Long COVID
Outcome unclear
Long COVID with POTS, MCAS, reflux and depersonalization; tried nicotine and xylitol gums
- Condition
- Long COVID
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Dec 2024
In their words
- Condition: Long COVID
keeps my LC GERD in check
In context ↗ - Began after: COVID
it keeps my LC GERD in check
In context ↗
Read from 7 of their posts and comments; links to the 5 this page draws on
Summary
A person with long COVID described POTS, MCAS, acid reflux and depersonalization. Nicotine gum helped their symptoms somewhat and helped them stop smoking in December, and xylitol gum eased reflux after meals. NAC and glutathione caused a strong histamine reaction. A medication brought a glutamate rebound that sharply worsened depersonalization for days, with only six pills available.
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What they tried
Also tried
Nicotine gum· Helpedsugar free chewing gum (xylitol)· Helpedbenzodiazepines· HelpedNAC and glutathione· WorseXlear max strength nasal spray· Not saidNAC (N-acetylcysteine)· Not saidGlutathione· Not said
Their words about each treatment
- Nicotine gum · Helped
Nicotine gum has saved my life, it got me off smoking in December and it definitely helps my symptoms
In context ↗ - Xlear max strength nasal spray · Not said
No it doesn’t affect my pots, I use Xlear max strength
In context ↗ - sugar free chewing gum (xylitol) · Helped
gum helps me neutralize the acid after a meal, as chewing is producing saliva and neutralizing the ph
In context ↗ - NAC and glutathione · Worse
I wasn’t able to tolerate NAC or glutathione, gave me a strong histamine reaction unfortunately
In context ↗ - benzodiazepines · Helped
Yeah same I get 6 and when they’re gone they’re gone. ... I just like knowing I have a ‘lifeline’ if in crisis
In context ↗ - NAC (N-acetylcysteine) · Not said
I wasn’t able to tolerate NAC or glutathione, gave me a strong histamine reaction
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| — | long COVID onsetit keeps my LC GERD in checkIn context ↗ | |
| 2024-02-10 | nicotine gum eased symptoms somewhat and helped them stop smokingNicotine gum has saved my life ... it definitely helps my symptomsIn context ↗ | Nicotine patches |
| 2024-12-08 | glutamate bounce-back after one benzodiazepine sharply worsened depersonalization for daysI get awful glutamate bounce back the following days after taking just one ... and takes days to recoverIn context ↗ | |
| 2024-12-08 | still ill, keeps benzodiazepines as a crisis lifeline onlyI just like knowing I have a ‘lifeline’ if in crisisIn context ↗ |
Adverse events
- “I always rinse my throat out and gargle after using nose spray, as it typically sets off my MCAS” In context ↗ Autoimmune or inflammatory flare
- NAC (N-acetylcysteine), Glutathione“I wasn’t able to tolerate NAC or glutathione, gave me a strong histamine reaction” In context ↗ Side effects
- Benzodiazepines (unspecified)“But I get awful glutamate bounce back the following days after taking just one, it affects my LC depersonalization hard and takes days to recover.” In context ↗ Withdrawal problems
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
No it doesn’t affect my pots
In context ↗ - Mast cell (MCAS) & allergies
it typically sets off my MCAS
In context ↗ - Gut problems
it keeps my LC GERD in check
In context ↗