange twitching/palpitations in my upper arms In context ↗

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