Miruvor
Sign up
ME/CFS Very severe → somewhat betterNeeds ongoing treatment

ME/CFS, severe depression, couldn't get out of bed to eat, now somewhat better on meds

Condition
ME/CFS
At worst
Very severe (bedbound, unable to do basic care)
Ill before improving or writing
many years
Last post
May 2015
In their words
  • Condition: ME/CFSI've been through the same thing as you, OP, for many years In context ↗
  • At worst: Very severeI can't fucking get out of bed, even to eat In context ↗
  • Now: Somewhat betterWhat has made the difference for me is simply the right combination of meds. In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on

Request to remove this story

Summary

A Reddit user ill with ME/CFS for many years described depression so severe they could not get out of bed to eat, and a breakdown around 2012 that led to psychosis and hospitalisation after suicidal thoughts. They credited the right combination of medications, after stopping earlier meds over severe reactions. A medication with a stimulant effect was taken for a couple of years before its effects wore off.

Ask Miruvor AI

Asking aboutHawk 32963’s story

What they tried

Also tried

the right combination of meds· Helped a lotT3 replacement· Helpedunnamed treatment ('it')· Helped · wore offWellbutrin· Not said
Their words about each treatment
  • Wellbutrin · Not saidI've been taking it for the past couple years. The side effects wear off, including the stimulant effect. In context ↗
  • the right combination of meds · Helped a lotWhat has made the difference for me is simply the right combination of meds. In context ↗
  • T3 replacement · Helpedat one time I took T3 replacement and that seemed to help a bit. In context ↗
  • unnamed treatment ('it') · HelpedI tried it and it helped for awhile, but then stopped working. In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
—ME/CFS ongoing for many years, onset not describedSo yes, I've been through the same thing as you, OP, for many years In context ↗Not stated
2012breakdown with psychosis, hospitalised after suicidal crisis; in bed unable to get up to eatI can't fucking get out of bed, even to eat. In context ↗Very severe
2012-11somewhat better than the worst periodWell, it's not as bad lately In context ↗Moderate
2014-10-30found the right combination of psychiatric medicationsWhat has made the difference for me is simply the right combination of meds. In context ↗Moderate
2015-05-13a medication helped for a while then stopped workingI tried it and it helped for awhile, but then stopped working. In context ↗Not stated

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Anxiety & low moodSure, I have depression. I can't fucking get out of bed, even to eat. In context ↗

Ask Miruvor AI

Asking aboutHawk 32963’s story

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime